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A survey of people with intellectual disabilities living in residential aged care facilities in Victoria
- Authors:
- BIGBY C., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 52(5), May 2008, pp.404-414.
- Publisher:
- Wiley
This study describes the distribution and characteristics of people with ID in residential aged care in Victoria, provides insights into the pathways they take into aged care, and gives some indications of how facilities adapt to their needs. A postal survey was sent to 826 residential aged care facilities in Victoria, seeking information from directors about their residents with ID. Facilities that responded were fairly representative of all facilities in Victoria. Residents with ID were younger, had entered at an earlier age and remained longer than other residents. Their reported dependency profile was similar to the general aged care population, although the incidence of dementia was lower. Primary areas of concern identified by providers were: inability to fit into the resident community, lack of participation in activities and lack of meaningful relationships. This study provides a first glimpse into how older people with ID find their way into aged care and how others view their experiences once there. It suggests that further investigation is required into the accuracy of assessment undertaken prior to entry to more clearly understand whether residents with ID are inappropriately placed in residential aged as a result of a shortage of disability accommodation and inadequate resources to support aging in place for those in such accommodation.
Pennine Court: remodelling sheltered housing to include extra care for people with learning difficulties
- Authors:
- LATTO Shena, CROOKES Victoria
- Publisher:
- Care Services Improvement Partnership. Housing Learning and Improvement Network
- Publication year:
- 2007
- Pagination:
- 21p.
- Place of publication:
- London
This Case Study describes the development of extra care housing opportunities for older people with learning difficulties within a conventional sheltered housing scheme in Salford. It details the key stages and features of the development process, and shares the lessons learned from this in the hope that they will be useful to other commissioners and providers of housing and support services considering/involved in: remodelling sheltered housing; developing extra care for people with learning difficulties; integrating provision for people with learning difficulties with mainstream provision for people as they age.
Building for all: identifying the need for supported housing in London
- Authors:
- ROGERS Nigel, GOLDUP Mark, O'LEARY Chris
- Publisher:
- London Housing Federation
- Publication year:
- 2007
- Pagination:
- 11p.
- Place of publication:
- London
A joint publication from the London Housing Federation, Housing Corporation and Mayor of London, this new report shows that London has a serious shortage of specialist supported housing suitable for certain socially-excluded groups of people. The report estimates how many extra homes with support are needed for London’s vulnerable residents, and how many will be needed in 10 years’ time. It finds that London needs 4,421 additional supported homes, rising to 5,874 by 2017. More than 70 per cent of these are for socially excluded people with the remainder split between people with disabilities or learning difficulties, and older people. East London has the greatest need for all kinds of supported housing, owing to higher levels of deprivation and a fast-growing population.
Admission and care of residents in a care home during COVID-19
- Authors:
- GREAT BRITAIN. Department of Health and Social Care, et al
- Publishers:
- Great Britain. Department of Health and Social Care, Public Health England, Care Quality Commission, NHS
- Publication year:
- 2020
- Pagination:
- 49
- Place of publication:
- London
- Edition:
- Version 2
Government guidance setting out how to admit and care for residents of care homes safely and protect care home staff during the coronavirus (COVID-19) pandemic. It also includes information on reporting COVID-19 cases, providing care after death and supporting existing residents that may require hospital care. The guidance is intended for care homes, local health protection teams, local authorities, clinical commissioning groups (CCGs) and registered providers of accommodation for people who need personal or nursing care. This includes registered residential care and nursing homes for people with learning disabilities, mental health or other disabilities. [Published 2 April 2020. Last updated 22 March 2022]. (Edited publisher abstract)
People with intellectual disabilities living in generic residential services for older people in the UK
- Authors:
- THOMPSON D.J., RYRIE I., WRIGHT S.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 17(1), June 2004, pp.101-108.
- Publisher:
- Wiley
As part of a UK programme of work focusing on older people with intellectual disabilities, the circumstance of those who reside in generic services for older people were investigated. Questionnaires were sent to 2570 residential and nursing homes in 53 local authorities across the UK. Five hundred and thirty returned questionnaires identified 215 people with intellectual disabilities currently living in 150 homes. They were significantly younger than the other residents, and were placed in these homes more often because of organizational change or the ageing/death of a family carer, rather than any changes in their own needs. Several potential indicators of a low quality of life were identified, including limited opportunities to get out, to access day services, to have contact with family or friends and to receive input from professionals outside the home. Attention needs to be given both to people with intellectual disabilities already residing in older people's services and to the prevention of further inappropriate placements.
Feelings and emotions in residential settings : the individual experience
- Author:
- DAVIS Leonard F.
- Journal article citation:
- British Journal of Social Work, 7(1), 1977, pp.25-39.
- Publisher:
- Oxford University Press
Examines the impact of admission to residential care, makes a distinction between feelings and emotions, and suggests ways in which emotional habits are formed.
Hospital experiences of older people with intellectual disability: responses of group home staff and family members
- Authors:
- WEBBER Ruth, BOWERS Barbara, BIGBY Christine
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 35(3), September 2010, pp.155-164.
- Publisher:
- Taylor and Francis
A subset of data from a longitudinal study was used to examine perspectives of group home staff and family members concerning hospital experiences of group home residents with intellectual disabilities, including the strategies they used to support residents while in hospital. Focus was on 17 residents, aged 49 to 81 years at first interview, living in group homes in Victoria, who were tracked prospectively over 3 years. A total of 17 family members, 16 house supervisors, 11 accommodation program managers, and 11 staff in aged care facilities were interviewed. Twelve residents had been hospitalised at least once during the study and all had been hospitalised within the last 5 years. Staff and family reported poor support and treatment of the residents while in hospital. All positive experiences occurred in hospitals that had clear policies, resources and systems in place to address the special needs of people with an intellectual disability. Several strategies were used by staff and family members to improve the hospital experience. These included spending as much time as possible in the hospital; preparing information packages to prepare the resident for the hospital stay; attempting to partner with hospital staff; and taking on an advocacy role. Ageing of the family members and staffing implications for group homes complicated efforts to improve hospital experiences. The authors conclude that the current absence of systems to accommodate the special needs of people with intellectual disability in hospital settings has significant consequences for group homes, family members, hospital staff and residents.
Measuring the outcomes of care homes: final report
- Authors:
- NETTEN Ann, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2010
- Pagination:
- 117p., bibliog.
- Place of publication:
- Canterbury
The authors report on a project which developed and tested an approach to measuring and monitoring outcomes of the care and support provided to residents of care homes for older people and people with learning disabilities. The research was part of the ‘Measuring Outcomes for Public Service Users’ (MOPSU) project, which was funded by the Treasury under the Invest to Save budget and led by the Office for National Statistics (ONS). The domains that comprise social care related quality of life (SCRQOL) formed the basis of the measures used in the study.
Resource input,sService process and resident activity indicators in a Welsh national random aample of staffed housing services for people with intellectual disabilities
- Authors:
- FELCE David, PERRY Jonathan
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 17(1), June 2004, pp.127-132.
- Publisher:
- Wiley
The aims were to: (i) explore the association between age and size of setting and staffing per resident; and (ii) report resident and setting characteristics, and indicators of service process and resident activity for a national random sample of staffed housing provision. Sixty settings were selected randomly from those accommodating six or fewer adults with intellectual disabilities in Wales. Nine settings subsequently withdrew. Information from the remaining 51 was obtained on resident ages, gender, adaptive behaviour, physical and sensory disabilities, social impairment and challenging behaviour, the number and working hours of staff, staff:resident ratios at different times of the day, working practices, resident receipt of attention and assistance from staff and resident activity. The sample of 51 residences was divided into four groups of 12, 13, 13 and 13 settings each, according to ascending average adaptive behaviour scale scores. Age of residence was associated with larger size of residence and fewer staff hours per resident. Higher staffing per resident was associated with smaller setting size. Staffing per resident differed across adaptive behaviour groups to a limited extent. Size and age of residence, working practices, resident receipt of attention and assistance from staff did not differ across groups but resident engagement in activity did. Considerable within-group variation was found. The data illustrate trends in provision over time. In addition, they give a picture of recent practice and raise questions about whether staff input, on one hand, and staff training and performance, on the other hand, are well enough matched to the different needs of residents at different points of the adaptive behaviour spectrum.