Search results for ‘Subject term:"palliative care"’ Sort:
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Review of palliative care services in Scotland
- Author:
- AUDIT SCOTLAND
- Publisher:
- Audit Scotland
- Publication year:
- 2008
- Pagination:
- 42p.
- Place of publication:
- Edinburgh
More than 55,000 people die in Scotland each year. Palliative care should be an integral part of the support available to everyone who needs it in the last months, days or hours of life. It also includes help to live with a life-limiting condition. This report is the first overview of the activity, costs and quality of specialist and general palliative care across Scotland. It includes the views of almost 1,000 bereaved families and friends.
BMC Palliative Care
- Publisher:
- BioMed Central Ltd
An open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness. (Edited publisher abstract)
Living and dying with advanced heart failure: a palliative care approach
- Author:
- SCOTTISH PARTNERSHIP FOR PALLIATIVE CARE
- Publisher:
- Scottish Partnership for Palliative Care
- Publication year:
- 2008
- Pagination:
- 49p.
- Place of publication:
- Edinburgh
This report highlights some of the significant challenges in the journey faced by patients and carers living and dying with advanced heart failure, and makes recommendations regarding key elements of good practice and the delivery of more effective services which might help to address their palliative care needs. This report is a policy document outlining key issues and themes which should be considered in the ongoing development of local strategies for the palliative care of patients with advanced heart failure. A limited amount of detail is included, and the report functions mainly as a signpost to key issues and to further sources of information. Although the document and its recommendations focus on patients with advanced heart failure, many of the principles outlined may apply equally to those at earlier stages of the disease. The report aims to provide clarification for clinicians and strategists regarding the principles of palliative care and why it is important in the management of advanced heart failure. It is relevant to policy makers and planners as well as to clinicians, and is intended to be of use to professionals across all sectors, specialties and disciplines who are involved in the care of people with advanced heart failure and their families, as well as to Managed Clinical and Managed Care Networks, Community Health Partnerships, NHS Boards, local authorities and other relevant bodies.
Palliative care for dementia sufferers
- Author:
- -
- Journal article citation:
- Community Care, 18.10.07, 2007, pp.38-39.
- Publisher:
- Reed Business Information
This article looks at good practice in providing palliative care for people with dementia.
Palliative and end of life support in place-based care in Wales
- Author:
- MOULTRIE Keith
- Publisher:
- Oxford Brookes University. Institute of Public Care
- Publication year:
- 2022
- Pagination:
- 23
- Place of publication:
- Oxford
The purpose of the study was to consider the emerging characteristics of placed-based primary, community and social care in Wales, and the implications of this approach for end of life services across the country. It is hoped that the report captures some of these implications and that it offers a useful contribution to thinking in Wales and beyond about this important subject. The study involved interviews and focus group meetings with over 70 people from all parts of Wales, including people with lived experience of palliative and end of life care, professionals working in the field and sector leaders. The report suggests the following: the principles of place-based care underpin a key strand of thinking about the future of community-based health, care and wellbeing in Wales; Welsh Government remains committed to these place-based care principles as part of its Covid recovery programme, and our interviewees were supportive; demand for high quality palliative and end of life care is likely to continue growing for the foreseeable future and Welsh Government is committed to continued improvement in this area; better place-based community provision is key to supporting people in their own home, and reducing the need for inappropriate hospital care - primary care clusters may be the starting point for designing local place-based provision; there are developments at national, regional, local and provider levels which might help palliative and end of life care services move forward as part of a place-based approach to care in Wales; at a national level this might include common locality service models, encouraging pooled resources, and seamless practice and systems; at a regional level this might include rethinking commissioning and partnership arrangements, investing more in community-based care, developing staff and exploring how palliative and end of life services might become more embedded in the wider community offer; at a local level this might include agencies working together to develop and pilot more mature partnership arrangements and ensuring that the ethos and skills of palliative and end of life care inform wider practice; for palliative and end of life specialist providers this might mean building more effective partnerships with other agencies, and working with commissioners on creative ways of funding services and working together for the benefit of all people in a local area. (Edited publisher abstract)
The benefits and challenges of embedding specialist palliative care teams within homeless hostels to enhance support and learning: perspectives from palliative care teams and hostel staff
- Authors:
- ARMSTRONG Megan, et al
- Journal article citation:
- Palliative Medicine, 35(6), 2021, pp.1202-1214.
- Publisher:
- Hodder Arnold
Background: People residing in UK homeless hostels experience extremely high rates of multi-morbidity, frailty and age-related conditions at a young age. However, they seldom receive palliative care with the burden of support falling to hostel staff. Aim: To evaluate a model embedding palliative specialists, trained as ‘homelessness champions’, into hostels for two half-days a month to provide support to staff and residents and facilitate a multidisciplinary approach to care. Design: An exploratory qualitative design. Setting/participants: Four homeless hostels in London, UK, including nine hostel managers/support staff and seven palliative care specialists (five nurses and two social workers). Results: Benefits to introducing the model included: developing partnership working between hostel staff and palliative care specialists, developing a holistic palliative ethos within the hostels and improving how hostel staff seek support and connect with local external services. Challenges to implementation included limited time and resources, and barriers related to primary care. Conclusion: This is the first evaluation of embedding palliative care specialists within homeless hostels. Inequity in health and social care access was highlighted with evidence of benefit of this additional support for both hostel staff and residents. Considering COVID-19, future research should explore remote ways of working including providing in-reach support to homelessness services from a range of services and organisations. (Edited publisher abstract)
Patient and public involvement cultures and the perceived impact in the vulnerable context of palliative care: a qualitative study
- Authors:
- MELCHIOR Inge, et al
- Journal article citation:
- Health Expectations, 24(2), 2021, pp.456-467. Online only
- Publisher:
- Wiley
Background: Cultural values are crucial to the practice and impact of patient and public involvement (PPI) in research. Objective: To understand different PPI cultures among research teams and the impacts of PPI associated with each culture type. Design: A participatory action research design. Setting and participants: The setting was 10 palliative care research projects. Seventeen patients and members of the public and 31 researchers participated. Intervention: A programme consisting of four components: (1) training and coaching of patients and the public to prepare them for participation in research, (2) tailored coaching of the 10 research teams over 12‐18 months, (3) a community of practice, and (4) a qualitative evaluation. Results: We identified three cultures types: relationship cultures, task cultures, and control cultures. We identified four areas of impact: the project aim became more relevant to the target audience, methodological reliability increased, the research products were better able to reach the public, and the awareness increased, associated with behavioural changes, among researchers regarding PPI. Discussion: A relationship culture appears to be long‐lasting due to impacting the behaviours of the researchers during future projects. Different cultural types require different types of patients and researcher participants, assigned to different tasks. Conclusions: Further research remains necessary to investigate the support required by researchers to enable relationship‐ and task‐oriented PPI cultures. Patient or public contribution: Patient advocates and representatives contributed to our research team throughout the entire research process, as well as within the 10 implementation projects. (Edited publisher abstract)
The heart of living and dying: upstreaming advance care planning into community conversations in the public domain in northern Ireland
- Authors:
- MC KENNA Deirdre, O'SHEA Johanna, TANNER Liz
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 16(4), 2020, pp.346-363.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
This paper provides an evaluation of the Heart of Living and Dying (HLD) Initiative. This initiative is a group process that attempts to bring Advance Care Planning (ACP) into the public domain. It encourages participants to consider what matters to them in their living along with their hopes, preferences, and wishes for their final years and end-of-life care. An inductive, interpretive, and naturalistic approach allowed the researcher to study these phenomena in their natural setting i.e., the community. This qualitative study used 5 focus groups with 17 people and employed thematic data analysis to identify key themes. All participants in the HLD speak from a personal perspective irrespective of any professional background. It transpired that 16 respondents worked in health and social care, which subsequently became noteworthy in the findings. Three key themes were identified: (a) feeling emotionally safe enough to have such sensitive conversations is vital; (b) participating in the HLD process increases the confidence of those participants who worked in health and social care, to undertake ACP conversations and (c) planning ahead is a complex, staged process rather than a single record-making event. The Covid-19 pandemic crisis reinforced the need to upstream ACP initiatives such as the HLD, as the norm for everyone, since all of us will one day die. It is recommended that the HLD be incorporated within ACP training given that the experiential nature of it and the use of groups was reported to build confidence in facilitating ACP conversations. A virtual HLD process needs to be developed to adapt to restrictions on gatherings due to Covid 19. (Edited publisher abstract)
Give me a break: how the UK Government can improve parental health and reduce health inequalities by allocating short break funding for seriously ill children in England at the Comprehensive Spending Review
- Authors:
- TOGETHER FOR SHORT LIVES, JULIA’S HOUSE CHILDREN’S HOSPICE
- Publisher:
- Together for Short Lives
- Publication year:
- 2020
- Pagination:
- 27
- Place of publication:
- London
This report evidences the positive impact that short breaks for respite have on families of children with life-limiting conditions. It estimates that 11 percent of parents of children who need respite delivered by children’s palliative care providers would experience significantly less stress and improved mental and physical health if they could access them. Key headlines include: reduced stress leads to better physical health among parents. Demand for GP services declines by 8 per cent as a result of an individual moving out of the most stressed category; reduced stress also leads to better mental health among carer parents – demand for mental health services falls by 49 per cent as an individual moves out of the most stressed category; short breaks are likely to have a positive impact on siblings and reduce the risk of parental relationships breaking up. Recommendations include a call for the government to deliver on the benefits of short breaks by filling the £434 million gap in funding for social care services for all disabled children in England and their families by creating an annual ring-fenced grant. (Edited publisher abstract)
Using evidence for transformation change for homecare workers and service users in palliative and end of life care
- Authors:
- IRISS, NHS EDUCATION FOR SCOTLAND
- Publisher:
- IRISS
- Publication year:
- 2017
- Pagination:
- 4
- Place of publication:
- Glasgow
Brings together evidence from research, practice, and improvement from three linked reports from the NHS Education for Scotland Networked Evidence Search and Summary Service on what works in supporting care at home staff providing palliative and end of life care. It reports that the role of care at home staff is emotionally and practically demanding, yet there is often little or no training or support. The report highlights what staff need to support them and the actions that need to be put in place. These include suggestions to improve staff access to information; learning and development needs; and service improvement in the areas of multi-agency communication and bereavement support. (Edited publisher abstract)