Drawing on published research, this evidence review provides the theory behind engagement and provides a starting point for any community or organisation wanting to engage or involve older people in their activities. It outlines the different levels of engagement, from being consulted, to higher levels of involvement such as decision-making and agenda setting. It also identifies the benefits of participation for older people, organisations and communities as a whole. Benefits include older people having a greater sense of purpose, developing new skills, organisations getting feedback about their services, reaching groups who might not access their services; and improved relationships with communities. The review also identifies barriers and facilitators to successful engagement. Engagement is most likely to be successful when there is careful planning to overcome barriers of participation, making efforts to include people who are representative of the community, and providing feedback to participants and organisations. The review identifies a lack of published research and evaluation on engagement, especially with older people, and highlights the need for more evidence on what works well.
(Edited publisher abstract)
Drawing on published research, this evidence review provides the theory behind engagement and provides a starting point for any community or organisation wanting to engage or involve older people in their activities. It outlines the different levels of engagement, from being consulted, to higher levels of involvement such as decision-making and agenda setting. It also identifies the benefits of participation for older people, organisations and communities as a whole. Benefits include older people having a greater sense of purpose, developing new skills, organisations getting feedback about their services, reaching groups who might not access their services; and improved relationships with communities. The review also identifies barriers and facilitators to successful engagement. Engagement is most likely to be successful when there is careful planning to overcome barriers of participation, making efforts to include people who are representative of the community, and providing feedback to participants and organisations. The review identifies a lack of published research and evaluation on engagement, especially with older people, and highlights the need for more evidence on what works well.
(Edited publisher abstract)
Subject terms:
older people, user participation, consultation, service users, participation, user views, literature reviews;
Literature review and evaluation of care management in the community to better meet the requirements of older service users with dementia. Also summary of legal and practice issues.
Literature review and evaluation of care management in the community to better meet the requirements of older service users with dementia. Also summary of legal and practice issues.
Subject terms:
literature reviews, older people, service users, care management, community care, dementia;
This paper brings together the key themes and findings from the synthesis of six literature reviews on the impact of user participation on change and improvement in social care services. Reviews on older people, children and young people, people with learning difficulties and disabled people were commissioned by the Social Care Institute for Excellence (SCIE). Reviews on mental health service user participation and on general user/ consumer involvement were commissioned by NHS Service Delivery and Organisation Research and Development Programme. The aim of this work is to give an overview or synthesis of these reviews in order to provide a comprehensive, accessible account of what is currently known about the impact of service user participation on change and improvement in social care services. It will also provide a basis for SCIE Practice guides on service user participation.
This paper brings together the key themes and findings from the synthesis of six literature reviews on the impact of user participation on change and improvement in social care services. Reviews on older people, children and young people, people with learning difficulties and disabled people were commissioned by the Social Care Institute for Excellence (SCIE). Reviews on mental health service user participation and on general user/ consumer involvement were commissioned by NHS Service Delivery and Organisation Research and Development Programme. The aim of this work is to give an overview or synthesis of these reviews in order to provide a comprehensive, accessible account of what is currently known about the impact of service user participation on change and improvement in social care services. It will also provide a basis for SCIE Practice guides on service user participation.
Subject terms:
learning disabilities, literature reviews, mental health problems, older people, service users, social workers, user participation, user views, children;
Quality in Ageing and Older Adults, 17(3), 2016, pp.179-188.
Publisher:
Emerald
Purpose: The purpose of this paper is to describe service user involvement, explain some of the key issues that define, affect or protect mental health in later life and show how involvement may contribute to better mental health in later life.
Design/methodology/approach: The paper reviews existing definitions of involvement and mental health in later life; provides a more detailed review of some examples of involvement at a range of levels and illustrates how these could have a positive impact on mental health.
Findings: Active involvement and engagement at all levels offers significant opportunities for older people to protect and improve their own mental health and the mental health of society as a whole.
Research limitations/implications: This research does not set out to promote any particular intervention or involvement technique. The examples given have been evaluated in a variety of ways.
Practical implications: Service user involvement should be considered as an important potential contributor to mental health in later life.
Social implications: The paper encourages people in later life to be considered as a community resource rather than a problem that needs to be solved.
Originality/value: This paper brings together existing research with a focus on the relationship between involvement and individual and collective mental health.
(Publisher abstract)
Purpose: The purpose of this paper is to describe service user involvement, explain some of the key issues that define, affect or protect mental health in later life and show how involvement may contribute to better mental health in later life.
Design/methodology/approach: The paper reviews existing definitions of involvement and mental health in later life; provides a more detailed review of some examples of involvement at a range of levels and illustrates how these could have a positive impact on mental health.
Findings: Active involvement and engagement at all levels offers significant opportunities for older people to protect and improve their own mental health and the mental health of society as a whole.
Research limitations/implications: This research does not set out to promote any particular intervention or involvement technique. The examples given have been evaluated in a variety of ways.
Practical implications: Service user involvement should be considered as an important potential contributor to mental health in later life.
Social implications: The paper encourages people in later life to be considered as a community resource rather than a problem that needs to be solved.
Originality/value: This paper brings together existing research with a focus on the relationship between involvement and individual and collective mental health.
(Publisher abstract)
Subject terms:
mental health, health education, service users, user participation, independence, older people, self care, peer support, literature reviews;
There is ample evidence that older people do differ substantially in their values and preferences – and in ways which have practical relevance to services. There is evidence too that they can often readily discuss their values and preferences with social care staff and can compare, rate and rank the importance of different preferences. Standard forms and procedures can be devised whereby service staff can gain such information from older people. Social care staff can be influenced by information on older people’s preferences so that, sometimes at least, they can adjust services to suit individuals. On all these counts there is clear support for the practicability of a person-centred approach to home care, which seeks to adapt to the values and preferences of each individual.
There is ample evidence that older people do differ substantially in their values and preferences – and in ways which have practical relevance to services. There is evidence too that they can often readily discuss their values and preferences with social care staff and can compare, rate and rank the importance of different preferences. Standard forms and procedures can be devised whereby service staff can gain such information from older people. Social care staff can be influenced by information on older people’s preferences so that, sometimes at least, they can adjust services to suit individuals. On all these counts there is clear support for the practicability of a person-centred approach to home care, which seeks to adapt to the values and preferences of each individual.
Extended abstract:
Author
PATMORE Charles;
Title
Towards flexible person-centred home care services: a guide to some useful literature for planning, managing or evaluating services for older people.
Publisher
University of York. Social Policy Research Unit, 2002.
Summary
The Social Policy Research Unit initially conducted this literature review in order to provide guidance to a new research project. This report now aims to share the fruits of the literature review with a wider audience of people who are managing, developing or inspecting services for older people. The literature review was designed to gather information about: (a) different ways in which older people's home care services can be organised (b) how older people's services can be customised to reflect the values and choices of each individual service user. Information on both topics is quite rare and the following summary of literature can benefit a much wider audience that the SPRU research project which inspired the enquiry.
Context
This report covers many studies from a variety of countries. But perhaps particularly useful are its substantial summaries of the following, which represent important knowledge for anyone managing or developing home care for older people: a major recent British research study into management factors affecting quality and effectiveness of home care services; little known in the UK, a body of pioneering research by an American research team into adjusting an older person's services to their values as an individual; and, two pioneering experiments by UK Social Services Departments in increasing choice and influence by older people as individuals over the services they receive.
Method
The National Institute for Social Work Caredata database was searched using keywords as was the ASSIA database. Very little information is provided in the text on search strategy and research methodology used in the review.
Contents
This document is divided into five sections. It begins with an introduction which gives details of the reasons for this literature search and the research project of which it is part. Section two very briefly describes the methodology used in the literature search. Section three discusses the findings from the literature in terms of models of how home care services are organised. Section four discusses the findings from the literature review in terms of individual preferences among older people concerning the types of help they wish and the lifestyles they desire. Section five provides a conclusion to the findings from the literature review. The text is accompanied by a reference list and a description of SPRU's research project on flexible, person centred home care for older people.
Conclusion
"There is ample evidence that older people do differ substantially in their values and preferences - and in ways which have practical relevance to services. There is evidence to that they can often readily discuss their values and preferences with social care staff and can compare, rate and rank the importance of different preferences. Standard forms and procedures can be devised whereby service staff can gain such information from older people. Social care staff can be influenced by information on older people's preferences so that, sometimes at least, they can adjust services to suit individuals. On all these counts there is clear support for the practicability of a person-centred approach to home care, which seeks to adapt to the values and preferences of each individual."
45 references
Subject terms:
home care, literature reviews, management, models, older people, service users, social care provision, user participation, user views, carers;
Explores the meaning of need and unmet need from the perspective of policy, service providers and older people themselves. Argues that need is socially constructed and examines existing research evidence to make explicit the assumptions underpinning policy; review what is known about unmet need within this framework; examine the barriers which prevent older people seeking help; and consider how a user conception of need might be developed.
Explores the meaning of need and unmet need from the perspective of policy, service providers and older people themselves. Argues that need is socially constructed and examines existing research evidence to make explicit the assumptions underpinning policy; review what is known about unmet need within this framework; examine the barriers which prevent older people seeking help; and consider how a user conception of need might be developed.
Subject terms:
literature reviews, needs, older people, service users, social services, unmet need, user views, access to services, community care;
International Journal of Environmental Research and Public Health, 17(11), 2020, Online only
Publisher:
Molecular Diversity Preservation International and Multidisciplinary Digital Publishing Institute
The review aimed to examine the views and experiences of ageing gender and sexually diverse (GSD) women - a triple minority in relation to their age, gender and sexual orientation - in accessing health, social and aged care services. Eighteen peer reviewed articles identified from seven electronic databases in health and social sciences were evaluated according to predefined criteria and a thematic review methodology drawing upon socio-ecological theory was used to analyse and interpret the findings. Four major themes were identified from the analysis: “The Dilemma of Disclosure”, “Belonging/Connection”, “Inclusiveness of Aged Care” and “Other Barriers to Access Care”. In the dilemma of disclosure, older GSD women consider factors such as previous experiences, relationship with the provider and anticipated duration of stay with the provider before disclosing their sexual identifies. The review also revealed that aged care services lack inclusiveness in their policies, advertising materials, aged care spaces and provider knowledge and attitude to provide sensitive and appropriate care to GSD women. Overall, older GSD women experience multiple and multilevel challenges when accessing health, aged and social services and interventions are needed at all levels of the socio-ecological arena to improve their access and quality of care.
(Edited publisher abstract)
The review aimed to examine the views and experiences of ageing gender and sexually diverse (GSD) women - a triple minority in relation to their age, gender and sexual orientation - in accessing health, social and aged care services. Eighteen peer reviewed articles identified from seven electronic databases in health and social sciences were evaluated according to predefined criteria and a thematic review methodology drawing upon socio-ecological theory was used to analyse and interpret the findings. Four major themes were identified from the analysis: “The Dilemma of Disclosure”, “Belonging/Connection”, “Inclusiveness of Aged Care” and “Other Barriers to Access Care”. In the dilemma of disclosure, older GSD women consider factors such as previous experiences, relationship with the provider and anticipated duration of stay with the provider before disclosing their sexual identifies. The review also revealed that aged care services lack inclusiveness in their policies, advertising materials, aged care spaces and provider knowledge and attitude to provide sensitive and appropriate care to GSD women. Overall, older GSD women experience multiple and multilevel challenges when accessing health, aged and social services and interventions are needed at all levels of the socio-ecological arena to improve their access and quality of care.
(Edited publisher abstract)
Subject terms:
older people, women, social inclusion, adult social care, literature reviews, user views, service users, gender, ageing, sexual orientation, access to services, health care, LGBT people;
There are growing numbers of mainly older people who make their own arrangements for care and support services without the direct involvement of their local council. Data suggest that at any given time no more than one in five people aged 75 or over in a particular council area make contact with the council and only around one in six receive council funded support. Both the ‘Putting People First’ programme and the Government's Green Paper on the future funding of social care outline the importance of supporting the whole population to stay healthy and active, and also to be advised in making the right choices with respect to the meeting their care and support needs. Yet despite this, relatively little is known about those who fund their own care and support. This report, commissioned by the Association of Directors of Adult Social Services, the Social Care Institute for Excellence and the Joseph Rowntree Foundation, reviews a range of literature across policy, research and development, focusing on or relevant to people who fund their own care and support. The second part of the report looks at the key national organisations and charities involved in the provision of information and advice in social care and how it addresses the needs of people who are self-funding.
There are growing numbers of mainly older people who make their own arrangements for care and support services without the direct involvement of their local council. Data suggest that at any given time no more than one in five people aged 75 or over in a particular council area make contact with the council and only around one in six receive council funded support. Both the ‘Putting People First’ programme and the Government's Green Paper on the future funding of social care outline the importance of supporting the whole population to stay healthy and active, and also to be advised in making the right choices with respect to the meeting their care and support needs. Yet despite this, relatively little is known about those who fund their own care and support. This report, commissioned by the Association of Directors of Adult Social Services, the Social Care Institute for Excellence and the Joseph Rowntree Foundation, reviews a range of literature across policy, research and development, focusing on or relevant to people who fund their own care and support. The second part of the report looks at the key national organisations and charities involved in the provision of information and advice in social care and how it addresses the needs of people who are self-funding.
Subject terms:
literature reviews, needs assessment, older people, personal finance, self-funders, service users, social policy, social care provision, access to information, adult social care, advice services, eligibility criteria;
British Journal of Occupational Therapy, 61(12), December 1998, pp.538-544.
Publisher:
Sage
This article describes a qualitative study which considered if a client's sexual expression was a legitimate domain of concern of the occupational therapist. The research used an inductive strategy of depth interviews with practitioners who represented a breadth of practice. The focus of the study was to discover the attitudes, practice and confidence of occupational therapists to address sexual issues. This part reviews relevant literature, outlines the methodology and briefly reports the results.
This article describes a qualitative study which considered if a client's sexual expression was a legitimate domain of concern of the occupational therapist. The research used an inductive strategy of depth interviews with practitioners who represented a breadth of practice. The focus of the study was to discover the attitudes, practice and confidence of occupational therapists to address sexual issues. This part reviews relevant literature, outlines the methodology and briefly reports the results.
Subject terms:
literature reviews, occupational therapists, needs, occupational therapy, older people, rehabilitation, service users, sex education, sexuality, staff, young people, adults, attitudes, health care;