Search results for ‘Subject term:"palliative care"’ Sort:
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Living with ageing and dying: palliative care and end of life care for older people
- Editors:
- GOTT Merryn, INGLETON Christine, (eds.)
- Publisher:
- Oxford University Press
- Publication year:
- 2011
- Pagination:
- 304p.
- Place of publication:
- Oxford
This book identifies ways of improving the end of life experiences of older people by taking an interdisciplinary and international approach. It brings together contributions from leading international experts from different disciplinary backgrounds. Ageing populations mean that end of life care for older people needs to be given greater priority. In particular, there is a perceived need to improve the experiences of older people at the end of life; those that have been identified as the 'disadvantaged dying'. Most current models of care are underpinned by the ideals of specialist palliative care services which were developed to meet the needs of predominantly 'young old' people, and evidence suggests these may not be adequate for the older group. The contributions provide a synergy between the currently disparate literature of gerontology and palliative care. Some authors take a theoretical focus, others a very practical approach rooted in clinical and research experience. The issues covered are diverse and related to a wide range of geographical settings. The book is aimed at both academics and practitioners (doctors and nurses) in palliative care, geriatrics, and gerontology but is also expected to be of interest to social workers, policy makers and anyone with an interest in older people in relation to public health.
International perspectives on public health and palliative care
- Editors:
- SALLNOW Libby, KUMAR Suresh, KELLEHEAR Allan, (eds.)
- Publisher:
- Routledge
- Publication year:
- 2011
- Pagination:
- 224p.
- Place of publication:
- London
The editors bring together international experts in the growing field of public health approaches to palliative care. The chapters explore the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’, seamless support for patients as they transition between home based care and inpatient services, relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing economies, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview while, at the same time, offering practical case examples from affluent and developing contexts, in a range of clinical settings. The book concludes by drawing together research-based guidelines for future practice.
Palliative care in Parkinson's disease
- Authors:
- KERNOHAN George, HARDYWAY Dorothy
- Journal article citation:
- Nursing Times, 21.6.11, 2011, pp.22-25.
- Publisher:
- Nursing Times
The four stages of Parkinson's disease are identified and described. These are: diagnosis, maintenance, complex and end-stage. It then looks at how nurses, and Parkinson's disease specialist nurses, can apply the principles of palliative care to support and care at each stage. It is stressed that palliative care can help maintain patients' independence and improve their quality of life at every stage of Parkinson's disease, not just at the end of life.
Transition issues in education affecting young people with life limiting conditions: year 9 to leaving school
- Authors:
- CROSS Pauline, STONE Jud
- Publisher:
- Marie Curie Cancer Care
- Publication year:
- 2011
- Pagination:
- 12p.
- Place of publication:
- London
Marie Curie Cancer Care’s Young People and Transition programme aims to improve services for young people with life-limiting conditions as they move into adulthood. The work described in this paper forms a part of this larger project. This research aimed to identify, from the perspective of education, the issues and opportunities for young people with life limiting conditions, and for their families/carers, in managing their own best transition to becoming young adults. The methods comprised some initial scoping desk research and interviews with 13 key stakeholders. The paper discusses: the identified areas of good practice; and the gaps and issues in services. A visual representation of the possible education routes taken by young people with life limiting conditions is provided. The findings show that, although there is a formal process that has been designed to deal effectively with transition of young people with special education needs that should, in principle, apply to young people with life-limiting conditions, this process does not appear to be applied in a consistent way. Variation occurs across medical conditions, and across authorities and boroughs in London. Recommendations are provided for the Marie Curie Transitions programme and for the education service.
Dying: doing it better
- Author:
- NATIONAL COUNCIL FOR PALLIATIVE CARE
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 16p.
- Place of publication:
- London
Fit Creative has designed the Dying - Doing it Better report for the National Council for Palliative Care and the Dying Matters coalition. The report aims to promote the work of the NCPC and Dying Matters - organisations that work to change attitudes towards death, dying and bereavement. To achieve these aims there is a three-pronged approach: Policy development – helping government to develop policies that meet end of life care and support needs; Practice development – working with professional groups, organisations, community groups and people with first hand experience to capture, develop and spread good practice; and Public awareness – raising awareness about the need to openly discuss dying, death and bereavement.
Are you there?: reviewing specialist palliative care inpatient admissions criteria
- Authors:
- NATIONAL COUNCIL FOR PALLIATIVE CARE, HELP THE HOSPICES
- Publisher:
- National Council for Palliative Care
- Publication year:
- 2011
- Pagination:
- 15p.
- Place of publication:
- London
This discussion document, published by the National Council for Palliative Care and Help the Hospices, looks at the importance of using specialist palliative care beds in the most efficient way possible. It looks admission and discharge policies and processes and also highlights the relationship of specialist palliative care inpatient services with other services. Case studies are included, as are examples of different approaches to ensure services maintain quality care whilst maintaining efficiency, such as supportive discharge and out of hours services. Early recommendations are also included.
Exploring the experiences of people with intellectual disabilities when service users die
- Authors:
- RYAN Karen, et al
- Journal article citation:
- British Journal of Learning Disabilities, 39(4), December 2011, pp.259-265.
- Publisher:
- Wiley
People with intellectual disabilities are living for longer than ever before and are experiencing the deaths of their friends and other service users. However, there is limited research on the effect of the deaths of fellow service users on this group. This qualitative study described the provision of palliative care to people with intellectual disabilities in Ireland and assessed the population’s palliative care needs. Sixteen focus groups held with 91, staff in which participants described their perception of the experiences of people with intellectual disabilities when other service users die, were explored. Findings highlighted the emotional impact of the death of a friend on people with intellectual disabilities. Situations where staff facilitated the involvement of services users are described, and the study points to the benefits of this approach. Possible barriers to involvement are highlighted. The findings confirm the importance of ensuring that people with intellectual disabilities have a good understanding of the concept of death to ease bereavement.
An end of life care training programme from hospice staff
- Authors:
- LANSDELL John, MAHONEY Mary
- Journal article citation:
- Nursing and Residential Care, 13(9), September 2011, pp.438-440.
- Publisher:
- MA Healthcare Ltd.
- Place of publication:
- London
Seventeen percent of deaths occur in care homes where there may be inadequate end-of-life training of staff. This article discusses a study funded by St Catherine’s Hospice, Crawley into developing end-of-life care competence in care homes. The 3-year study aimed to drive up standards of end-of-life care in care homes to a level of ‘best practice’ by providing a clearer, structured model for ongoing education and support. In year 1, the training programme identified competency requirements through meetings with hospice and key care home staff. In year 2, a 5-day competency course was held which incorporated the competency requirements developed within year 1 as well as focusing on implementing palliative care in non-specialist settings. The care home staff who attended this course shared their learning with the rest of the home. In year 3, competence assessments were linked with homes’ appraisal frameworks to ensure long-term follow on. The article concludes by discussing a competency package that could be disseminated to other care homes.
Oxford textbook of palliative social work
- Editors:
- ALTILIO Terry, OTIS-GREEN Shirley, (eds.)
- Publisher:
- Oxford University Press
- Publication year:
- 2011
- Pagination:
- 812p.
- Place of publication:
- New York
This book is an evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique is its emphasis on the collaborative nature inherent in palliative care. The book brings together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care. The book: provides an array of narratives which give voice to patients and families to illuminate the critical issues common in clinical practice; celebrates the clinician's creative expression of the human experience implicit in palliative and end-of-life care; offers guidance on providing culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness; informs and enriches the clinical practice guidelines for quality palliative care recommended by the national consensus project and the corresponding national quality forum preferred practices; and offers views of the joys and challenges of interdisciplinary work; integrates international perspectives.
Developing an end-of-life benchmark in acute care
- Authors:
- WARREN Tracey, FREER Sarah, MOLINARI Melanie
- Journal article citation:
- Nursing Times, 1.11.11, 2011, pp.15-17.
- Publisher:
- Nursing Times
The Essence of Care Benchmarking is a national tool designed to improve the quality of care, but it has no benchmark that focuses on end-of-life care. Nottingham University Hospitals used the Essence of Care Benchmarking programme to review and improve end-of life care in acute care. This article looks at how the end-of-life care benchmark was developed and how it improved practice. It includes a list of indicators of best practice from the NUH End of Life benchmark.