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The power of observation: a reliable method for measuring outcomes in care homes?
- Authors:
- TOWERS Ann-Marie, et al
- Journal article citation:
- Generations Review, 20(2), April 2010, Online only
- Publisher:
- British Society of Gerontology
Measuring and monitoring dignity, quality of care and outcomes for residents of care homes presents particular methodological challenges. It becomes increasingly difficult to ascertain the views of care home residents as their level of cognitive and communication abilities decline. This article reports on a project to develop a tool for measuring outcomes for people in residential care, based on observations by pairs of fieldworkers. Indications are that with some future development of the tool and the necessary additional guidance and training, this approach could be a reliable methodology for measuring outcomes in care homes in the future.
Quality of life in group homes and older persons' homes
- Authors:
- HIGGINS Laura, MANSELL Jim
- Journal article citation:
- British Journal of Learning Disabilities, 37(3), September 2009, pp.207-212.
- Publisher:
- Wiley
A non-equivalent comparison group design was used to compare the quality of life of 59 people in three groups; older people without an intellectual disability living in older people's homes (n = 20), older people with an intellectual disability living in older people's homes (n = 19) and older people with an intellectual disability living in intellectual disability homes (n = 20). Data were collected on participant characteristics, adaptive behaviour and three aspects of quality of life; community involvement, participation in domestic living and choice making. The three groups were comparable in terms of gender, ethnicity and additional impairments but the older people without an intellectual disability were older and had more adaptive skills than the other groups. Older people with an intellectual disability experienced better quality of life outcomes in terms of participation in meaningful activity and community access when they lived in intellectual disability homes compared with older people's homes. It was not possible to achieve reliability on the measure of choice-making. This study provides some evidence to suggest that older people with an intellectual disability may be best served in intellectual disability homes rather than older people homes and that it is an area of research which needs further exploration.
Duration of stay and outcome for inpatients on an basement ward for elderly patients with cognitive impairment
- Authors:
- BALL Sue, et al
- Journal article citation:
- Quality in Ageing, 5(2), October 2004, pp.12-20.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
Reports a prospective study of a consecutive group of 101 patients who died on or were discharged from an acute assessment ward for elderly patients with cognitive impairment. Clinical characteristics were recorded according to an in-patient dementia care pathway, including mini-MOUSEPAD, Crichton activities of daily living, Mini-Mental State Examination and the Burvill physical health score evaluations. Outcome measures were duration of stay, destination on discharge or death on the ward. Mean duration of stay was 7.9 weeks. Self-funding status and lack of behaviourial and psychological complications were associated with reduced duration of. Discharge home was strongly predicted by having a spouse at home, and the need for nursing home other than residential care was related to severity of cognitive impairment. Concludes that patients can expect to stay in hospital for 8 weeks but 2 areas of concern are highlighted: the importance of community rehabilitation funding for patients with memory disorders and the importance of a spouse at home to look after the patient.
Improving the quality of life for people with learning disabilities as they grow older: a challenge for providers
- Author:
- WARD Cally
- Publisher:
- Association for Real Change
- Publication year:
- 2013
- Pagination:
- 24
- Place of publication:
- Chesterfield
This document is uses eight outcomes statements to identify what learning disability providers must do to meet the Real Change Challenge of improving the quality of life for people who have a learning disability as they grow older. It provides advice and sets out practical steps on how to ensure that people with learning difficulties continue to have lives that are healthy, happy and fulfilled. The eight outcomes aim to ensure that people are supported, involved, have good health, feel safe, are able to take part in activities, are in contact with people in their social networks, are supported when people close to them die, and that they can come to terms with their own end of life. Bullet points provide advice on how to deliver outcomes and implications for staff development. (Original abstract)
Siblings of adults with developmental disabilities: psychosocial outcomes, relationships, and future planning
- Authors:
- HELLER Tamar, ARNOLD Catherine Keiling
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.16-25.
- Publisher:
- Wiley
As a result of longer lifespan and the aging of their parents, siblings play an increasing role in the lives of people with intellectual and developmental disabilities. In this article, the authors reviewed the literature on siblings of adults with intellectual and developmental disabilities, concentrating on three main questions: what are the psychosocial outcomes of having a sibling with an intellectual and developmental disabilities on the sibling without a disability?; what factors relate to the nature of the sibling relationship?; and what factors relate to future planning, including expected and future relationships when parents can no longer provide care? The authors examined 23 relevant published studies for the period 1970–2008 on adult siblings over 21 years of age that addressed the relationships, psychosocial outcomes, and involvement in future planning. In conclusion, the authors suggest that these studies present a mixed, but positive picture of the psychosocial outcomes of having a sibling with a disability. They also indicate that siblings tend to have long-lasting close relationships with their siblings with a disability and anticipate taking on greater supportive roles as both grow older.
Individuals with developmental disabilities and their caregivers
- Authors:
- MCCALLION Philip, NICKLE Tara
- Journal article citation:
- Journal of Gerontological Social Work, 50(S1), 2008, pp.245-266.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Adults with developmental disabilities, such as Down’s syndrome or learning disability, are surviving for longer and the number of older Americans with such disabilities is expected to double by 2020. Many will be in the care of their parents and, as they age, siblings. Effective intervention to counter problem behaviours and mental health problems, and to promote positive ageing, is vital and this review examines the literature in the field. The evidence base (generally of group interventions for ‘future planning’) is small and methodologically weak, making it difficult to draw reliable conclusions. Although some positive outcomes are reported, further and more robust research is needed. The paper concludes with a ‘treatment resource appendix’ directed at American social workers. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Does assessment make a difference for people with dementia? The effectiveness of the Aged Care Assessment Teams in Australia
- Authors:
- HOWE Anna L., KUNG Francis
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(3), March 2003, pp.205-210.
- Publisher:
- Wiley
The needs of individuals with dementia and other psychiatric problems of old age have received increased attention in Australia over the last decade. This paper reports on the role of Aged Care Assessment Teams (ACATs) in managing these clients, and the extent to which they are differentiated from other clients in the assessment process and outcomes recommended. Data on some 26,500 clients seen by ACATs in Victoria in the second half of 1999 are analysed to show firstly, the relationship between a diagnosis of dementia and reporting of disability in orientation, secondly, characteristics of clients with and without a diagnosis of dementia and lastly, outcomes for groups of clients defined on the basis of a diagnosis of dementia and disability in orientation.
Gaps in the evidence on improving social care outcomes: findings from a meta-review of systematic reviews
- Authors:
- DICKSON Kelly, et al
- Journal article citation:
- Health and Social Care in the Community, 25(4), 2017, p.1287–1303.
- Publisher:
- Wiley
Adult social care continues to be a central policy concern in the UK. The Adult Social Care Outcomes Framework (ASCOF) is a range of measures nationally available to drive forward improvement on outcomes and quality in local councils. While there is an emphasis on improving transparency, quality and outcomes, drawing on research evidence to achieve these aims is often difficult because the evidence is not easily identifiable, is disparate or of variable quality. The authors conducted a meta-review to analyse and summarise systematic review-level evidence on the impact of interventions on the four outcomes set out in the ASCOF: quality of life, delaying and reducing the need for services, satisfaction with services and safeguarding of vulnerable adults. This paper focuses on the availability of review-level evidence and the presence of significant gaps in this evidence base. A range of health and social care databases were searched, including MEDLINE, ASSIA and The Cochrane Library in January and February 2012. All systematic reviews evaluating the efficacy of social care interventions for improving ASCOF outcomes for older people, people with long-term conditions, mental health problems or physical and/or learning disabilities were eligible. Two reviewers independently screened systematic reviews for quality and relevance and extracted data; 43 systematic reviews were included, the majority of which examined the impact of interventions on quality of life (n = 34) and delaying and reducing the need for support (n = 25). Limited systematic review-level evidence was found regarding satisfaction with services and safeguarding. There were also significant gaps in relation to key social care interventions and population groups. Research priorities include addressing these gaps and the collation of data on interventions, outcomes and populations more closely related to social care. Overall, a more relevant, comprehensive and robust evidence base is required to support improvement of outcomes for recipients of adult social care. (Edited publisher abstract)
Measuring the outcomes of care homes: final report
- Authors:
- NETTEN Ann, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2010
- Pagination:
- 117p., bibliog.
- Place of publication:
- Canterbury
The authors report on a project which developed and tested an approach to measuring and monitoring outcomes of the care and support provided to residents of care homes for older people and people with learning disabilities. The research was part of the ‘Measuring Outcomes for Public Service Users’ (MOPSU) project, which was funded by the Treasury under the Invest to Save budget and led by the Office for National Statistics (ONS). The domains that comprise social care related quality of life (SCRQOL) formed the basis of the measures used in the study.
A textbook of social work
- Authors:
- SHELDON Brian, MACDONALD Geraldine
- Publisher:
- Routledge
- Publication year:
- 2009
- Pagination:
- 429p., bibliog.
- Place of publication:
- London
This publication is a comprehensive, evidence-based guide to social work practice. It strikes a balance between the need for social workers to understand the social, economic, cultural, psychological and interpersonal factors which give rise to clients' problems, and the need for them to know how best to respond with practical measures. Divided into three accessible parts, the text covers context and theory in the first part and social work skills and methods in the second part. The final part looks at the major specialisms, including, among others, chapters on: children, people with mental health problems; older people; chronic illness and physical disability; learning disability; juvenile and adult offenders; substance misusers.