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Utilising carer related research and knowledge: a scoping review and information resource. Research findings
- Authors:
- LARKIN Mary, MILNE Alisoun, HENWOOD Melanie
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2019
- Pagination:
- 5
- Place of publication:
- London
A summary of key findings from a scoping review on carers and caring. The review carried out searches between June and December 2016, retrieving a total of 3,434 references. The resources were classified into four categories: the impact of care; carer variables - the characteristics and features of different types of carer and caring situations; Type of care - the nature of needs of the cared for person, and the features of the care situation; and Support and carers. Key findings include that: caring is extremely diverse and involves all sections and age groups of the population; although there are similarities in the experiences of carers, all caring is unique; and that knowledge about groups of 'hard to-reach' carers remains relatively poor and there are deficits in relation to BAME carers and LGBT groups. The report also outlines the implications of these findings for policy, practice and research. (Edited publisher abstract)
Seeing the wood for the trees: carer-related research and knowledge
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2019
- Pagination:
- 44
- Place of publication:
- London
A summary report of a scoping review on carers and caring, which was funded by NIHR SSCR-funded undertaken between April 2016 and January 2017. The review brought together evidence and knowledge on carers and provided a detailed mapping of what is known about carers and caring. The report contextualises the review in relation to research and policy since the mid-1980. It has also been informed by reflections from a workshop held to discuss the findings. The report examines the findings across four key themes: Carer variables - characteristics of different types of carers and caring situations, such as age and ethnicity; Type of care - the needs of the cared for person and features of the situation; Impact of care - such as stress, resilience, and employment; and Support for carers. The key messages for practice, policy and research from the review include: the importance of building carers' resilience and enabling them to develop strategies to manage stress; the adoption of an integrated approach to research which incorporates the complexity of knowledge about care and care giving; addressing the deficits in existing knowledge and expanding the evidence base; and greater generation and use of longitudinal data in order to examine the impact and experience of caring over time. An extended report including a full bibliography of resources is also available. (Edited publisher abstract)
Seeing the wood for the trees. Carer-related research and knowledge: a scoping review
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- Melanie Henwood Associates
- Publication year:
- 2017
- Pagination:
- iv, 303
This NIHR-SSCR funded scoping review provides a comprehensive mapping of what is known about carers and caring, and aims to help inform policy, practice and research in relation to carers. The review was undertaken by searching 10 electronic bibliographic databases, supplemented by additional web searches to identify academic research, grey literature and wider knowledge. The analysis adopts a selective thematic approach covering: carer variables - the characteristics of different types of carer and different caring situations; types of care - the nature of needs of the cared for person and the features of the care situation; the impact of caring – resilience and coping, employment and health; and carer support and needs assessment. The final section highlights key messages identified from the review. It found that caring involves all sections and age groups of the population, with people are likely to experience one or more periods of caregiving over their lifetime. The uniqueness of each caring relationship is also highlighted. In relation to types of carers, knowledge about ‘hard to reach’ groups, such as BAME and LGBT carers, remains sparse. Older carers are also relatively invisible in policy and research terms. It found that much of the knowledge about carers identified in the review relates to their characteristics, their lived experience and the nature of their caregiving, with relatively less being known about the effectiveness of interventions to support them. The report concludes by offering suggestions for policy and practice. An appendix provides a bibliography of the 3,434 items identified in review, classified into 17 types of reference. (Edited publisher abstract)