Search results for ‘Subject term:"older people"’ Sort:
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Elderly patients' perceptions of the readability and content of written information in palliative care
- Authors:
- PAYNE Sheila, et al
- Journal article citation:
- Generations Review, 10(4), December 2000, pp.6-7.
- Publisher:
- British Society of Gerontology
Presents the findings from a small qualitative study which examines how patients assess and use written information in palliative care.
A patient's experience of an NHS hospital: complaint and outcomes
- Author:
- WENGER G. Clare
- Journal article citation:
- Quality in Ageing, 9(2), June 2008, pp.4-11.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
The author presents a personal account of her experiences of six days in an NHS hospital in Wales. The article details the authors complaints and actions and comments made following the complaints.
Patient views of social service provision for older people with advanced heart failure
- Authors:
- GOTT Merryn, et al
- Journal article citation:
- Health and Social Care in the Community, 15(4), July 2007, pp.333-342.
- Publisher:
- Wiley
The objective of the present paper is to explore levels of social service provision, the barriers to receiving these services and the experiences of social service provision amongst older people with heart failure. Five hundred and forty-two people aged over 60 years with heart failure were recruited from UK general practices in four areas of the UK, and these subjects completed quality-of-life and service-use questionnaires every 3 months for 24 months, or until death. Forty patients participated in in-depth interviews. Data collection was conducted between September 2003 and March 2006. Only 24% (n = 127) of the 460 participants who had provided information about social services contact reported having received social services during the past 24 months. Significant associations between the level of social services contact and participant characteristics were identified, with women, participants over 75 years of age, participants living alone, and those with two or more comorbidities being more likely to report receipt of social services. The qualitative data identified key barriers to using social services, including: access problems; not wanting additional help; the negative experiences of friends; and carers substituting for statutory services. The few participants interviewed who had received social services reported mixed experiences, including problems with inappropriate and insufficient services. This study indicates that only a minority of older people with heart failure have contact with social services. Improving provision for this group involves tackling the barriers to access identified above, as well as ensuring that their views influence service planning and delivery.
Dignity in care: the views of patients and relatives
- Authors:
- GALLAGHER Ann, SEEDHOUSE David
- Journal article citation:
- Nursing Times, 22.10.02, 2002, pp.34-35.
- Publisher:
- Nursing Times
Preserving a patient's dignity is central to good care, but standards may often not live up to this ideal. Reports on a small pilot study that explores dignity in health care and the circumstances that may influence it.
To tell or not to tell: comparison of older patients' reaction to their diagnosis of dementia and depression
- Authors:
- JHA Arun, TABET Naji, ORRELL Martin
- Journal article citation:
- International Journal of Geriatric Psychiatry, 16(9), September 2001, pp.879-885.
- Publisher:
- Wiley
This study investigates the reaction of elderly patients to the disclosure of their diagnosis of dementia compared with depression. Elderly patients suffering from dementia and depression were asked to complete a questionnaire about the diagnosis and other aspects of their clinical summary sent to them by post. Demographic data included age, gender, marital status and occupation; degree of dementia or depression was established by administering the mini-mental state examination and the geriatric depression scale, respectively. Results showed most depressed and dementia patients liked the idea of reading their diagnosis but one quarter of dementia cases felt upset. Within the dementia group, the majority of patients with mild or severe dementia welcomed the idea of knowing their diagnosis; and 13 (100%) of the patients with vascular dementia wished to know (compared with 68% cases with Alzheimer's disease). Among dementia patients who also happened to be depressed, a higher proportion (60%) expressed an unfavourable view towards knowing their diagnosis, but only a minority (40%) of them were actually upset. Most older married females, especially those with depression and Alzheimer's disease, felt pessimistic afterwards. There was no significant difference between patients with dementia or depression in their wish to know their diagnosis. Patients with severe dementia, even if they felt upset, preferred to be told their diagnosis. Patients with vascular dementia tended to express a more favourable view.
Moving to a hostel: the perceptions of older people who move from hospital to hostel ('low level') care
- Authors:
- ATKINSON Anne, TILSE Cheryl, SCHLECHT Nilissa
- Journal article citation:
- Australian Social Work, 53(1), March 2000, pp.9-13.
- Publisher:
- Taylor and Francis
Reports on Australian research which aims to: explore the perceptions of older people regarding the process of transition from hospital and to hostel ('low level') care; examine their experiences of hostel living after transfer; and to develop, on the basis of these findings appropriate professional practice guidelines.
Dignity on the ward; the future of hospital care for older people; a conference at London's Royal College of Physicians on Monday 29 November 1999
- Author:
- HELP THE AGED,
- Publisher:
- Help the Aged
- Publication year:
- 1999
- Pagination:
- 7p.
The tip of the iceberg: a survey of complaints registered by Community Health Councils concerning the care of older people in NHS hospitals
- Author:
- WILLOCK Kim
- Publisher:
- Help the Aged
- Publication year:
- 1997
- Pagination:
- 12p.
- Place of publication:
- London
Multiple perspectives analysis of the implementation of an integrated care model for older adults in Quebec
- Authors:
- BRETON Mylaine, et al
- Journal article citation:
- International Journal of Integrated Care, 19(4), 2019, Online only
- Publisher:
- International Foundation for Integrated Care
Introduction: Integrated care models for older adults are increasingly utilised in healthcare systems to overcome fragmentations. Several groups of stakeholders are involved in the implementation of integrated care. The aim of this study is to identify the main concerns, convergences and divergences in perspectives of stakeholders involved in the implementation of a centralised system-wide integrated care model for older adults in Quebec. Theory and methods: Qualitative multiple-case study. Semi-structured interviews of key stakeholders: policymakers (n = 11), providers (n = 29), managers (n = 34), older adult patients (n = 14) and caregivers (n = 9), including document analysis. Thematic analysis of the views of stakeholders along the lines of the six dimensions of the Rainbow Model of Integrated Care. Results: While patients/caregivers were mostly concerned by their unmet individual needs, policymakers, managers and providers were concerned by structural barriers to integrating care. Stakeholders’ diverse perspectives indicated implementation gaps in a top-down implementation context. Conclusion: Mandated system-wide integration appears to have structural, organisational, functional, and normative transformations, but its clinical changes are more uncertain in view of the observed divergent perspectives of actors. It will be interesting to explore if the systemic changes are precursors of clinical changes or, on the contrary, explains the lack of clinical changes. (Edited publisher abstract)
‘The Future is Probably Now’: Understanding of illness, uncertainty and end‐of‐life discussions in older adults with heart failure and family caregivers
- Authors:
- IM Jennifer, et al
- Journal article citation:
- Health Expectations, 22(6), 2019, pp.1331-1340. Online only
- Publisher:
- Wiley
Background: Earlier end‐of‐life communication is critical for people with heart failure given the uncertainty and high‐risk of mortality in illness. Despite this, end‐of‐life communication is uncommon in heart failure. Left unaddressed, lack of end‐of‐life discussions can lead to discordant care at the end of life. Objective: This study explores patients' and caregivers’ understanding of illness, experiences of uncertainty, and perceptions of end‐of‐life discussions in advanced illness. Design: Interpretive descriptive qualitative study of older adults with heart failure and family caregivers. Fourteen semi‐structured interviews were conducted with 19 participants in Ontario, Canada. Interviews were transcribed verbatim and content analysis was used to analyse the data. Main results: Understanding of illness was shaped by participants’ illness‐related experiences (e.g. symptoms, hospitalizations and self‐care routines) and the ability to adapt to challenges of illness. Participants were knowledgeable of heart failure management, and yet, were limited in their understanding of the consequences of illness. Participants adapted to the challenges of illness which appeared to influence their perception of overall health. Uncertainty reflected participants’ inability to connect manifestations of heart failure as part of the progression of illness towards the end of life. Most participants had not engaged in prior end‐of‐life discussions. Conclusion: Detailed knowledge of heart failure management does not necessarily translate to an understanding of the consequences of illness. The ability to adapt to illness‐related challenges may delay older adults and family caregivers from engaging in end‐of‐life discussions. Future research is needed to examine the impact of addressing the consequences of illness in facilitating earlier end‐of‐life communication. (Edited publisher abstract)