Search results for ‘Subject term:"palliative care"’ Sort:
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Improving palliative care provision for older people in care homes
- Authors:
- YOUNG Erica, FROGGATT Katherine
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2005
- Pagination:
- 12p.
- Place of publication:
- London
This publication provides care homes, hospices and the health service with the guidelines and necessary actions to ensure that the half a million people living in care homes across the UK receive the essential palliative care services they require. It identifies present and potential challenges for the provision of palliative care in care homes and suggests actions to address these challenges.
Impact of the COVID-19 pandemic on end of life care delivery in care homes: a mixed method systematic review
- Authors:
- SPACEY Adam, et al
- Journal article citation:
- Palliative Medicine, early cite 30 July 2021,
- Publisher:
- Hodder Arnold
Background: Current evidence suggests that COVID-19 is having a negative impact on the delivery of end of life care in care homes around the world. There is a need to collate current evidence to provide a comprehensive overview to assess extent of the problem. Aim: To describe and evaluate the impact of the COVID-19 pandemic on end of life care delivery in care homes. Design: Systematic review and narrative synthesis of studies reporting qualitative and quantitative data. Data sources: The databases MEDLINE, psycINFO, SCOPUS and CINAHL were searched between December 2019 and March 2021. Results: Nine studies were included. For care home staff, challenges included significant increases in responsibility and exposure to death, both of which have taken an emotional toll. Results indicate that staff tended not to be offered adequate emotional support or afforded the time to grieve. For those receiving end of life care, results indicate that the end of life care that they tended to receive, especially in the form of advance planning, was disrupted by the pandemic. Conclusion: The effect of the pandemic has been to exacerbate existing problems in the provision of end of life care in care homes for both service providers and users, making that which was previously opaque starkly visible. Future research is needed to explore the effects of the pandemic and its management on those receiving end of life care in care homes and their significant others. (Edited publisher abstract)
Changing practice in dementia care for people in care homes towards the end of life
- Authors:
- EVANS Catherine, GOODMAN Claire
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 8(3), August 2009, pp.424-431.
- Publisher:
- Sage
This paper reports on the background and design of an innovative study seeking to develop and test a dementia specific approach to palliative care for older people in care homes, entitled Evidence-based interventions in dementia towards the end of life (EVIDEM EoL). The study uses a two-phase prospective design. Phase I intends to explore and document characteristics and support needs for people with dementia in care homes towards the end of life. Data from phase I informs phase II, the development and testing of a dementia specific education and support tool for palliative care in care homes. This paper reports on the study's background and phase I design. The study is part of the EVIDEM research programme (Evidence-based Interventions in Dementia) ( www.evidem.org.uk ).
An end of life care training programme from hospice staff
- Authors:
- LANSDELL John, MAHONEY Mary
- Journal article citation:
- Nursing and Residential Care, 13(9), September 2011, pp.438-440.
- Publisher:
- MA Healthcare Ltd.
- Place of publication:
- London
Seventeen percent of deaths occur in care homes where there may be inadequate end-of-life training of staff. This article discusses a study funded by St Catherine’s Hospice, Crawley into developing end-of-life care competence in care homes. The 3-year study aimed to drive up standards of end-of-life care in care homes to a level of ‘best practice’ by providing a clearer, structured model for ongoing education and support. In year 1, the training programme identified competency requirements through meetings with hospice and key care home staff. In year 2, a 5-day competency course was held which incorporated the competency requirements developed within year 1 as well as focusing on implementing palliative care in non-specialist settings. The care home staff who attended this course shared their learning with the rest of the home. In year 3, competence assessments were linked with homes’ appraisal frameworks to ensure long-term follow on. The article concludes by discussing a competency package that could be disseminated to other care homes.
Capacity to care: a data analysis and discussion of the capacity and function of care homes as providers of end of life care
- Author:
- TEBBIT Peter
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2008
- Pagination:
- 11p.
- Place of publication:
- London
Care homes with nursing are major contributors to palliative and end of life care. The purpose of this brief paper is to offer some insights into the question as to whether the volume of current provision of care homes with nursing is sufficient to meet local needs and what the consequences may be of any inadequate levels of provision.
Delivering end of life care in housing with care settings
- Author:
- CROUCHER Karen
- Publisher:
- Great Britain. Department of Health. Health and Social Care Change Agent Team. Housing Learning and Improvement Network
- Publication year:
- 2006
- Pagination:
- 20p.
- Place of publication:
- London
The aim of this factsheet is to raise awareness among housing with care practitioners and providers of the current agendas and developments in practice around end of life care.
Inpatient transfer to a care home for end-of-life care: what are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature
- Authors:
- THOMAS Tabitha, KUHN Isla, BARCLAY Stephen
- Journal article citation:
- Palliative Medicine, 31(2), 2017, pp.102-108.
- Publisher:
- Hodder Arnold
Background: Transfers from hospital or ‘hospice palliative care units’ to care homes for end-of-life care are an increasingly common part of clinical practice but are a source of anxiety and distress for patients, relatives and healthcare professionals. Aim: To understand the experiences of patients discharged to care homes for end-of-life care. Design: Systematic review and narrative synthesis of the UK literature concerning inpatient transfer from a hospital or hospice palliative care unit to a care home for end-of-life care. Results: The published literature is very limited: only three papers and one conference abstract were identified, all of low quality using Gough’s weight of evidence assessment. No papers examined transfer from hospital: all were of transfers from hospices and were retrospective case note reviews. Many patients were reported to have been negative or ambivalent about moving and experienced feelings of anxiety or abandonment when transferred. Relatives were often either vehemently opposed or ambivalent. Although some came to accept transfer, others reported the transfer to have seriously affected their loved one’s quality of life and that the process of finding a care home had been traumatic. No studies investigated patients’ views prospectively, the views of staff or the processes of decision-making. Conclusion: The UK literature is very limited, despite such transfers being an increasingly common part of clinical practice and a source of concern to patients, relatives and staff alike. Further research is urgently needed in this area, especially studies of patients themselves, in order to understand their experiences and views. (Publisher abstract)
Trees that bend in the wind: exploring the experiences of front line support workers delivering palliative and end of life care
- Author:
- SCOTTISH CARE
- Publisher:
- Scottish Care
- Publication year:
- 2017
- Pagination:
- 47
- Place of publication:
- Ayr
This report highlights the experiences of front line support workers working in home care and care home services who are caring for people with palliative and end of life care needs. A total of 50 staff in four areas of Scotland took part in structured focus groups, and their views and experiences are discussed across the following themes: the individual nature of palliative and end of life care; the complexity and variety of skills required to deliver palliative and end of life care; the importance of experience; what constitutes good person-centred palliative and end of life care; how staff manage the emotional challenges of their work; and the value attached to end of life and palliative care. The report highlights the potential contribution of social care staff to supporting the work of Integrated Joint Boards in achieving positive end of life outcomes, including the benefits of joint team-working and the value of Anticipatory Care Planning. It also stresses the need to explore the role of commissioning practice in relation to palliative and end of life care in social care delivery. The report makes recommendations for the future direction of palliative and end of life care in Scotland based on the principle of person-centred integrated services. (Edited publisher abstract)
Getting serious about prevention: enabling people to stay out of hospital at the end of life
- Author:
- GREY Andrew
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2015
- Pagination:
- 19
- Place of publication:
- London
This report sets out key steps that commissioners can take in collaboration with service providers to enable people who are approaching the end of life to avoid being admitted to hospital when this is possible and appropriate, as well as enabling those who are admitted to make a transition to a community setting quickly. The report argues that as well as reducing the costs to the NHS, enabling people to stay out of hospital at the end of life can make a significant difference to the experiences of dying people and their families. The report makes a number of recommendations for commissioners, service providers and health and social care staff, including: commissioning the increased provision of 24/7 care in community settings, through care homes and hospices, and community health and social care services that can provide care in people’s homes; commissioning anticipatory prescribing of medicines for people approaching the end of life; using available funding, through System Resilience Groups, the Better Care Fund, and Integrated Personal Commissioning, to improve co-ordination between hospitals and community settings, including hospices, for people approaching the end of life; and health and social care staff identifying carers of people who are approaching the end of life and referring them for local authority assessments. (Edited publisher abstract)
What is a 'good death' in the care home setting?
- Authors:
- LAWTON Sally, TOWSEY Liz, CARROLL David
- Journal article citation:
- Nursing and Residential Care, 15(7), 2013, pp.494-497.
- Publisher:
- MA Healthcare Ltd.
- Place of publication:
- London
The provision of palliative and end-of-life care is important within the care home setting to enable them to have their wishes met. This article draws on the findings of a larger project to introduce the NHS Grampian Integrated Palliative Care Plan to a care home in Scotland to examine the factors that may enhance a 'good death' within the care home setting. The authors focus on 181 after-death reviews that were carried out as part of the project, describing factors that promoted a 'good death', reflecting on areas of good practice and identifying areas for development when things did not go well. (Original abstract)