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There is always a difference: they're higher up
- Author:
- PROCTOR Gillian
- Journal article citation:
- Journal of Dementia Care, 6(6), November 1998, pp.16-17.
- Publisher:
- Hawker
The inevitable power differences between people with dementia and staff working with them are bound to affect our attempts to listen and truly hear their views about services. Discusses the issues.
Listening to older women with dementia: relationships, voices and power
- Author:
- PROCTOR Gillian
- Journal article citation:
- Disability and Society, 16(3), May 2001, pp.361-376.
- Publisher:
- Taylor and Francis
Four older women with dementia were interviewed about their experiences of their services. Gaps in previous research concerning people with dementia is presented, with respect to listening to people with dementia themselves and with respect to gender issues. The present study is described and the methodology for analysis, the Voice Relational Method, is presented. This method was developed to listen to adolescent girls and has been used to listen to the voices of others who are disempowered in society. The methodology is presented in the context of debates within feminist and disability research. The results of the interviews are discussed, particularly with respect to power in the women's relationships, and particularly the relationships between the women and medical staff. Some implications of the power issues are presented and recommendations are made.