Search results for ‘Subject term:"older people"’ Sort:
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OPEN Older People’s Engagement Network: community engagement by older people
- Author:
- OPEN OLDER PEOPLE'S ENGAGEMENT NETWORK
- Publisher:
- Outside the Box Development Support
- Publication year:
- 2006
- Pagination:
- 11p.
- Place of publication:
- Glasgow
The Older People’s Engagement Network was started in partnership between SOPAG (Scottish Older People’s Advisory Group) and Outside the Box Development Support. Engagement, when older people are working in a long-term relationship with other organisations, especially statutory bodies, is discussed.
Community mental health nurses in dementia care: their role and future
- Authors:
- KEADY John, ADAMS Trevor
- Journal article citation:
- Journal of Dementia Care, 9(2), March 2001, pp.33-37.
- Publisher:
- Hawker
Reviews published accounts of the CMHN role in work with people with dementia and their carers, and suggests a way in which the role might develop in future.
Including the person with dementia in designing and delivering care: I need to be me
- Author:
- BARNETT Elizabeth
- Publisher:
- Jessica Kingsley
- Publication year:
- 2000
- Pagination:
- 224p.,bibliog.
- Place of publication:
- London
Suggests that traditional approaches to caring for people with dementia have been wanting and that the views of older people with dementia need to be applied to the design, management, evaluation and implementation of the services that support them. Addresses three fundamental questions: why should we access the perspective of older people with dementia; how should we attempt to achieve this; and what are the implications when we do so?
Factors affecting user participation for elderly people with dementia living at home: a critical interpretive synthesis of the literature
- Authors:
- HAUGEN Per Kristian, SLETTEBO Tor, YTREHUS Siri
- Journal article citation:
- European Journal of Social Work, 22(6), 2019, pp.974-986.
- Publisher:
- Taylor and Francis
Professional caregivers are expected to facilitate user participation for people with dementia. At the same time, an increasing number of elderly people with dementia are now being cared for at their homes. Research is scarce on user participation for people with dementia, especially for people with dementia who live at home. This article aims to systematically and critically review the factors affecting user participation for elderly people with dementia living at home from the viewpoint of the patients, family caregivers, professional caregivers and researchers. A systematic literature search and critical interpretive synthesis were conducted. The search yielded 1,957 articles. In total, 112 full-text articles were retrieved, of which 27 met the inclusion criteria. Five broad analytical themes were identified during the analysis: individual characteristics, professional caregiver characteristics, decision characteristics, relational characteristics and organisational characteristics. The results show that the value placed on user participation can differ between family caregivers and professional caregivers. People with dementia still experience stigmatisation, preventing user participation, and relations with both family and professional caregivers play a key role in enabling user participation for people with dementia. (Edited publisher abstract)
The process of co-creating the interface for VENSTER, an interactive artwork for nursing home residents with dementia
- Authors:
- JAMIN Gaston, et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 13(8), 2018, pp.809-818.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Introduction: Interactive art installations might engage nursing home residents with dementia. The main aim of this article was to describe the challenging design process of an interactive artwork for nursing home residents, in co-creation with all stakeholders and to share the used methods and lessons learned. This process is illustrated by the design of the interface of VENSTER as a case. Methods: Nursing home residents from the psychogeriatric ward, informal caregivers, client representatives, health care professionals and members of the management team were involved in the design process, which consisted of three phases: (1) identify requirements, (2) develop a prototype and (3) conduct usability tests. Several methods were used (e.g. guided co-creation sessions, “Wizard of Oz”). Each phase generated “lessons learned”, which were used as the departure point of the next phase. Results: Participants hardly paid attention to the installation and interface. There, however, seemed to be an untapped potential for creating an immersive experience by focussing more on the content itself as an interface (e.g. creating specific scenes with cues for interaction, scenes based on existing knowledge or prior experiences). “Fifteen lessons learned” which can potentially assist the design of an interactive artwork for nursing home residents suffering from dementia were derived from the design process. Conclusions: This description provides tools and best practices for stakeholders to make (better) informed choices during the creation of interactive artworks. It also illustrates how co-design can make the difference between designing a pleasurable experience and a meaningful one. (Publisher abstract)
Sensor e-textiles: person centered co-design for people with late stage dementia
- Authors:
- TREADAWAY Cathy, KENNING Gail
- Journal article citation:
- Working with Older People, 20(2), 2016, pp.76-85.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to present design research investigating the development of sensory textiles with embedded electronics to support the wellbeing of people with late stage dementia in residential care. Design/methodology/approach: The research presented is qualitative and uses a mixed method approach informed by grounded practical theory and positive design methodologies. It uses an inclusive and participatory co-design process involving people with dementia and their families with an interdisciplinary team of experts. Findings: Both the co-design process and the artefacts developed have been beneficial in supporting wellbeing. The textile artefacts have been found to soothe, distract and comfort people with dementia. They have also been shown to facilitate in the moment conversational bridges between family members and carers with persons with dementia. Research limitations/implications: The findings are based on a small cohort of participants, observational reports and descriptive accounts from family members and carers. Practical implications: The paper proposes ways in which simple hand-crafted textiles can be used beneficially to support the wellbeing of people with late stage dementia. It provides examples of how technology can be used to personalise and extend the sensory properties of the artefacts created. Social implications: It promotes an inclusive co-design methodology involving care professionals, carers and people with dementia with designers and technologists. Originality/value: The paper describes new ways of extending sensory properties of textiles through the integration of technology. (Publisher abstract)
Research programme 2013-14: helping smaller housing associations become dementia friendly: their experience and the impacts on their policy and practice
- Authors:
- RISEBOROUGH Moyra, JONES Adrian
- Publisher:
- Quality of Life Charitable Trust
- Publication year:
- 2014
- Pagination:
- 46
- Place of publication:
- Warwick
This report presents the main findings from a collaborative evaluation over a year with four small housing associations who decided in 2013 to work towards becoming dementia friendly organisations. The report illustrates the changes the associations made and gives their reasons for making those changes. It describes detailed experiences of the small housing associations, reflecting on their starting points and examining the methods they used to establish dementia friendly housing organisations. The report looks at the reasons why leaders and key staff decided to invest time and energy into becoming dementia friendly housing organisations. It also looks at the reasons why training was so important and at how the organisations started to change their practices, processes and policies. Drawing on a variety of measures to compare and contrast the work of the associations against, the report concludes with an overall evaluation, showing that through a mix of pragmatism and planning the housing associations were able to make deep changes. (Edited publisher abstract)
Rethinking dementia: how autonomy and control can be fostered through the development
- Author:
- de WAAL Hugo
- Journal article citation:
- Working with Older People, 18(2), 2014, pp.82-89.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to describe the loss of autonomy and control as the core problem in dementia and highlights the individuality of the lived experience of dementia. It analyses the failure of dementia services to keep the individual central to their design and identifies that failure as the unavoidable result of methodological error. Design/methodology/approach: The paper guides the reader through the conceptual error in dementia service design and highlights the disconnect between clinical symptomatology and the lived experience of the person with dementia. The analysis continues with the fact that dementia diminishes those brain functions central to the lived individuality, a characteristic which should inform service design. Findings: The paper proposes an approach, building on these insights, to build a personalised care plan and resource centre, thus filling the gap system-level design of dementia services are bound to leave open. Practical implications: The paper presents a pragmatic approach using a digital, portable and editable care planning tool and personalised resource centre, which can be populated by the person with dementia and/or carer(s) with facilitation from, e.g. trained volunteers or others. Social implications:The care planning tool will have a range of functions, including facilities to aid staying in touch with relatives or peers (or anyone else, dependent on personal preferences), enable building peer-to-peer support networks and thus minimise social isolation and loneliness. Originality/value: There is limited understanding of the reasons why dementia services struggle to be user-friendly, accessible, transparent and responsive. The paper provides new insight into why this is comprehensively the case and its description of a digital healthcare platform, owned and formulated by the person with dementia, directly builds upon this insight and identifies how such a device can form part of a solution. (Publisher abstract)
Recruitment of Chinese American elders into dementia research: the UCSF ADRC experience
- Authors:
- CHAO Steven Z., et al
- Journal article citation:
- Gerontologist, 51(S1), June 2011, pp.S125-S133.
- Publisher:
- Oxford University Press
The mission of the University of California, San Francisco, Alzheimer's Disease Research Center (UCSF ADRC) is to promote earlier and more accurate diagnosis of neurodegenerative dementias through enrolling older individuals with cognitive and behavioural changes into longitudinal clinical research. This article describes the results of its efforts to recruit a cohort of 100 Chinese Americans to participate in longitudinal research on cognitive decline in ageing. The strategies used included establishment of an outreach team and outreach clinics in San Francisco's Chinatown, lectures to local health care providers and community members, participation in community events, and promotional publications and media coverage. A survey was undertaken to better understand attitudes to research in the Chinese American community and factors that influence enrolment. The article describes the results of recruitment activity and the recruitment survey. 125 participants enrolled, and participants who enrolled were relatively highly educated, tended to be interested in learning about their cognitive abilities, and were supportive of the goals of research.
Culture, consent, costs and care homes: enabling older people with dementia to participate in research
- Authors:
- GOODMAN Claire, et al
- Journal article citation:
- Aging and Mental Health, 15(4), May 2011, pp.475-481.
- Publisher:
- Taylor and Francis
This paper examines factors that support and inhibit recruitment of research subjects living in care homes. It describes the methods used to recruit people with dementia to a study that tracked events and care that older people with dementia experienced over two years in six care homes. Recruitment involved meetings with staff, residents and relatives. Data were collected on the frequency of meetings, issues raised by staff, consultees and people with dementia as well as the overall time taken to complete recruitment. One hundred and thirty three older people with dementia were recruited in five months. The recruitment process was supported or hindered by the number of individuals and organisations that needed to be consulted, the care home culture, staff's understanding of how people with dementia can be involved in research, and how they interpreted their role as mediators, protectors and gatekeepers. The paper concludes that there is a need to develop infrastructures of support that enable people with dementia to participate in research studies.