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Co-production and participation: older people with high support needs
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Pagination:
- 42p.
- Place of publication:
- London
This report provides a summary of the research literature on the participation and co-production of older people with high support needs. It identifies the benefits and barriers to participation and also includes a small-scale survey of good practice. The report notes that 'older people with high support needs' are a diverse group, falling into two strands of disadvantage - age and disability. Factors that may contribute to high support needs are also identified as: gender; ethnicity; religion and belief; lesbian, gay, bisexual and transgendered people; poverty; learning disability; dementia and mental health problems; sensory impairment and housing contexts. The report goes on to identify the benefits and barriers to participation and different ways of involving older people. A resources section sets out resources available to support co-production in social care, including assessment tools and examples of practice and service development undertaken in co-production. The conclusion offers recommendations for improving practice. The report will be of particular interest to commissioners of social and health care services; people working in housing provision; service users and others developing the co-production/participation agenda in care provision and service development.
‘The Taste Buddies’: participation and empowerment in a residential home for older people
- Authors:
- BAUR Vivianne, ABMA Tineke
- Journal article citation:
- Ageing and Society, 32(6), August 2012, pp.1055-1078.
- Publisher:
- Cambridge University Press
The participation and autonomy of older people living in residential homes is considered to be problematic. However, in this action research project conducted in a Dutch residential care organisation the authors found ways to enhance residents' direct participation. This article we describes how a group of seven female residents, calling themselves ‘The Taste Buddies’, developed a joint vision on how meals could be improved, which enhanced the group's empowerment, building interpersonal trust, social identity and joint purpose. The authors argue that resident participation as partnership with employees and managers starts with relational empowerment among residents themselves. This process is non-linear and requires time and constructive facilitation.
Co-production and participation: older people with high support needs
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2012
- Pagination:
- 4p.
- Place of publication:
- London
This briefing summarises a review of literature and a small-scale survey of good practice on the participation and co-production of older people with high support needs. It looks at the benefits and barriers to participation; highlights two research programmes involving older people with high support needs. Recommendations for improved practice are also listed. It is noted that the evidence base for the review was limited as relevant material was either about participation as it relates generally to older people or was about older people with high support needs but contained very little reference to participation.
Using photovoice with older adults: some methodological strengths and issues
- Authors:
- NOVEK Sheila, MORRIS-OSWALD Toni, MENEC Verena
- Journal article citation:
- Ageing and Society, 32(3), April 2012, pp.451-470.
- Publisher:
- Cambridge University Press
Photovoice is a qualitative research technique in which participants record and reflect on their community through photography, and is gaining popularity as a participatory research methodology. This paper examines the application of photovoice in a study with older adults looking at age-friendly community characteristics in one city and three rural communities in Manitoba, Canada. The study recruited 30 participants over 50 years of age, who were provided with cameras and took photographs to illustrate their perceptions of the extent to which communities were age-friendly. Participants recorded information about the photographs and why they were taken, and all participants were interviewed and took part in discussion groups which included photos and commentary from each group member. The article discusses the strengths of photovoice, for example in capturing physical and social environments and as a participatory process, and issues encountered, including use of cameras, ethics and safety, and participant characteristics. The authors conclude that photovoice is an effective tool for eliciting older people's perceptions of and concerns about their communities and identifying priorities for change, noting that the methodology can be adapted to accommodate the needs of older people but that there are challenges to be overcome.
Ageing activists: who gets involved in older people's forums?
- Authors:
- BARNES Marian, HARRISON Elizabeth, MURRAY Lesley
- Journal article citation:
- Ageing and Society, 32(2), February 2012, pp.261-280.
- Publisher:
- Cambridge University Press
Senior Citizens’ Forums have been established across East Sussex to provide a mechanism for dialogue between the County Council, the Primary Care Trusts, other public agencies, and older people. The aim of this article is to explore the characteristics and motivations of the members of these forums, specifically looking at: how they see themselves in relation to ‘other older people’; and their relationships with the places in which they live. The article draws upon pieces of research conducted with 2 forums. The first involved participatory research with forum members to explore issues prompting their participation and their experiences of this. The second comprised biographical interviews with forum members with reference to mobility and participation over their lifespan. The findings are discussed in relation to the characterisation of participants in such forums as the ‘usual suspects’ whose legitimacy to speak on behalf of others may be questioned, and by reference to a growing recognition of the significance of place in the lives of older people. Important differences in motivations, backgrounds and priorities of forum members are shown between the 2 forums. The research confirms that place-based participation tends to engage those who are fitter and who have more social and cultural capital, but questions assumptions that this means they are spaces for the pursuit of self-interest.
Moving beyond patient and client approaches: mobilizing ‘authentic partnerships’ in dementia care, support and services
- Authors:
- DUPUIS Sherry L., et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 11(4), July 2012, pp.427-452.
- Publisher:
- Sage
The notion of a client-centred or person-centred approach was first introduces in the 1940s. Over the past several decades, however, the true intent behind its original relational approach has been lost, settling instead on well-intended but often paternalistic approaches that place patients or clients at the centre of care, but rarely, if ever, actively involve them in decision-making. This is no more apparent than in the case of people living with Alzheimer's disease who, due to the stigma and misunderstanding surrounding dementia, are often assumed to lack the capacity to be involved in their own care and the care of others. Drawing on the experience of the authors, working directly with persons with dementia, family members and professionals, and systematic research on a number of mutual partnership initiatives, this paper present an alternative approach, one that views persons with dementia as equal partners in the context of dementia care, support and formal services.
Care planning at home: a way to increase the influence of older people?
- Authors:
- BERGLUND Helene, et al
- Journal article citation:
- International Journal of Integrated Care, 12(3), 2012, Online only
- Publisher:
- International Foundation for Integrated Care
The purpose of care-planning meetings is for professionals to co-ordinate the planning of future care, in interaction with the older person. The meeting generally takes place in the hospital, prior to discharge. The purpose of this research was to investigate whether the organisation of care-planning meetings has an impact on the opportunity for the older person to influence the decision-making processes. The study was part of a larger project including a comprehensive continuum-of-care model conducted in a city on the west coast of Sweden. As part of this study, 19 care-planning meetings were audio-recorded; 10 in the older person’s home and 9 in hospital. The meetings were transcribed and a qualitative content analysis was performed. The findings show that care-planning meetings at home appeared to enable older people's involvement in the discussions. Fewer people participated in the meetings at home and there was less parallel talking. Unrelated to the place of the care-planning meeting, the older people were able to influence concerns relating to the amount of care, and the choice of provider. However, they were not able to influence the way the help should be provided or organised. The article concludes that planning care at home enabled an increase in involvement on the part of the older people, but this did not appear to be enough to obtain any real influence.
Older people, well-being and participation
- Authors:
- BARNES Marian, WARD Lizzie, GAHAGAN Beatrice
- Journal article citation:
- Generations Review, 22(2), April 2012, Online only
- Publisher:
- British Society of Gerontology
The University of Brighton and Age Concern, Brighton, Hove and Portslade have been working on participatory research with older people since 2007. Their latest project investigates the experiences of older people in relation to well-being. They have also received ESRC Follow on Funding to apply learning from this project, and from their experiences of working with older people as co-researchers, to develop learning resources for older people's involvement. This article briefly describes what the researchers have learnt from their research into well-being and how the findings will be applied.
Older adults' experiences of occupational therapy predischarge home visits: a systematic thematic synthesis of qualitative research
- Authors:
- ATWAL Anita, et al
- Journal article citation:
- British Journal of Occupational Therapy, 75(3), March 2012, pp.118-127.
- Publisher:
- Sage
The authors believe that, despite predischarge home visits by occupational therapists being common in practice, there has been a tendency to neglect users' perceptions and experiences when evaluating whether this intervention is clinically and cost effective. A qualitative literature review was undertaken as a basis for systematic thematic synthesis of older adults' perceptions and experiences of predischarge home visits. Electronic database search were searched, conference proceedings hand searched and universities and occupational therapy professional bodies within Europe, Australia and North America contacted. Forty-four studies were initially identified, of which 13 studies (7 published, 6 unpublished) were selected for detailed screening. Only three qualitative studies met the inclusion criteria. Two main themes emerged: older adults' perceptions of home visits, and acceptance of occupational therapy. Although, in general, older adults are satisfied with predischarge home visits, the experience may provoke anxiety for some patients. Older people felt that they were not always involved in the decision making process during the visit, which may result in no-acceptance of the occupational therapy recommendations. The authors conclude that insufficient attention has been paid to older adults' perceptions of predischarge home visits. They believe that further work is necessary to determine their effectiveness from a user’s perspective.
What should be in a self-management programme for people with early dementia?
- Authors:
- MOUNTAIN Gail A., CRAIG Claire L.
- Journal article citation:
- Aging and Mental Health, 16(5), July 2012, pp.576-583.
- Publisher:
- Taylor and Francis
This study examined the views from people with dementia and carers in England about their experiences, and the interventions that they considered could assist in facilitating independence and quality of life post diagnosis. A series of interviews were conducted, and a further group of people with dementia and carers then met over six successive weeks to explore and provide feedback on the topic areas generated out of the initial interviews and add to the content. Data generated from the interviews identified a number of themes for a potential self-management group which were then validated through consultation. Optimum modes of delivery of a self-management programme were also indicated. Based on the findings, a draft programme has been constructed building upon identified priorities. The process and outputs from the consultation also indicated the significant ramifications of such a programme for services.