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The role of dementia training programmes in reducing care-giver burden
- Author:
- GORMLEY Niall
- Journal article citation:
- Psychiatric Bulletin, 24(2), February 2000, pp.41-42.
- Publisher:
- Royal College of Psychiatrists
Family care-givers play a vital role in the support of people with dementia. Carers identify access to information and training as an essential requirement in their struggle to continue in the care-giving role. This article asks to what extent are these training needs being met and does the provision of training actually reduce the burden of caring for a family member with dementia.
Protecting cognition from aging and Alzheimer's disease: a computerized cognitive training combined with reminiscence therapy
- Authors:
- BARBAN Francesco, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 31(4), 2016, pp.340-348.
- Publisher:
- Wiley
Objective: The aim of this paper was to assess the efficacy of process-based cognitive training (pb-CT) combined with reminiscence therapy (RT) in patients with mild Alzheimer's disease (mAD) and mild cognitive impairment (MCI) and in healthy elderly (HE) subjects. Methods: This multicentre, randomised, controlled trial involved 348 participants with mAD, MCI, and HE from four European countries. Participants were randomly assigned to two arms of a crossover design: those in arm A underwent 3 months of computerised pb-CT for memory and executive functions combined with RT and 3 months of rest; those in arm B underwent the reverse. The primary outcome was the effect of the training on memory and executive functions performance. The secondary outcome was the effect of the training on functional abilities in mAD assessed with the instrumental activities of daily living. Results: The study found a significant effect of the training for memory in all three groups on delayed recall of the Rey Auditory Verbal Learning Test and for executive functions in HE on the phonological fluency test. MCI and HE participants maintained these effects at follow-up. MCI and mAD participants also showed a significant effect of the training on the Mini-mental state examination scale. Participants with mAD showed more stable instrumental activities of daily living during the training versus the rest period. Conclusions: The results corroborate the positive effect of pb-CT and its maintenance primarily on memory in HE and MCI participants that did not seem to be potentiated by RT. Moreover, our results are very promising for the mAD participants. (Edited publisher abstract)
A confidence interval analysis of three studies using the Alzheimer's disease knowledge test
- Authors:
- SULLIVAN K., FINCH S., O'CONNOR F.
- Journal article citation:
- Aging and Mental Health, 7(3), May 2003, pp.176-181.
- Publisher:
- Taylor and Francis
It has been suggested that community awareness of Alzheimer's disease (AD) has increased over recent years. This claim has been difficult to evaluate given the lack of systematic research in this area however, despite some recent attempts at monitoring changes in knowledge about AD. To address the question of change in awareness about AD, the present study compared results from three studies that have investigated the level of AD knowledge among undergraduate students, using confidence intervals. Consistent with previous findings, the results of this study suggest that more recent cohorts of undergraduate students are more knowledgeable about some aspects of AD, although to an extent that is much less marked than previously thought. Importantly, there are also a number of areas in which there appears to have been little or no change in community awareness about AD, and these are highlighted as issues that may need to be specifically addressed as part of future carer education programmes
In partnership with carers
- Authors:
- MELLOR Christine, GLOVER Sally
- Journal article citation:
- Journal of Dementia Care, 8(6), November 2000, p.14.
- Publisher:
- Hawker
Describes the process and outcomes of developing a carers' training and education programme, for carers of people with dementia, using a partnership approach.
Support and information in a stress free environment
- Authors:
- McLOUGHLIN Deborah, NG Annie
- Journal article citation:
- Journal of Dementia Care, 7(4), July 1999, pp.14-15.
- Publisher:
- Hawker
Describes the implementation of a three day education programme for carers of people with Alzheimer's Disease.
Developing support groups for individuals with early stage alzheimer's disease: planning, implementation and evaluation
- Author:
- YALE Robyn
- Publisher:
- Health Professions Press
- Publication year:
- 1998
- Pagination:
- 250p.,bibliog.
- Place of publication:
- Baltimore, MD
Provides practical guidance in developing, facilitating, and administering effective support groups for people with early-stage Alzheimer's Disease. Covers recruiting participants and facilitators, setting up and running the group, evaluation, involving carers, training facilitators, and also reviews research in this area.
Alzheimer's Disease Society: open learning programme
- Author:
- CAYTON Harry
- Journal article citation:
- Elders the Journal of Care and Practice, 3(3), September 1994, pp.57-62.
Discusses the growing incidence of Alzheimer's Disease.
STAR: a dementia-specific training program for staff in assisted living residences
- Authors:
- TERI Linda, et al
- Journal article citation:
- Gerontologist, 45(5), October 2005, pp.686-693.
- Publisher:
- Oxford University Press
This article describes, and provides data on, an innovative, comprehensive, dementia-specific training program designed to teach direct care staff in assisted living residences to improve care and reduce problems in residents with dementia. STAR (Staff Training in Assisted living Residences) provides two 4-hr workshops augmented by four individualized on-site consultations and three leadership sessions. Developed by means of an iterative process of implementation and revision, it was then evaluated in a small randomized controlled trial. A total of 114 staff and 120 residents in 15 residences participated. STAR was exceptionally well received. Training details are provided with a discussion of unique challenges inherent in implementation. Following training, STAR residents evidenced significantly reduced levels of affective and behavioral distress compared with control residents. Furthermore, STAR residents improved whereas control residents worsened. Staff with STAR staff training reported less adverse impact and reaction to residents' problems and more job satisfaction compared with control staff. STAR is an effective training program for direct care staff working with dementia residents in assisted living. The importance of continued development and investigation of STAR efficacy and effectiveness is underscored by the growing numbers of residents with dementia who are receiving care in these settings.
Efficacy of an educational program for relatives of persons in the early stages of Alzheimer's Disease
- Authors:
- KUHN Daniel, FULTON Bradley R.
- Journal article citation:
- Journal of Gerontological Social Work, 43(3/4), 2004, pp.109-129.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article describes the results of an educational intervention for family caregivers of persons in the early stages of Alzheimer's disease. A total of 45 family caregivers participated in this intervention that consisted of five weekly educational sessions about the disease and aspects of caring for someone in the early stages. Measures of knowledge about Alzheimer's disease, self-efficacy, reactions to patients' memory impairment, and level of depression at pretest and posttest were analyzed. Participants' knowledge about the disease improved substantially, self-efficacy and reactions to patients' impairments imporved moderately, and level of depression showed no significant improvement. Results suggest that this intervention has merit for family caregivers coping with the early stages of Alzheimer's disease. Implications for implementation and evaluation are discussed. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)
Home care services for people with dementia: quality standards
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2001
- Pagination:
- 3 parts (44p.; 52p.; 44p.)
- Place of publication:
- London
A quality home care service for a person with dementia will foster independence and will therefore assist in helping the person live at home for longer. This is not only good for the individual, it may also prove a more cost-effective form of care. Since 1991 changes have been occurring nationally in the types of services that are delivered to older people living in their own homes. In England, home care services are the largest services provided for older people by social services departments. Around 8 per cent of people over the age of 65 receive such a service from local authorities. Dementia is one of the major health and social care challenges of the century. Home care is therefore becoming more common for people with dementia. Home care services cannot afford to ignore the particular demands that dementia makes on all long term care systems. The implications of dementia on a person and those who care for them can be devastating. Dementia may affect the person's memory, communication skills and ability to complete personal tasks. People with dementia are often very aware of the effects of their illness, particularly in the early stages, and coming to terms with living with dementia can be very difficult. In developing quality dementia home care standards, talking to care workers, care managers, dementia specialists and purchasers, several key factors for quality emerged: continuity; supporting the person with dementia and their carers; time; monitoring and review; and training and support for care workers.