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A Patient Reported Experience Measure (PREM) for use by older people in community services
- Authors:
- TEALE E.A., YOUNG J.B.
- Journal article citation:
- Age and Ageing, 44(4), 2015, pp.667-672.
- Publisher:
- Oxford University Press
Background: Intermediate care (IC) services operate between health and social care and are an essential component of integrated care for older people. Patient Reported Experience Measures (PREMs) offer an objective measure of user experience and a practical way to measure person-centred, integrated care in IC settings. Objective: To describe the development of PREMs suitable for use in IC services and to examine their feasibility, acceptability and scaling properties. Setting: 131 bed-based and 143 home-based or re-ablement IC services in England. Methods: PREMs for each of home- and bed-based IC services were developed through consensus. These were incorporated into the 2013 NAIC and distributed to 50 consecutive users of each bed-based and 250 users of each home-based service. Return rates and patterns of missing data were examined. Scaling properties of the PREMs were examined with Mokken analysis. Results: 1,832 responses were received from users of bed-based and 4,627 from home-based services (return rates 28 and 13%, respectively). Missing data were infrequent. Mokken analysis of completed bed-based PREMs (1,398) revealed 8 items measuring the same construct and forming a medium strength (Loevinger H 0.44) scale with acceptable reliability (ρ = 0.76). Analysis of completed home-based PREMs (3,392 records) revealed a medium-strength scale of 12 items (Loevinger H 0.41) with acceptable reliability (ρ = 0.81). Conclusions: The two PREMs offer a method to evaluate user experience of both bed- and home-based IC services. Each scale measures a single construct with moderate scaling properties, allowing summation of scores to give an overall measure of experience. (Publisher abstract)
Dementia: decisions for dignity
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2011
- Pagination:
- 28p.
- Place of publication:
- Edinburgh
The Mental Welfare Commission is an independent organisation working to safeguard the rights and welfare of people with a mental illness, learning disability or other mental disorder; its duties are set out in mental health and incapacity law. One of the ways in which it monitors individual care and treatment is through a visits programme. This report reflects findings from a programme of visits across Scotland in 2010 to people with dementia in acute wards in general hospitals. 50 hospital wards across Scotland were selected, mainly acute medicine for older people, and wards were given about 6 weeks notice of visits. The Commission visited 41 wards in total and met with and reviewed the care of 194 people with dementia. The report summarises the areas examined and the findings, and includes examples of comments from individuals, staff and Commission visitors. It sets out key messages for consideration by NHS boards, local authorities, hospital managers, clinical and professional leaders, and others, focusing on admission to hospital, the care journey, consent and lawful medical treatment, safety and restrictions, the care environment, staff training and specialist mental health support, and discharge from hospital. It also makes recommendations for NHS boards.
Older people's views of continuing care
- Author:
- FORD Pauline
- Journal article citation:
- Nursing Times, 2.4.97, 1997, pp.50-51.
- Publisher:
- Nursing Times
Argues that more should be done to find out what older people in continuing care think about the service they receive.
Let's go wheelies: ill-conceived behaviours amongst staff caring for people with dementia
- Author:
- LODGE Brian
- Publisher:
- British Association for Service to the Elderly
- Publication year:
- 1992
- Pagination:
- 69p.
- Place of publication:
- Newcastle-under-Lyme
Series of stories illustrating ill-conceived behaviour among staff caring for people with dementia, mainly in hospital settings. Each story is accompanied by suggestions for alternative, more appropriate behaviour from the staff member involved.
Consulting consumers in the NHS: a guideline study; services for elderly people with dementia living at home
- Author:
- NATIONAL CONSUMER COUNCIL
- Publisher:
- National Consumers Council
- Publication year:
- 1990
- Pagination:
- 68p.
- Place of publication:
- London
Research study looking at the use of performance measures for examining the effectiveness of services. Looks at what dementia sufferers and their carers need from services and at what service providers should be trying to achieve. Contains a section on measuring effectiveness by listening to consumers and using their views to set goals. Contains sample questionnaires and checklists.
Listen to patients, speak up for change
- Author:
- PATIENTS ASSOCIATION
- Publisher:
- Patients Association
- Publication year:
- 2011
- Pagination:
- 103p.
- Place of publication:
- Harrow
Firsthand accounts of the experiences of care of 17 older patients from across the NHS are presented in this report. Through the report, the Patients Association aims to illustrate concerns about the quality of nursing and medical care received by some patients. The introduction notes that substandard care being given to even a small percentage of NHS patients every year equates to very large numbers of people. The report includes a call to action, proposing that the Department of Health should instigate establishment of a pilot scheme introducing independent clinical patient safeguarding champions, should conduct a comprehensive review of the NHS complaints process and introduce a national survey for all complainants, and should consider immediately introducing a national survey of carers of inpatients similar to the survey conducted by the Alzheimer's Society.
Waiting for change: how the NHS is responding to the needs of older people
- Authors:
- AGE CONCERN, HELP THE AGED
- Publisher:
- Age Concern; Help the Aged
- Publication year:
- 2009
- Pagination:
- 13p.
- Place of publication:
- London
This report by Age UK (formerly Age Concern) describes how the NHS, politicians and health professionals are failing to prioritise issues which older patients most value. The report focuses on the needs of the over 80s, and concluded that this group have a clear idea of what they want from health services, but all too often this is not delivered. Current NHS targets and performance indicators fail to adequately address the issues that matter most to older people. Findings indicate that face to face and flexible appointments with health professionals they know and trust and better coordination of care are among those things older people want from community-based healthcare. The study also highlighted the importance placed on social aspects of healthcare, particularly for those older people who are isolated in their own homes. The study also identified privacy, good relationships with staff and retaining choice and control over daily routines to be vital for positive patient experience, within hospital settings. The report stresses how these needs are not always met. Recent Government figures show that 47 percent of inpatients said that they were not, or only partially, involved as much as they wanted to be in decisions about their care and treatment in hospital.
New beginnings: towards patient and public involvement in primary health care
- Editors:
- GILLAM Stephen, BROOKS Fiona
- Publisher:
- Kings Fund
- Publication year:
- 2001
- Pagination:
- 168p.,bibliogs.
- Place of publication:
- London
Explores the issues related to public and patient involvement in primary care. Begins by describing the theoretical and policy contexts that are shaping user involvement currently; why user involvement is regarded as important; and its role in primary care at organisation level and in the individual consultation. Moves on to consider a range of case studies of involvement of different types of user, including women, members of ethnic minorities, older people and people with mental health problems. Concludes with an overview of the challenges remaining and suggestions for future development.
From medical patients to health care consumers: decisional capacity and choices to purchase coverage and services
- Author:
- KAPP M.B.
- Journal article citation:
- Aging and Mental Health, 3(4), November 1999, pp.294-300.
- Publisher:
- Taylor and Francis
The USA is undergoing a fundamental shift in health and long-term care financing and delivery away from extensive government regulation and toward greater consumer choice and direction in both the public and private sectors. This article examines issues concerning the evaluation of decisional capacity to act as a health and long-term care consumer in the new marketplace model, as well as questions pertaining to surrogate decision-making for individuals deemed incapacitated to make choices independently as health and long-term care consumers.
Health of ethnic minority elders in London: respecting diversity
- Authors:
- LOWDELL Caroline, et al
- Publisher:
- East London and City Health Authority. Directorate of Public Health. Health of L
- Publication year:
- 2000
- Pagination:
- 210p.,tables.
- Place of publication:
- London
Seeks to identify the impact of the shift in the ethnic balance of London's older population on its health, and on health and related services in the capital. Analyses the available information about older people from ethnic minority groups, their health and the services they need and use in London, and makes recommendations for the improvement of these services. Covers policy background; demographic data; the relationships between socio-economic status, ethnicity, health behaviours and health status;patterns of hospital admission; predictive models for epidemiology; and issues of quality and access in health and social services.