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Older people receiving family-based support in the community: a survey of quality of life among users of 'Shared Lives' in England
- Authors:
- CALLAGHAN Lisa, BROOKES Nadia, PALMER Sinead
- Journal article citation:
- Health and Social Care in the Community, 25(5), 2017, pp.1655-1666.
- Publisher:
- Wiley
Shared Lives (adult placement) is a model of community-based support where an adult who needs support and/or accommodation moves into or regularly visits the home of an approved Shared Lives carer, after they have been matched for compatibility. It is an established but small service which has been used mainly by people with learning disabilities but which has the potential to offer an alternative to traditional services for some older people. However, there is little research on the outcomes for older users of Shared Lives. This paper presents findings from a survey of 150 older people using Shared Lives support across 10 Shared Lives schemes in England, which took place between June 2013 and January 2014. The aim was to identify outcomes for older users of Shared Lives and compare these to outcomes for older users of other social care services. In the absence of an ideal study design involving randomised allocation, statistical matching was used to generate a comparison group from the Adult Social Care Survey from 2011/12, with 121 cases matched to 121 Shared Lives cases. The main outcome measures were Social Care-Related Quality of Life (measured by the ASCOT) and overall quality of life. Findings indicated that Shared Lives can deliver good outcomes for older people, particularly for overall quality of life. In comparison to the matched group of older people using other forms of support, there was some evidence that Shared Lives may deliver better outcomes in some aspects of quality of life. Limitations to the research mean, however, that more work is needed to fully understand the role Shared Lives could play in supporting older people. (Publisher abstract)
Social well-being in extra care housing: emerging themes: interim report for the Joseph Rowntree Foundation
- Authors:
- CALLAGHAN Lisa, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2008
- Pagination:
- 103p., bibliog.
- Place of publication:
- Canterbury
This interim report presents the results of an evaluation of the first round of the Department of Health’s Extra Care Housing Funding Initiative (2004-2006). The main aim of the project is to examine the development of 19 of the 22 new build schemes opening between 2006 and 2008 from their implementation and to track residents’ experiences and health over time. This interim report describes the methodology, and reports on progress to date. In particular, it describes the initial findings for 6 of the schemes that opened in 2006: Brighton & Hove, East Riding, Havering, Northamptonshire, Peterborough, and West Sussex (Horsham DC). The early development of social life across the schemes is described, and some emerging themes highlighted. Across the 6 schemes, interviews were conducted with 33 residents and 11 members of staff. In each scheme, interviews were held with the manager and another member of staff who was involved in some way in the social life of the scheme. This report discusses the findings with regard to: the approach to social activity; activities, groups and events in place at 6 months; facilities available at 6 months; links with the local community; difficulties in establishing social life; factors aiding the development of social life; barriers to participation in social life; and the developing social climate.
The development of social well-being in new extra care housing schemes
- Authors:
- CALLAGHAN Lisa, NETTEN Ann, DARTON Robin
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2009
- Pagination:
- 60p., bibliog.
- Place of publication:
- York
The findings of a study conducted between to investigate the development of social well-being for older people moving into 15 new-build extra care housing schemes are reported. The report describes how schemes had begun to develop social activities and community during their first six months, identifying facilitators and barriers to social participation; considers the social climate or ‘atmosphere’ of the schemes one year after opening; discusses differences in individual social well-being one year after opening. Whilst there are some limitations to the study, the findings suggest that extra care housing an provide and environment supportive of social well-being. Key messages are summarised.
“I live with other people and not alone”: a survey of the views and experiences of older people using Shared Lives (adult placement)
- Authors:
- BROOKES Nadia, PALMER Sinead, CALLAGHAN Lisa
- Journal article citation:
- Working with Older People, 20(3), 2016, pp.179-186.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to report on the views and experiences of older people using Shared Lives (adult placement) in 2012/2013. Design/methodology/approach: As part of a survey collecting information about outcomes for older users of Shared Lives issues of whether it had made a difference to quality of life, and positive and negative experiences of support were explored. Findings: Questionnaires were returned by 150 older people using Shared Lives services. Findings suggest that this model of community-based support has a number of advantages for some older people, such as reducing social isolation and loneliness, promoting independence, choice and control, providing emotional support and increased well-being. Research limitations/implications: The questionnaire was self-completed and so responses were not followed up to provide deeper insights. Practical implications: Shared Lives is not appropriate for everyone but it is suggested that this option should form part of local commissioning strategies, be part of a range of options for social care practitioners to consider in their work with older people and helps to meet various current policy imperatives. Originality/value The potential of Shared Lives for older people is under-researched and this paper contributes to the literature in exploring the views of older people about family-based support in the community. (Publisher abstract)
Feeling in control: comparing older people's experiences in different care settings
- Authors:
- CALLAGHAN Lisa, TOWERS Ann-Marie
- Journal article citation:
- Ageing and Society, 34(8), 2014, pp.1427-1451.
- Publisher:
- Cambridge University Press
The promotion of choice and control for older people is a policy priority for social care services in the United Kingdom and is at the heart of recent drives to personalise services. Increasingly, we are seeing a move away from institutionalised care (e.g. in care homes), with extra care housing promoted as a purpose-built, community-based alternative to residential care for older people. However, whilst accounts of users' experiences in particular service types are plentiful, the use of different instrumentation and measures makes comparison between settings difficult. This paper compares data from four studies where participants were older people either living in care homes or extra care housing or receiving care at home. All of these studies asked participants to rate their control over daily life, using the Adult Social Care Outcomes Toolkit (ASCOT). This paper presents the results of an ordinal logistic regression analysis indicating that, after controlling for differences in age, ability to perform activities of daily living and self-rated health, setting had a significant effect on older people's sense of control. Residents in care homes and extra care housing report similar levels of control over daily life but consistently report feeling more in control than older people receiving care at home. Implications for policy and practice are discussed. (Edited publisher abstract)
Social well-being in extra care housing: an overview of the literature
- Author:
- CALLAGHAN Lisa
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2008
- Pagination:
- 29p., bibliog.
- Place of publication:
- Canterbury
This literature review was carried out as part of a project investigating social well-being in extra care housing. An interim report from the project, describing the methodology and reporting some very early findings, is also available. The aim of this literature review was: to identify how social well-being has been defined in the literature; to identify what factors affect social well-being; and to identify how social well-being could be measured in the present study. For the older people taking part in this project, social well-being is likely to be crucially influenced by moving to a housing-with-care setting. Therefore, this review focuses on the effect of environmental characteristics as well as both concrete and perceptual social factors on well-being. Searches were conducted of a large number of databases and of the internet. Social well-being is defined as the area of overall well-being involving social relationships, social participation, social networks, and social support. In terms of environmental characteristics, the literature covers the areas of physical design, approach taken to activity provision within the housing and care setting, links with the local community, and staffing and care. The literature on social factors includes friendships and social support, loneliness and isolation, social activity and participation, and social climate.
A directory for promoting social well-being in extra care housing and other settings
- Authors:
- EVANS Simon, VALLELLY Sarah, CALLAGHAN Lisa
- Publisher:
- DH Care Networks. Housing Learning and Improvement Network
- Publication year:
- 2010
- Pagination:
- 25p.
- Place of publication:
- London
This directory aims to identify and promote good practice for achieving social well-being. It is aimed at people from many different backgrounds, including older people, informal carers, commissioners, planners, managers and architects. Although the directory was initially based on research into extra care housing, much of the information it contains is likely to be relevant to other housing with care settings. This directory presents some ideas for good practice in promoting social well-being, and is grouped into five themes: general considerations; social interaction; design and planning; funding issues; and models of care. Where appropriate these ideas are supported by signposts to further information such as the Department of Health’s Housing Learning.