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Dementia: supporting people with dementia and their carers: understanding NICE-SCIE guidance
- Author:
- NATIONAL COLLABORATING CENTRE FOR MENTAL HEALTH
- Publishers:
- National Institute for Health and Clinical Excellence, Social Care Institute for Excellence
- Publication year:
- 2006
- Pagination:
- 19p.
- Place of publication:
- London
Produced by NICE and SCIE, this guideline makes recommendations for the identification, treatment and care of people with dementia and the support of carers within primary and secondary healthcare, and social care. The guide is for health and social care staff who work with people with dementia and their carers, and those who work with older people and people with learning disabilities. This includes GPs, nurses, geriatricians, psychiatrists, social workers, care home managers and care staff. It also includes recommendations relevant to commissioners, managers and coordinators of health and social care.
Commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel”
- Author:
- GANT Valerie
- Journal article citation:
- Tizard Learning Disability Review, 26(2), 2021, pp.114-119.
- Publisher:
- Emerald
Purpose:The purpose of this paper is to provide a commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel” written by Rachel Forrester-Jones. Design/methodology/approach: This commentary considers the experiences of older carers in the context of research, legislative and policy changes over the past 30+ years. Findings: The needs of older carers of adults with learning disabilities are well recognised within the (limited) literature. Less attention has been given to practical strategies to identify and support such carers or to their broader family context. Originality/value: This commentary highlights that assessors carrying out carers’ needs assessments should consider whether adults with learning disabilities are providing care to their older relative. The recognition of possible mutual or reciprocal care needs to be acknowledged and appropriate support offered. (Edited publisher abstract)
Out in the cold
- Author:
- MARCHANT Catriona
- Journal article citation:
- Community Care, 27.5.93, 1993, pp.24-25.
- Publisher:
- Reed Business Information
The law on social work intervention to protect elderly people or adults with learning difficulties who are at risk of abuse is confusing and often ineffective. The Law Commission are consulting on changes to the law concerning the public protection of mentally handicapped and other vulnerable adults. Far reaching proposals echo in part the Children Act. Looks at arguments for and against the proposals.
Has service user participation made a difference to social care services?
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, CARR Sarah
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2004
- Pagination:
- 31p.,bibliog.
- Place of publication:
- London
This paper brings together the key themes and findings from the synthesis of six literature reviews on the impact of user participation on change and improvement in social care services. Reviews on older people, children and young people, people with learning difficulties and disabled people were commissioned by the Social Care Institute for Excellence (SCIE). Reviews on mental health service user participation and on general user/ consumer involvement were commissioned by NHS Service Delivery and Organisation Research and Development Programme. The aim of this work is to give an overview or synthesis of these reviews in order to provide a comprehensive, accessible account of what is currently known about the impact of service user participation on change and improvement in social care services. It will also provide a basis for SCIE Practice guides on service user participation.
Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel
- Author:
- FORRESTER-JONES Rachel
- Journal article citation:
- Tizard Learning Disability Review, 26(2), 2021, pp.105-113.
- Publisher:
- Emerald
Purpose: Amongst other actions the Care Act 2014 emphasised the duties of local authorities (LA) to assess the needs of carers, as well as those they care for and to meet all eligible needs for support. This paper aims to report the findings of a study which explored the experiences of older carers of people with learning disabilities as they navigated LA assessment processes and personnel. Design/methodology/approach: Using an explorative design, 21 older carers were interviewed about their experiences. Interview transcripts were qualitatively analysed. Findings: Three main themes were identified, namely, needs assessments as ambitions, not outcomes; the effects of funding-cuts projected onto carers; and challenges with social care personnel. Originality/value: The study findings attracted a high level of engagement with public awareness and mainstream news and social media. The LA also immediately responded with interventions to address some of the findings, including carer “drop-in” sessions. They are also adapting their carer’s needs assessment processes as a result of the study. It is hoped that the issues raised will be of interest to other social care providers and practitioners. (Edited publisher abstract)
Building capacity and bridging the gaps: Strand 1: Social care practice with older people, people with learning disabilities and physically disabled people who use alcohol and other drugs: final report
- Authors:
- DANCE Cherilyn, ALLNOCK Debbie
- Publisher:
- University of Bedfordshire. Tilda Goldberg Centre for Social Work and Social Care
- Publication year:
- 2013
- Pagination:
- 68
- Place of publication:
- Luton
This report conveys the findings of one part of a three strand project which set out to examine the current state of training to work with alcohol and other drug problems (AOD) in social work and social care. This strand highlights the experiences and needs of social work and social care practitioners when encountering AOD problems in their work with older people, adults with learning disabilities and physically disabled adults. Drawing on quantitative and qualitative data from a survey undertaken in 2010-11, this secondary analysis has identified that practitioners in these areas encounter AOD problems relatively infrequently (compared with child protection or adult mental health fields), but that significant challenges are faced when they do so. Many practitioners in these fields feel under-prepared for this work; and they struggle with a lack of confidence in their knowledge about AOD, and with balancing their duty of care with respect for an individual’s right to self-determination, each of which affects their sense of entitlement to discuss AOD issues with service users. The current mode of service delivery, case management, focuses on signposting and referring on, and thus limits the perceived opportunities for practitioners to develop the sort of relationships with service users which would permit meaningful discussion of their AOD use. In addition, there is a lack of clarity about what is, or should be expected of adults’ social practitioners with respect to problematic AOD use. While the focus of the new Health and Well Being Boards is yet to be established, it is hoped that by bringing together health and social concerns under one body responsible for strategic planning and commissioning of services might offer the opportunity for tackling some of these issues. The project was funded by Alcohol Research UK. (Edited publisher abstract)
Growing health disparities for persons who are aging with intellectual and developmental disabilities: the social work linchpin
- Authors:
- ROBINSON Laura M., et al
- Journal article citation:
- Journal of Gerontological Social Work, 55(2), February 2012, pp.175-190.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Like the wider population, adults with intellectual and developmental disabilities (IDD) are living longer; into their 70s and beyond. Health care disparities have been well-documented for this vulnerable and underserved population. The authors’ aim in this discussion was to draw attention to the limited presence of social workers in the IDD field, the lack of educational opportunities to support current and future social workers in this field and the impact of these trends on the health disparities experienced by people ageing with IDD. Social workers are often responsible for assessment, coordination of care, and negotiation of necessary and appropriate services for people with IDD. The authors explore the challenges facing social workers in meeting the growing health and social needs of aging adults with IDD and their families.
Addressing the informational needs of healthcare professionals in dementia care: an explorative study in a Chinese society
- Authors:
- CHUNG J. C. C., LAI C. K. Y.
- Journal article citation:
- Aging and Mental Health, 7(4), July 2003, pp.287-293.
- Publisher:
- Taylor and Francis
Many healthcare professionals in Hong Kong are now working in dementia care, but little is known about their informational needs in this area. This study explored the level of knowledge about dementia that healthcare professionals perceived themselves as having, and the informational needs of dementia care. 320 respondents, who were primarily nurses, social workers, and rehabilitation therapists, completed a questionnaire designed for this study. While 65% reported having sufficient knowledge of dementia, only 40% expressed having adequate knowledge of dementia-related services. Respondents who had relevant clinical experience demonstrated a significantly higher self-perceived knowledge level of dementia ( p¼0.000) and dementia-related services ( p¼0.000). The respondents ranked information leaflets (68%), the mass media (65%), and workshops (53%) as the three popular sources for obtaining dementia-related information. Similar to their western counterparts, over 75% of respondents expressed the need to learn more about clinical management and service provisions for people with dementia and their families. To enhance the knowledge of healthcare professionals about dementia care, it is recommended that healthcare professionals be encouraged to participate in continuing education programmes, and that education/resource centres for dementia care be developed to address the learning needs of local practitioners.
Fearful of help
- Author:
- GEORGE Mike
- Journal article citation:
- Community Care, 20.4.00, 2000, pp.30-31.
- Publisher:
- Reed Business Information
An elderly woman and her family were living in squalor and social isolation and repeatedly rejected the offers of help. The author talks to a social worker about the uphill struggle she faced when she tried to improve their lives.
Assessing mental capacity: a checklist for social workers
- Authors:
- DAWSON Carol, McDONALD Ann
- Journal article citation:
- Practice: Social Work in Action, 12(2), 2000, pp.5-19.
- Publisher:
- Taylor and Francis
Social workers, whether working with people with learning difficulties or with older people, are often required to make judgements an individual's capacity to make decisions. This article explores the legal basis upon which such judgements should be based and the implications for the individual and for the worker of finding of capacity or otherwise. The material is presented in the form of a checklist, supported by discussion of the issues that should be taken into account when assessing capacity; these cover not only cognitive factors, but address also the importance of social history, the environment and interpersonal skills.