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Listen to the talk of us: people with dementia speak out
- Author:
- KOTAI-EWERS Trisha
- Publisher:
- Alzheimers Australia WA
- Publication year:
- 2007
- Pagination:
- 200p., bibliog.
- Place of publication:
- Shenton Park, WA
Alzheimer's Australia WA, together with local Perth author Trisha Kotai-Ewers, is pleased to present Listen to the Talk of Us: People with Dementia Speak Out. This new book is a collection of in-depth conversations between Trisha and people with dementia whom she had met over the years. The aim of the book is to demonstrate the importance and the value in listening to, not just hearing, the voices of people with dementia.
Retaining independence and autonomy in a rural area: older people's preferences for specialised housing
- Authors:
- BURHOLT Vanessa, WINDLE Gill
- Journal article citation:
- Research Policy and Planning, 25(1), 2007, pp.13-26.
- Publisher:
- Social Services Research Group
This paper aims to identify older people's preferences from a range of supported living environments. It compares the importance of privacy and physical space, physical care, domestic services, security, social activities, and control or autonomy in future accommodation. Random sampling procedures were used to draw a proportional sample of 423 people aged 70 years and over from each rural community in Gwynedd, North Wales a part of the HAPPI (Housing for an Ageing Population: Planning Implications) project. A questionnaire was administered through face-to-face interviews. The findings show that more participants rated privacy and physical space and control of life as important, compared with the other domains. Participants were most likely to indicate that sheltered housing would meet their needs in each of the domains. The paper concludes with the implications for planning of supported living environments.
'The hard thing is the changes': the importance of continuity for older men caring for their wives
- Authors:
- SANDBERG Jonas, ERIKSSON Henrik
- Journal article citation:
- Quality in Ageing, 8(2), June 2007, pp.5-15.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
This study aimed to provide an understanding of the experience of older men as caregivers for an ill spouse. Interviews were conducted with three older men between 65 and 78 years, who had been caring for their wives for between one and 12 years. Two main categories emerged: taking on a new and unfamiliar role, and learning to live with the new role. The results also show how the men seek to maintain continuity in their relationships with the wives they are caring for. The findings can be understood in the light of a major life transition of how older men providing care for a spouse create new roles and how they cope with the changes in the marital relationship. A sense of continuity in the process of caring is important for men to help them find the strength to continue as caregivers.
Investigating the ways that older people cope with dementia: a qualitative study
- Authors:
- PRESTON Laura, MARSHALL Ann, BUCKS Romola S.
- Journal article citation:
- Aging and Mental Health, 11(2), March 2007, pp.131-143.
- Publisher:
- Taylor and Francis
Understanding the way that older people cope with dementia has important implications for the enhancement of the psychological well-being and quality of life of this group of people. This qualitative study explored how older people cope with dementia, by engaging 12 people with early-stage dementia in semi-structured interviews. Interpretative phenomenological analysis (IPA) was used to identify the shared themes in participants' accounts. Three major themes emerged: 'managing identity in relation to dementia', 'making sense of dementia', and 'coping strategies and mechanisms' (the latter theme divided into 'everyday, individual strategies', 'coping in relation to others', and 'personal attitude/approach'). There were also two additional themes in relation to process issues: issues of 'conflict and control' which were evident across all other themes, as was individuality and the importance of 'context' in coping with dementia. These findings are discussed in the relation to previous research in this field, and suggestions for further research and clinical practice are outlined.
Using survey data to measure changes in the quality of home care: analysis of the older people's user experience survey 2006
- Authors:
- MALLEY Juliette, NETTEN Ann, JONES Karen
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2007
- Pagination:
- 110p., bibliog.
- Place of publication:
- Canterbury
The development of the User experience Survey (UES) and the inclusion of the user’s perspective in the Performance Assessment Framework (PAF) were novel and important steps forward in the world of performance assessment and monitoring of social services. Commentators had previously criticised the lack of connectedness between the performance/quality and user involvement agendas and these developments represented real steps forward in meeting this goal. Analysis from the 2003 extension to the UES for older people has demonstrated that user experience measures can usefully discriminate between Local Authorities (LAs). While his new research raises some important questions, this type of approach is clearly an improvement on performance measurement based on processes and inputs. Fifty authorities took part with representation from all Government Office Regions and LA types. Analysis of responses to the compulsory questions and comparison with responses to these questions nationally revealed very similar proportions responding to each category. We can assume from these findings that the sample of authorities is broadly representative of the views of service users across England.
An investigation into the leisure occupations of older adults
- Authors:
- BALL Veronica, et al
- Journal article citation:
- British Journal of Occupational Therapy, 70(9), September 2007, pp.393-400.
- Publisher:
- Sage
This study aimed to explore the current leisure occupations of adults over 60 years who considered themselves to be healthy and to identify the motivations that underpinned participation in those occupations. Structured interviews were conducted with 70 adults with a mean age of 72 years. The majority of the participants (51, 73%) reported engaging in leisure occupations. The range of leisure occupations was wide and included walking, sailing, listening to music, emailing and volunteering. Of these, 23% were active leisure, 18% passive leisure, 24% social leisure, 20% hobbies and 15% other leisure occupations. Content analysis was adopted to explain the motivators for taking part in these leisure occupations. It was found that enjoyment, pleasure and relaxation were the key motivators. This study shows that the majority of well older people are participating in leisure occupations and feeling positive about doing so. Further research is required to establish the role that occupational therapists can have in encouraging older adults to continue with or develop new leisure occupations to enhance health and quality of life.
From retirement village to residential aged care: what older people and their families say
- Authors:
- CHEEK Julianne, et al
- Journal article citation:
- Health and Social Care in the Community, 15(1), January 2007, pp.8-17.
- Publisher:
- Wiley
This qualitative Australian study examined the transition into residential care from one form of community housing, the retirement village. In-depth interviews with 33 older people and 48 family members were conducted to illuminate the key issues and factors which influence the move of older people from retirement villages to residential aged care. Analysis of the data revealed the move to be influenced by: health-related crises; the creation of doubt as to ability to cope in the retirement village; the need for more or different care or support services; the desire for independence; assumptions about being able to move into the residential aged care facility co-located with the retirement village; availability of a place; navigating the system; and desirable aspects of a residential aged care facility. The findings of the study provide a description of the transition process from the perspectives of those directly affected, and contribute to the development of best practice in the provision of support to residents living in retirement villages and the community in general.
Positive outcomes
- Author:
- MADDISON Jane
- Journal article citation:
- Community Care, 11.01.07, 2007, pp.32-33.
- Publisher:
- Reed Business Information
This article summarises research on the outcomes valued by older people and lessons learned from authorities developing outcomes-focused services for older people in England and Wales. The research was commissioned by the Social Care Institute for Excellence (SCIE) and carried out by the Social Policy Research Unit and Acton Shapiro.
Are consumer-directed home care beneficiaries satisfied? Evidence from Washington State
- Authors:
- WIENER Joshua M., ANDERSON Wayne L., KHATUTSKY Galina
- Journal article citation:
- Gerontologist, 47(6), December 2007, pp.763-774.
- Publisher:
- Oxford University Press
This study analyzed the effect of consumer-directed versus agency-directed home care on satisfaction with paid personal assistance services among Medicaid beneficiaries in Washington State. The study analyzed a survey of 513 Medicaid beneficiaries receiving home- and community-based services. As part of a larger study, the authors developed an 8-item Satisfaction With Paid Personal Assistance Scale as the measure of satisfaction. In predicting satisfaction with personal assistance services, we estimated an ordinary least squares regression model that was right-censored to account for the large percentage of respondents who were highly satisfied with their care. Among the older population, but not younger people with disabilities, beneficiaries receiving consumer-directed services were more satisfied than individuals receiving agency-directed care. There was no evidence that quality of care was less with consumer-directed services. In addition, overall satisfaction levels with paid home care were very high. This study supports the premise that consumer satisfaction, an important measure of quality, in consumer-directed home care is not inferior to that in agency-directed care. The positive effect of consumer direction for older people underlines the fact that this service option is relevant for this population. In addition, this research provides evidence that home- and community-based services are of high quality, at least on one dimension.
An exploration of loneliness: Communication and the social networks of older people with cerebral palsy
- Authors:
- BALLIN Liora, BALANDIN Susan
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 32(4), December 2007, pp.315-327.
- Publisher:
- Taylor and Francis
There is a large body of research focusing on the experiences of loneliness of older adults, yet little is known about the loneliness experiences of older adults with lifelong disability. In this paper, the authors present some findings from a larger qualitative study on the loneliness experiences of older people with cerebral palsy. Seven older adults with cerebral palsy participated in in-depth interviews. Analysis of the interviews identified overarching themes and recurrent topics in the data. These topics were coded and then grouped under the overarching themes. Six themes were identified. All participants agreed that the themes of communication and social networks are most important when considering loneliness. In this paper, the participants' discussion of these two themes and their related topics are presented. The results demonstrate the need to provide support and training in communication to older people with cerebral palsy who experience communication difficulty, as well as to their communication partners. They also indicate the need for policy development to assist older adults with cerebral palsy to develop and maintain their social networks and form relationships that are rewarding and enriching.