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Recruitment and retention strategies among older African American women enrolled in an exercise study at a PACE program
- Authors:
- SULLIVAN-MARX Eileen M., et al
- Journal article citation:
- Gerontologist, 51(S1), June 2011, pp.S73-S81.
- Publisher:
- Oxford University Press
PACE (Program for All-Inclusive Care of Elders) is a US model of care for older people. The aim of this study was to examine the use of specific recruitment and retention strategies in a study evaluating outcomes of an exercise programme for older African American women with functional impairments who were members of a PACE, through which they were eligible for nursing home level of care while living at home in the community with family or other support. The strategies focused on partnership between researchers and participants, partnership between researchers and clinicians, overcoming administrative issues, and reducing burden on clinicians and participants. The exercise protocol consisted of strength and endurance activity 2 to 3 times a week for 16 weeks. The article reports on recruitment and retention methods used and the results of the study, including characteristics of completers and non-completers of the exercise programme and satisfaction outcomes. The project enrolled 52 women and 37 (71.2%) of them completed the exercise programme. The authors discuss the challenges of engaging frail older adult adults in exercise as a life habit and the need for a systematic team approach that includes rigorous processes and evaluation.
Co‐creation of services to maintain independence and optimise well‐being: Learnings from Australia’s Older Women Living Alone (OWLA) project
- Authors:
- OGRIN Rajna, et al
- Journal article citation:
- Health and Social Care in the Community, early cite 30 October 2019,
- Publisher:
- Wiley
For many populations at risk of social isolation, including Older Women Living Alone (OWLA), existing services to maintain independence and optimise well‐being are difficult to access, unsuitable or unavailable. Co‐creation is a strategy to develop ‘person‐centred’ services that meet the needs of individuals. This study adapted an existing framework for co‐creation and used participatory action research methods, supported by an evidence base comprising a systematic review, analysis of routinely collected data and interviews, to develop person‐centred services for OWLA. This approach achieved co‐creation through an iterative process of consultation and review, involving a series of facilitated discussions with women living alone and stakeholders. A total of 13 women living alone, aged ≥55 years, and 11 stakeholders representing service providers and advocacy groups, were recruited to participate in these discussions. Sessions with between three and five OWLA, were held across Melbourne. The information was compiled and presented to service stakeholders in a single facilitated forum, held in central Melbourne. Smaller facilitated sessions with OWLA followed, to review and discuss the collated service stakeholder input. The information from these OWLA sessions were again compiled and directed back to the service stakeholders for consideration and further discussion. The two groups came together for a final forum to prioritise the co‐created ten services that they believed would be feasible and would address unmet need to support OWLA maintain independence. The process of co‐creation was time‐consuming and required considerable preparation to facilitate input from the target population. Small groups, gathering at convenient local locations, with transport support were essential in removing barriers to participation. However, co‐creation was a viable method of eliciting the women's preferences and developing services more likely to meet their needs. (Edited publisher abstract)
Development of a multimodal assessment framework for helping older African American women transition out of homelessness
- Authors:
- WASHINGTON Olivia G.M., MOXLEY David P.
- Journal article citation:
- Smith College Studies in Social Work, 79(2), 2009, pp.103-124.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The evolution of an assessment strategy and process found to be useful in planning older African American women’s transition from homelessness is described. The assessment framework was developed and tested through action research by the Detroit-based Leaving Homelessness Intervention Research project (LHIRP) in partnership with older homeless and formerly homeless African American women. Over a 10 year period LHIRP undertook multiple subprojects which either documented homeless experiences or consequences among approximately 550 older African American women who participated in some aspects of the project or created new interventions based on the illumination of the lived experiences of homelessness among participants. The assessment framework described is a product of the LHIRP substudy titled Advocacy for Leaving Homelessness. The content was derived from community needs assessment, group work, narrative interviewing, collaborative social action and the analysis of participants’ stories captured through alternative methods such as photography and quilting. In this article the authors delineate the properties of the assessment framework, consider the distinctive features of the framework, and highlight the manner in which specific assessment tools are integrated into the process of advocacy.
Working with older women in research: some methods-based issues
- Authors:
- WARREN Lorna, et al
- Journal article citation:
- Quality in Ageing, 4(4), December 2003, pp.18-23.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
This article critical reflects on the experiences of working with older women from a range of communities in research. The focus is on the practicalities of setting up and carrying out the research, though implications for the process of policy-making are also briefly highlighted. The 'Older women's lives and voices' project, funded by the ESRC Growing Older (GO) Programme, aimed to find out more about the experiences of women aged 50 and over from a range of ethnic groups, focusing on the services that they use and would like to use.
Discussing the menopause with women with learning disabilities
- Authors:
- McCARTHY Michelle, MILLARD Lorraine
- Journal article citation:
- British Journal of Learning Disabilities, 31(1), 2003, pp.9-17.
- Publisher:
- Wiley
Traditionally, little attention has been paid to the menopause as it affects women with learning disabilities. Consequently, older women with learning disabilities have rarely been adequately prepared for, or supported through, what for most women is a significant 'change of life'. None of the existing literature focuses on the women's perspectives, but rather, looks at menopause from a medical angle, in particular focusing on the timing of onset. The research study described in the present paper is an attempt to gain some insights into the ways in which women with learning disabilities perceive the menopause. The main informants were women with learning disabilities themselves, but also general practitioners, staff in learning disability services and parents who still cared for their middle-aged daughters at home. The research project also involved the non-disabled researchers working alongside two groups of women with learning disabilities, who acted as advisors and consultants to the project.
Involving older women in the research process
- Author:
- CHAMBERS Pat
- Journal article citation:
- Generations Review, 8(4), December 1998, pp.6-8.
- Publisher:
- British Society of Gerontology
Explores the impact on a group of older women participating in the research process. The women were taking part in biographical interviews aiming to examine the experience of later life widowhood. The author goes on to compare her findings and initial observations with the current literature.
There is always a difference: they're higher up
- Author:
- PROCTOR Gillian
- Journal article citation:
- Journal of Dementia Care, 6(6), November 1998, pp.16-17.
- Publisher:
- Hawker
The inevitable power differences between people with dementia and staff working with them are bound to affect our attempts to listen and truly hear their views about services. Discusses the issues.
Aspects of ageing
- Editors:
- KAIM-CAUDLE Peter, KEITHLEY Jane, MULLENDER Audrey
- Publisher:
- Whiting and Birch
- Publication year:
- 1993
- Pagination:
- 184p.,bibliogs.
- Place of publication:
- London
Contains 14 papers written to celebrate the European Year of Older People and Solidarity Between Generations. Issues of ageing are considered from the perspectives of demography, economics, social policy, sociology, community care, Buddhist philosophy, literature and gender studies.
Co‐creation of services to maintain independence and optimise well‐being: learnings from Australia’s Older Women Living Alone (OWLA) project
- Authors:
- OGRIN Rajna, et al
- Journal article citation:
- Health and Social Care in the Community, 28(2), 2020, pp.494-504.
- Publisher:
- Wiley
For many populations at risk of social isolation, including Older Women Living Alone (OWLA), existing services to maintain independence and optimise well‐being are difficult to access, unsuitable or unavailable. Co‐creation is a strategy to develop ‘person‐centred’ services that meet the needs of individuals. This study adapted an existing framework for co‐creation and used participatory action research methods, supported by an evidence base comprising a systematic review, analysis of routinely collected data and interviews, to develop person‐centred services for OWLA. This approach achieved co‐creation through an iterative process of consultation and review, involving a series of facilitated discussions with women living alone and stakeholders. A total of 13 women living alone, aged ≥55 years, and 11 stakeholders representing service providers and advocacy groups, were recruited to participate in these discussions. Sessions with between three and five OWLA, were held across Melbourne. The information was compiled and presented to service stakeholders in a single facilitated forum, held in central Melbourne. Smaller facilitated sessions with OWLA followed, to review and discuss the collated service stakeholder input. The information from these OWLA sessions were again compiled and directed back to the service stakeholders for consideration and further discussion. The two groups came together for a final forum to prioritise the co‐created ten services that they believed would be feasible and would address unmet need to support OWLA maintain independence. The process of co‐creation was time‐consuming and required considerable preparation to facilitate input from the target population. Small groups, gathering at convenient local locations, with transport support were essential in removing barriers to participation. However, co‐creation was a viable method of eliciting the women's preferences and developing services more likely to meet their needs. (Edited publisher abstract)
New beginnings: towards patient and public involvement in primary health care
- Editors:
- GILLAM Stephen, BROOKS Fiona
- Publisher:
- Kings Fund
- Publication year:
- 2001
- Pagination:
- 168p.,bibliogs.
- Place of publication:
- London
Explores the issues related to public and patient involvement in primary care. Begins by describing the theoretical and policy contexts that are shaping user involvement currently; why user involvement is regarded as important; and its role in primary care at organisation level and in the individual consultation. Moves on to consider a range of case studies of involvement of different types of user, including women, members of ethnic minorities, older people and people with mental health problems. Concludes with an overview of the challenges remaining and suggestions for future development.