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One of our own kind: carer liaison at work
- Authors:
- SCHOFIELD Joanne, MELLOR Jack Buckley
- Journal article citation:
- Journal of Dementia Care, 14(5), September 2006, pp.12-13.
- Publisher:
- Hawker
The authors explain the value of having a carer available to offer support to other carers with relatives on a continuing care ward. The article focuses on the practice at a NHS psychiatric continuing care ward in Warrington in the north west of England. It includes the views and experiences one carer who has the role of patient and carer liaison officer in the ward.
Realising participation: elderly people as active users of health and social care
- Authors:
- ROBERTS Kathryn, CHAPMAN Tom
- Publisher:
- Ashgate
- Publication year:
- 2001
- Pagination:
- 263p.,bibliog.
- Place of publication:
- Aldershot
This research study investigated the utilisation of health and social care services by a sample of people aged seventy and above on discharge from inpatient care and in the short period afterwards. The study explored how active users were during this process with reference to the principles of participation, representation, access, choice, information and redress. Two essential elements of the study were the extent to which real opportunities were being provided for users to play an active role and their ability and willingness to assume such a role. Both qualitative and quantitative methodologies were used. The study revealed substantial evidence of a user oriented approach to the delivery of services, though a number of areas remain in which it does not appear to be practicable to give priority to the wishes of service users or for them to play an active role in their care.
Dignity on the ward; the future of hospital care for older people; a conference at London's Royal College of Physicians on Monday 29 November 1999
- Author:
- HELP THE AGED,
- Publisher:
- Help the Aged
- Publication year:
- 1999
- Pagination:
- 7p.
Doing involvement: a qualitative study exploring the ‘work’ of involvement enacted by older people and their carers during transition from hospital to home
- Authors:
- HARDICRE Natasha, et al
- Journal article citation:
- Health Expectations, 24(6), 2021, pp.1936-1947. Online only
- Publisher:
- Wiley
Context: Being involved in one's care is prioritised within UK healthcare policy to improve care quality and safety. However, research suggests that many older people struggle with this. Design: this paper presents focused ethnographic research exploring older peoples' involvement in healthcare from hospital to home. Results: We propose that being involved in care is a dynamic form of labour, which we call ‘involvement work’ (IW). In hospital, many patients ‘entrust’ IW to others; indeed, when desired, maintaining control, or being actively involved, was challenging. Patient and professionals' expectations, alongside hospital processes, promoted delegation; staff frequently did IW on patients' behalf. Many people wanted to resume IW postdischarge, but struggled because they were out of practice. Discussion: Preference and capacity for involvement was dynamic, fluctuating over time, according to context and resource accessibility. The challenges of resuming IW were frequently underestimated by patients and care providers, increasing dependence on others post-discharge and negatively affecting peoples' sense and experience of (in)dependence. Conclusions: A balance needs to be struck between respecting peoples' desire/capacity for non-involvement in hospital while recognising that ‘delegating’ IW can be detrimental. Increasing involvement will require patient and staff roles to be reframed, though this must be done acknowledging the limits of patient desire, capability,and resources. Hospital work should be (re)organised to maximise involvement where possible and desired. Patient/Public Contribution: Our Patient and Public Involvement and Engagement Panel contributed to research design, especially developing interview guides and patient-facing documentation. Patients were key participants within the study; it is their experiences represented. (Edited publisher abstract)
Improving service by listening to patients
- Author:
- MATTHEWSON Rosemary
- Journal article citation:
- Nursing Times, 13.8.02, 2002, pp.36-38.
- Publisher:
- Nursing Times
Reports how one elderly care unit used patients' views to shape changes in the care offered, after a patient questionnaire showed that there was room for improvement.
Dignity on the ward: improving the experience of acute hospital care for older people with dementia or confusion; a pocket guide for hospital staff
- Author:
- HELP THE AGED
- Publisher:
- Help the Aged
- Publication year:
- 2000
- Pagination:
- 13p.
- Place of publication:
- London
Pocket guide developed by the Gerontological Nursing Programme of the Royal College of Nursing as part of a project commissioned by the Help the Aged Dignity on the Ward Campaign.
Dignity on the ward: promoting excellence in care; good practice in acute hospital care for older people
- Author:
- HELP THE AGED,
- Publisher:
- Help the Aged
- Publication year:
- 1999
- Pagination:
- 65p.,bibliog.
- Place of publication:
- London
Draws on the experiences of service users and staff at twenty four acute hospitals in England to identify care practices which help to ensure good care from an older person's perspective within an acute hospital environment.
Towards independence and choice: a review of policy guidance and standards of care for elderly people; a documentation review done by the Daphne Heald Research Unit, Royal College of Nursing, for the Clinical Standards Advisory Group, Department of Health
- Author:
- ROYAL COLLEGE OF NURSING
- Publisher:
- Royal College of Nursing
- Publication year:
- 1996
- Pagination:
- 6p.
- Place of publication:
- London
Brief review of services for people aged 70 and over, using hip fractures as a marker condition for the identification of standards relevant to the care and rehabilitation of all older people discharged from hospital.
Empowerment and older people: a practical approach
- Authors:
- BOUNDS Joy, HEPBURN Helen
- Publisher:
- Pepar
- Publication year:
- 1996
- Pagination:
- 96p.,bibliog.
- Place of publication:
- Birmingham
Presents a number of practical ideas and suggestions for both managers and frontline staff across a range of support services to ensure older people maintain as much control over their lives as possible. Includes chapters on empowering people in hospital; sharing the load with carers; choice in day services; and enabling people to be themselves in residential care.
An evaluation of a near real-time survey for improving patients' experiences of the relational aspects of care: a mixed-methods evaluation
- Authors:
- GRAHAM C., et al
- Journal article citation:
- Health and Social Care Delivery Research, 6(15), 2018, Online only
- Publisher:
- National Institute for Health Research
- Place of publication:
- London
Background: The Francis Report (of 2013) provided many recommendations to improve compassionate care in NHS organisations, including more widespread use of real-time feedback (RTF) to collect patient experience data. This research directly addressed these recommendations and aimed to provide an evidence-based toolkit to support NHS quality improvements. Objectives: To develop and validate a survey of compassionate care for use in near real time on elderly care wards and accident and emergency (A&E) departments. This research also evaluated the effectiveness of the RTF approach for improving relational aspects of care and provides suggestions for how the approach can be used by other hospitals to strengthen compassionate care. Design: The research utilised a mixed-methods design, using quantitative, qualitative and participatory research approaches to collect patients’ experiences of relational care and the views of NHS staff in an effort to evaluate the processes and impacts of near real-time feedback (NRTF) data collection. Data sources included a NRTF patient experience survey, weekly volunteer diaries, staff interviews and surveys, workshops and meetings with case study sites. Setting: The research was carried out across six case study sites across England, in wards that predominantly serve elderly patients and in A&E departments. Participants: The 3928 participants in the patient experience survey were inpatients on elderly care wards, or persons who had sought medical care in A&E. Frontline staff, service leads, senior management and volunteers also took part in surveys (n = 274) and interviews (n = 82) designed to understand the staff perspectives and opinions of collecting patient experience data. Interventions: A patient experience survey was implemented using a tablet computer-based methodology, facilitated by trained volunteers. Responses were used alongside feedback from staff to evaluate the use of a NRTF approach as a method for improving patient experiences of relational aspects of care. Main outcome measures: The patient experience survey measured relational aspects of care. Another outcome measure was improvements to care as planned, implemented and reported by staff. Results: A small but statistically significant improvement (p = 0.044) in relational aspects of care over the course of the study was noted overall. Staff implemented a variety of improvements to enhance communication with patients. Limitations: Maintaining volunteer and staff engagement throughout the study was difficult. Few surveys were completed per ward or department each week. This made examining trends in patient experiences over time challenging. Conclusions: Near real-time feedback offers an effective approach for monitoring and improving relational aspects of care. (Edited publisher abstract)