Search results for ‘Subject term:"palliative care"’ Sort:
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Palliative care: learning in practice
- Authors:
- STEVENS Elaine, EDWARDS Janette
- Publisher:
- Reflect Press
- Publication year:
- 2008
- Pagination:
- 416p.
- Place of publication:
- Banbury
A large number of patients with life-threatening illness are cared for in general hospitals, care homes, psychiatric units and in the community setting and the nurse is often the carer who spends the most time with them. Nurses knowledge of palliative care the way in which they define it and the actions they take based on that knowledge directly affect the quality of care they provide for the patient and the quality of the patient s life. This book is an interactive textbook based on models of open learning, action learning, work-based learning, critical companionship and reflective practice. It has been designed to be used as a flexible learning resource in a variety of situations with local support from colleagues, professional and practice development staff, managers and educators. The text is designed to enable the reader to gain, improve and update their knowledge and skills, and to take on more responsibility for their own learning and development. Contents include: essential concepts in palliative care; assessment; anxiety and depression; breathlessness; fatigue; pain; and quality improvement. This book is suitable for qualified nurses in any setting that has palliative care patients.
Job swap
- Author:
- BURGER Helen
- Journal article citation:
- Viewpoint, January 2009, pp.20-21.
- Publisher:
- Mencap/Gateway
The North Staffordshire Palliative Care Project aims to provide support and advice on palliative care to people with a learning disability and their families and carers. This article reports on an innovative project, where learning disability and palliative care nurses are sharing expertise.
Fast-track palliative care training to bridge the theory-practice gap
- Author:
- WARD Chris
- Journal article citation:
- Nursing Times, 23.3.04, 2004, pp.38-40.
- Publisher:
- Nursing Times
Presents an overview of a fast-track training programme set up by a specialist team from a primary care trust. The training programme aims to develop the palliative care skills of health care professionals in palliative care and consists of an academic module, a four-week secondment to a palliative care setting and a project undertaken in the workplace to bring about a change in practice. The programme has been successful in increasing students' skills and confidence.
Improving the quality of dying
- Author:
- DUTTON Rachel
- Journal article citation:
- Journal of Care Services Management, 3(3), April 2009, pp.258-260.
- Publisher:
- Taylor and Francis
People with dementia are less likely to be referred to palliative care teams than those without dementia and, as a result, their pain levels and care needs are consistently under-diagnosed and under-treated. This paper describes a new service offering end-of-life care for people with dementia across a number of London boroughs. The Dementia Voice Nurse acts as a expert practitioner, advocate and facilitator and will liaise with the family, GP and other services.
Addressing bereavement issues through education
- Author:
- DOUGLAS Mary
- Journal article citation:
- Nursing Times, 15.10.02, 2002, pp.36-37.
- Publisher:
- Nursing Times
Describes a programme developed by Salford Royal Hospitals NHS Trust to enhance the quality of nursing care given to dying patients and their relatives. It focuses on instances of sudden and unexpected death and aims to develop nurses' reflective specialist knowledge, skills and attitudes.
Acting on dilemmas in palliative care
- Author:
- FRANKLIN Mezzi
- Journal article citation:
- Nursing Times, 6.12.01, 2001, pp.37-38.
- Publisher:
- Nursing Times
Acting out dilemmas they face in palliative care can help nurses to explore ways of resolving them. Describes and education programme that uses theatre to explore real-life issues.
Interprofessional team building in the palliative home care setting: use of a conceptual framework to inform a pilot evaluation
- Authors:
- SHAW James, et al
- Journal article citation:
- Journal of Interprofessional Care, 30(2), 2016, pp.262-264.
- Publisher:
- Taylor and Francis
Home-based palliative care is increasingly dependent on interprofessional teams to deliver collaborative care that more adequately meets the needs of clients and families. The purpose of this pilot evaluation was to qualitatively explore the views of an interprofessional group of home care providers (occupational therapists, nurses, personal support work supervisors, community care coordinators, and a team coordinator) regarding a pilot project encouraging teamwork in interprofessional palliative home care services. Qualitative methods, informed by an interprofessional conceptual framework, were used to analyse participants’ accounts and provide recommendations regarding strategies for interprofessional team building in palliative home health care. Findings suggest that encouraging practitioners to share past experiences and foster common goals for palliative care are important elements of team building in interprofessional palliative care. Also, establishing a team leader who emphasises sharing power among team members and addressing the need for mutual emotional support may help to maximise interprofessional teamwork in palliative home care. These findings may be used to develop and test more comprehensive efforts to promote stronger interprofessional teamwork in palliative home health care delivery. (Edited publisher abstract)
Impact of death work on self: existential and emotional challenges and coping of palliative care professionals
- Authors:
- CHAN Wallace Chi Ho, et al
- Journal article citation:
- Health and Social Work, 41(1), 2016, pp.22-41.
- Publisher:
- Oxford University Press
Palliative care professionals, such as social workers, often work with death and bereavement. They need to cope with the challenges on “self” in working with death, such as coping with their own emotions and existential queries. In this study, the authors explore the impact of death work on the self of palliative care professionals and how they perceive and cope with the challenges of self in death work by conducting a qualitative study. Participants were recruited from the palliative care units of hospitals in Hong Kong. In-depth interviews were conducted with 22 palliative care professionals: five physicians, 11 nurses, and six social workers. Interviews were transcribed to text for analysis. Emotional challenges (for example, aroused emotional distress from work) and existential challenges (for example, shattered basic assumptions on life and death) were identified as key themes. Similarly, emotional coping (for example, accepting and managing personal emotions) and existential coping (for example, rebuilding and actualising life-and-death assumptions) strategies were identified. This study enhances the understanding of how palliative care professionals perceive and cope with the challenges of death work on the self. Findings may provide insights into how training can be conducted to enhance professionals’ self-competence in facing these challenges. (Publisher abstract)
End-of-Life decision-making for people with intellectual disability from the perspective of nurses
- Authors:
- WAGEMANS A.M.A., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(4), 2015, pp.294-302.
- Publisher:
- Wiley
The aim of this study was to investigate the involvement of nurses in the process of making end-of-life decisions for people with intellectual disability (ID). This qualitative study involved nine semistructured interviews with nurses working in chronic care, conducted after the deaths of patients with ID in the Netherlands. The interviews were transcribed verbatim and analysed using Grounded Theory procedures. The core characteristic of the position of the nurses and of the way they supported the patient was "Being at the centre of communication." Related categories of topics emerging from the interviews were "Having a complete picture of the patient," "Balancing involvement and distance," "Confidence in one's own opinion," and "Knowledge about one's own responsibility," all of which were focused on the patient. This focus on the patient with ID might explain why the nurses could make valuable contributions to such an important subject as end-of-life decisions. People with ID themselves were not involved in the decisions. The nurses were not always aware who was ultimately responsible for the end-of-life decisions. Nurses are in a unique position to support the process of end-of-life decision-making. It is important to use their knowledge and give them a more prominent position in this decision-making process. It should be clear to all involved who is ultimately responsible for making the end-of-life decisions. (Edited publisher abstract)
How do patients respond to end-of-life status?
- Authors:
- RICHARDS Naomi M., et al
- Journal article citation:
- Nursing Times, 110(11), 2014, pp.21-23.
- Publisher:
- Nursing Times
Although health professionals may tell patients when they are nearing the end of the lives, patients do not always absorb or want this information. This study explores if and how information about palliative care was communicated to patients and to what extent they felt involved in decision making. Semi-structured interviews were conducted with 15 patients and three family carers, 3-6 months after discharge from hospital. Despite indications that participants might be nearing the end of their lives, most were unaware of their prognosis and showed little insight into what they could expect. The study concludes that new and innovative ways of delivering palliative care are needed. It also acknowledges that not all patients will desire full open awareness of their condition. (Edited publisher abstract)