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BSG Guidelines on ethical research with human participants
- Author:
- PEACE Shelia
- Journal article citation:
- Generations Review, 18(2), April 2008, Online only
- Publisher:
- British Society of Gerontology
Researching later life engages us with people living in all situations including some who are involved in health, housing and social care. Regardless of whether they are receiving or providing services or have some other interest, inviting them to participate in research is a serious matter. Research participants should be approached only after giving careful consideration to what it is they will be asked to do. They may be seen as research participants or co-producers of research. This article presents guidelines relating to ethical research practice.
Evaluating the impact of the New Dynamics of Ageing research programme
- Author:
- NATIONAL DEVELOPMENT TEAM FOR INCLUSION
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2015
- Pagination:
- 114
- Place of publication:
- Bath
This report presents the findings and conclusions from an impact evaluation of the New Dynamics of Ageing (NDA) research programme carried out by the National Development Team for Inclusion (NDTI) between October 2013 and December 2014. The NDA programme was the first, cross-Council, multi-disciplinary research programme on ageing to be commissioned, with the aim of exploring how the understanding and experience of ageing is changing, developing innovative, multidisciplinary research groups and methods, and providing a sound evidence base for policy and practice to ensure research contributes to wellbeing and quality of life. The report draws together four main conclusions based on the key lessons and messages identified from the impact evaluation of the NDA programme: the added value of the programme in achieving impact - for many, being part of the programme was in itself enormously valuable in delivering and supporting impact, not just for researchers, but also for advisory group members, partner organisations and older people; the importance of understanding and working with a diversity of audiences and forms of impact (in order to influence policy, practice and product development); the benefits of promoting successful impact generation methods; and lessons for developing impact evaluation frameworks and methods. (Edited publisher abstract)
Care homes
- Authors:
- LUFF Rebekah, FERREIRA Zara, MEYER Julienne
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2011
- Pagination:
- 40p., bibliog.
- Place of publication:
- London
The main aim of this evidence-based guide, which draws on illustrative examples from a range of studies, is to help those new to the field of research in care homes to learn from the experience of others. It focuses on care homes for older people and on 3 broad methodologies as applied in care home research: qualitative, quantitative, and participative research. It covers the context and culture of UK care homes, preparing to do research and development in care homes, research funding, ethics in care home research, gaining access and working with care home management and staff, special considerations for different methods, good practice, reflections on analysis, and disseminating findings. It includes recommendations for research on adult social care practice.
Giving up or finding a solution?: the experience of attempted suicide in later life
- Authors:
- CROCKER L., CLARE L., EVANS K.
- Journal article citation:
- Aging and Mental Health, 10(6), November 2006, pp.638-647.
- Publisher:
- Taylor and Francis
Older people constitute one of the highest risk groups for suicide. Existing research in this area has been largely dominated by a risk factor approach. This is of limited usefulness since only a minority of those at risk go on to make an attempt. Therefore, prediction, prevention and the management of risk remain challenging. The present study aimed to capture the subjective experience of older people who had recently made a suicide attempt through exploring their understanding of the pathway to and from this attempt, within the context of ageing. Fifteen participants were interviewed. Transcripts were analysed using Interpretative Phenomenological Analysis. Three broad themes emerged—Struggle (experiencing life as a struggle before and after the attempt, and in relation to growing older), Control (trying to maintain control over life before the attempt, and following it either failing or succeeding to regain control) and Visibility (feeling invisible or disconnected from others and trying to fight against this before the attempt and either becoming more or less connected afterwards). Risk factors identified in the literature were often absent or construed by participants as not relevant to their attempt. Individual accounts highlight the diversity and complexity of experience of older people who attempt suicide.
Understanding older people's experiences of poverty and material deprivation
- Authors:
- DOMINY Nicola, KEMPSON Elaine
- Publisher:
- Corporate Document Services; Great Britain. Department for Work and Pensions
- Publication year:
- 2006
- Pagination:
- 87p., bibliog.
- Place of publication:
- Leeds
The overall aims of the project were to provide an understanding of older people's experiences of poverty and their understanding of a range of indicators used to measure material deprivation. Therefore as well as providing a rich description of older people's saving and spending habits it also sought to understand how they interpreted material deprivation indicators. It was based on indepth interviews and focus groups and was undertaken by the Personal Finance Research Centre at the University of Bristol. Readers are recommended to also consult another DWP report published at the same time: Are Poor Pensioner Deprived? Undertaken by the University of Essex, it focuses on secondary analysis of material deprivation data.
Older people from South Asia: cross-national sample selection in India, Bangladesh and United Kingdom
- Author:
- BURHOLT Vanessa
- Journal article citation:
- Generations Review, 11(4), December 2001, pp.4-7.
- Publisher:
- British Society of Gerontology
Reports on first stages of a cross-national study which examines the impact of migration of family members on sources of help and support to older members of Gujarati, Punjabi and Sylheti families living in the United Kingdom, India and Bangladesh. Samples of people aged 55 and over were drawn from the UK and Asia. The UK sample was drawn from Gujarati, Punjabi and Sylheti elders in Birmingham via contacts established through local ethnic associations and the use of a 'snowball' technique. Looks at progress to date and discusses problems encountered in sampling the populations.
Making progress: but a way to go - the age and ageing care-home collection
- Authors:
- GORDON Adam L., et al
- Journal article citation:
- Age and Ageing, 51(1), 2022, p.afab213.
- Publisher:
- Oxford University Press
Care homes enable people with advanced physical and cognitive impairment to live well with 24-h support from staff. They are a feature of care systems in most countries. They have proved pivotal to the coronavirus disease 2019 (COVID-19) response. We searched Age and Ageing for care-home articles published since 2015. From these we collated 42 into the Age and Ageing care-home collection. This collection draws together important papers that show how Age and Ageing is helping to shape and grow care-home research. The collection outlines the technical issues that researchers face by grouping together important feasibility trials conducted in the sector. It looks at the challenges of measuring quality of life and working with routine data in care homes. It brings together observational studies considering loneliness, functional dependency, stroke outcomes, prescribing and acute deterioration. Health services research in care homes is represented by two studies that demonstrate realist evaluation as a way to make sense of service innovations. Papers are included that consider: non-pharmacological strategies for residents with dementia, end-of-life care, sexuality and intimacy and the care-home workforce. Given the importance of the COVID-19 pandemic in care homes, all of the care home COVID-19 papers published in Age and Ageing to date are included. Finally, a group of papers that present innovative approaches to research in care homes, each of which give voice to residents and/or staff, are collated and presented as a way of moving towards a more resident and care home centred research agenda. (Edited publisher abstract)
The COVID-19 pandemic has highlighted the need to invest in care home research infrastructure
- Authors:
- GORDON Adam L., et al
- Journal article citation:
- Age and Ageing, early cite February 2022, p.afac052.
- Publisher:
- Oxford University Press
The COVID-19 pandemic resulted in catastrophic levels of morbidity and mortality for care home residents. Despite this, research platforms for COVID-19 in care homes arrived late in the pandemic compared with other care settings. The Prophylactic Therapy in Care Homes Trial (PROTECT-CH) was established to provide a platform to deliver multi-centre cluster-randomized clinical trials of investigational medicinal products for COVID-19 prophylaxis in UK care homes. Commencing set-up in January 2021, this involved the design and development of novel infrastructure for contracting and recruitment, remote consent, staff training, research insurance, eligibility screening, prescribing, dispensing, and adverse event reporting; such infrastructure being previously absent. By the time this infrastructure was in place, the widespread uptake of vaccination in care homes had changed the epidemiology of COVID-19 rendering the trial unfeasible. Whilst some of the resources developed through PROTECT-CH will enable the future establishment of care home platform research, the near absence of care home trial infrastructure and nationally-linked databases involving the care home sector will continue to significantly hamper progress. These issues are replicated in most other countries. Beyond COVID-19, there are many other research questions that require addressing to provide better care to people living in care homes. PROTECT-CH has exposed a clear need for research funders to invest in, and legislate for, an effective care home research infrastructure as part of national pandemic preparedness planning. Doing so would also invigorate care home research in the interim, leading to improved healthcare delivery specific to those living in this sector. (Edited publisher abstract)
Ageing Better impact evaluation report: methods note
- Authors:
- CAMPBELL-JACK Diarmid, et al
- Publisher:
- National Lottery Community Fund
- Publication year:
- 2021
- Pagination:
- 164
- Place of publication:
- London
This methods note contains information on three quantitative strands of research carried out as part of the national evaluation of the Ageing Better programme. The aim of Ageing Better is to improve the lives of people aged 50 and over, by addressing social isolation and loneliness, improving social connections, and enabling people over 50 to be more engaged in the design of services for their communities. The programme also aims to challenge negative narratives around ageing and promote a positive image of later life. The three quantitative strands of the evaluation include: Common Measurement Framework (CMF) – to monitor participant numbers, collect data about participants to understand who took part in the programme and the changes that they experienced in their levels of social contact, wellbeing, and loneliness during and after their involvement; impact evaluation of the Ageing Better programme – the impact evaluation used CMF data on how outcomes changed for Ageing Better participants and compared it to how outcomes changed for other people; project type data – data from a study commissioned by TNLCF and undertaken in 2019 by the University of Sheffield and the University of Kent classifying Ageing Better projects into different types. This report explains the methodology for each strand and provides data tables, with this information designed to support those who are interested in the evaluation and to accompany the Ageing Better impact evaluation report. (Edited publisher abstract)
Human rights and care homes for older people: a typology of approaches from academic literature as a starting point for activist scholarship in human rights and institutional care
- Authors:
- GREEN Caroline Emmer De Albuquerque, TINKER Anthea, MANTHORPE Jill
- Journal article citation:
- International Journal of Human Rights in Healthcare, early cite 4 August 2021,
- Publisher:
- Emerald
Care homes for older people attract human rights discourse. This has intensified during the Covid-19 pandemic, which disproportionately affected care home communities with various human rights ramifications. Activist scholarship in human rights can contribute to the protection and realisation of the rights of people living, working in and visiting care homes through high-quality research. This article reports the findings of an analysis of pre-pandemic scholarship that explored the ways authors approached the topic of human rights of older people in care homes. The aim was to produce a typology of approaches to the topic as a basis for critical reflection and as a starting point for future activist scholarship in gerontology, social policy and law. Reflexive thematic analysis of 23 international English-language peer-reviewed articles published between 1998 and March 2019 was undertaken. Analysis was framed in the context of the health and social care setting of England. The article reports the pertinent and common assumptions that care homes are ‘inherently risky’ places for the protection of the human rights of ‘vulnerable’ care home residents. The article highlights five types of approaches: the anti-institutional, the legalistic, the care quality, the equality approach, and the issue-based approach. (Edited publisher abstract)