Search results for ‘Subject term:"palliative care"’ Sort:
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Providing palliative day care for non-malignant conditions
- Authors:
- COCHRANE Evelyn, COLVILLE Elaine, CONWAY Rosie
- Journal article citation:
- Nursing Times, 11.11.08, 2008, pp.32-35.
- Publisher:
- Nursing Times
There is increasing pressure to provide palliative care to patients on the basis of need rather than diagnosis, but there is little information on how to provide support to those with non-malignant conditions. Those with non-malignant conditions such as chronic respiratory disease; heart failure; end-stage renal disease; and chronic neurological conditions have significant physical symptom burdens in addition to unmet psychosocial needs. This one year pilot project aimed to examine the feasibility of providing hospice care to patients with non-malignant conditions. Twenty-eight patients out of a possible 52 who fitted referral criteria attended day care during the year, 16 were discharged and four died. Attendance appeared generally acceptable to patients who accepted the invitation but was often sporadic due to illness. It is concluded that the project did not overwhelm the service, it had negligible impact on the number of inpatient admissions and appeared to be resource neutral.
Palliative care: the management of far advanced illness
- Editor:
- DOYLE Derek
- Publisher:
- Croom Helm
- Publication year:
- 1983
- Pagination:
- vii,536p.,tables.
- Place of publication:
- London
Transitional palliative care interventions for older adults with advanced non-malignant diseases and frailty: a systematic review
- Authors:
- SEZGIN Duygu, et al
- Journal article citation:
- Journal of Integrated Care, 28(4), 2020, pp.387-403.
- Publisher:
- Emerald
Purpose: To identify transitional palliative care (TPC) interventions for older adults with non-malignant chronic diseases and complex conditions. Design/methodology/approach: A systematic review of the literature was conducted. CINAHL, Cochrane Library, Embase and Pubmed databases were searched for studies reporting TPC interventions for older adults, published between 2002 and 2019. The Crowe Critical Appraisal Tool was used for quality appraisal. Findings: A total of six studies were included. Outcomes related to TPC interventions were grouped into three categories: healthcare system-related outcomes (rehospitalisation, length of stay [LOS] and emergency department [ED] visits), patient-related outcomes and family/carer important outcomes. Overall, TPC interventions were associated with lower readmission rates and LOS, improved quality of life and better decision-making concerning hospice care among families. Outcomes for ED visits were unclear. Research limitations/implications: Positive outcomes related to healthcare services (including readmissions and LOS), patients (quality of life) and families (decision-making) were reported. However, the number of studies supporting the evidence were limited. Originality/value: Studies examining the effectiveness of existing care models to support transitions for those in need of palliative care are limited. This systematic literature review identified and appraised interventions aimed at improving transitions to palliative care in older adults with advanced non-malignant diseases or frailty. (Edited publisher abstract)
Palliative care: care for life threatening illnesses: information and help for older people
- Author:
- POLICY RESEARCH INSTITUTE ON AGEING AND ETHNICITY
- Publisher:
- Policy Research Institute on Ageing and Ethnicity
- Publication year:
- 2009
- Pagination:
- 9p.
- Place of publication:
- Leeds
An information leaflet which provides information about palliative care. Its contents include: what it is; how older people can find out more information; obtaining palliative care for non-English speakers; and how older people can obtain palliative care in either a hospice or in their own home. The last section contains a listing of relevant organisations with contact details.
The silence of patients with end-stage COPD: a qualitative study
- Authors:
- HARAKEN Jolanda M., et al
- Journal article citation:
- British Journal of General Practice, 58(557), December 2008, pp.844-849.
- Publisher:
- Royal College of General Practitioners
Patients with end-stage chronic obstructive pulmonary disease (COPD) experience poor quality of life and considerable problems in daily life. However, as they often do not actively express a wish for help, they do not get the help they need. This study aimed to gain insight into why patients with end-stage COPD tend not to express a wish for help. Prospective qualitative study with semi-structured interviews. Outpatient clinics of four hospitals and one centre specialising in asthma and COPD in the Netherlands. Sixteen semi-structured interviews were conducted with 11 patients with end-stage COPD. To express a wish for help, patients should regard their limitations as abnormal and should realise that there are possibilities to improve their situation. However, this was not the case with the patients interviewed. They appeared to consider themselves ill at a time of acute exacerbation of their illness, but regarded their everyday life as normal. In addition, patients lived with the assumption that, as their lungs were damaged beyond repair, they could not get help. Patients with end-stage COPD do not actively express a wish for help because they do not consider their limitations to be abnormal and because they do not realise that there are possibilities to improve their situation. These results suggest that care in this stage of the disease should focus on improving daily life instead of just aiming to improve the functioning of the lungs. Professionals in health care should actively explore what kind of practical help these patients might welcome in keeping up their daily activities. Future research should focus on studying whether such an approach applies to the needs of patients with end-stage COPD.
Planning for the end of children's lives – the lifetime framework
- Authors:
- FINLAY F., et al
- Journal article citation:
- Child: Care, Health and Development, 34(4), July 2008, pp.542-544.
- Publisher:
- Wiley
This paper describes the development of 'a best practice framework', following review of a sample of notes of children known to the Lifetime Service, where the child has a non-malignant life limiting condition, to improve child and family engagement in the planning process at the end of life. An audit of clinical case notes was followed by the development of 'a best practice framework' through a Delphi process involving clinical practitioners. The 3 × 3 framework is presented to aid communication with parents and children at this difficult time of decision-making. The new framework has been well received by both parents and practitioners, and its use will be audited in the future.
Palliative care, neurology and rehabilitation: current levels of involvement
- Author:
- SYKES Nigel
- Journal article citation:
- Journal of Care Services Management, 2(2), January 2008, pp.194-202.
- Publisher:
- Taylor and Francis
A survey of consultant physicians in palliative medicine, rehabilitation medicine and neurology in England was performed in order to assess the current involvement of their services with the care of people with long-term neurological conditions. Response rates were achieved of 49 per cent for palliative physicians, 46 per cent for rehabilitation physicians, but only 17 per cent for neurologists; however, at least 90 per cent of all those who responded were involved with this area of care. The principal themes to emerge from the survey were a degree of overlap between the perceived areas of responsibility of the three specialities, particularly in regard to symptom control; a lack of coordinated care for people with long-term neurological conditions; and a requirement for better support for this patient group in the community. A model for service interaction, termed neuropalliative rehabilitation, is described, with the aim of encouraging clinicians from the three specialities to seek out opportunities for collaborative working in order to improve the care of this patient group.
Reducing the impact of stroke: a 10-year action plan
- Author:
- SHUTTLEWORTH Ann
- Journal article citation:
- Nursing Times, 11.12.07, 2007, pp.28-29.
- Publisher:
- Nursing Times
The Department of Health's new stroke strategy for England sets out a framework of quality markers to improve prevention, treatment, care and support over the next 10 years. The strategy aims to reduce the impact of stroke on patients, their families, health and social services, and the economy by ensuring patients receive prompt treatment in specialist settings, followed by early rehabilitation or tailored end of life care. This article summarises key points from the strategy.
Illness trajectories and palliative care
- Authors:
- MURRAY Scott A., et al
- Journal article citation:
- British Medical Journal, 30.04.05, 2005, pp.1007-1011.
- Publisher:
- British Medical Association
Discusses the use of illness trajectories as a way of helping people with life threatening illnesses their prognosis, and what will happen to them. Describes three typical illness trajectories for patients with progressive chronic illnesses: cancer, organ failure, and the frail elderly or dementia trajectory. Looks at the importance of the physical, social, psychological, and spiritual needs patients and carers and the different models of care necessary.
Relationship between pain and chronic illness among seriously ill older adults: expanding role for palliative social work
- Authors:
- MORRISSEY Mary Beth, VIOLA Deborah, SHI Qiuhu
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 10(1), 2014, pp.8-33.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Confronting the issue of pain among chronically ill older adults merits serious attention in light of mounting evidence that pain in this population is often undertreated or not treated at all (Institute of Medicine, 201126. Institute of Medicine . ( 2011 ). Relieving pain in America: A blueprint for transforming prevention, care, education and research . Washington, DC : National Academies Press . The relationship between pain and chronic illness among adults age 50 and over was examined in this study through the use of longitudinal data from the University of Michigan Health and Retirement Study, sponsored by the National Institute on Aging and the Social Security Administration. Findings suggested positive associations between pain and chronic disease, pain and multimorbidity, as well as an inverse association between pain and education. Policy implications for workforce development and public health are many, and amplification of palliative social work roles to relieve pain and suffering among seriously ill older adults at all stages of the chronic illness trajectory is needed. (Edited publisher abstract)