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A parent's guide: making critical care choices for your child
- Author:
- ASSOCIATION FOR CHILDREN'S PALLIATIVE CARE
- Publisher:
- Association for Children's Palliative Care
- Publication year:
- 2011
- Pagination:
- 18p.
- Place of publication:
- Bristol
This leaflet is aimed at parents, carers or legal guardians who care for a child with a life-limiting or life-threatening health condition. It aims to provide information to help them to make informed and realistic choices about treatment and critical care choices for their child. The leaflet has been written in a question and answer style format, including questions like ‘How are critical care decisions made?’ and ‘How do I talk to my child?’. There are sections designed help parents think about the realistic choices for their child and a series of prompts are included to help them talk to your doctor or healthcare team. The leaflet also includes a directory of useful support agencies and glossary of medical terminology to provide a guide through the jargon associated with critical care.
The transition care pathway: a framework for the development of integrated multi-agency care pathways for young people with life-threatening and life-limiting conditions
- Author:
- ASSOCIATION FOR CHILDREN'S PALLIATIVE CARE
- Publisher:
- Association for Children's Palliative Care
- Publication year:
- 2007
- Pagination:
- 47p.
- Place of publication:
- Bristol
An estimated 6,000 to 10,000 young people live with a terminal illness or life-threatening condition, and many know that they will face a premature death during their teenage years. Their journey through adolescence into adulthood is compounded by facing a complex and often bewildering transition from children’s palliative care to adult services. To support this difficult and complex process known as “transition”, ACT, the national charity for children’s palliative care, has developed a groundbreaking resource to guide and support young people, families and professionals through the transition maze and help services to better support young people to adjust to, prepare for, and move-on to adult services The new resource, also emphasises the importance of empowering young people to take control of their lives as they enter their teenage years, and calls for an early collaboration of paediatric and adult services to improve the transition process.