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Older adults’ demand for integrated care and its influencing factors: a scoping review
- Authors:
- WANG Zhenyu, LIU Zhihan
- Journal article citation:
- International Journal of Integrated Care, 21(4), 2021, p.28. Online only
- Publisher:
- International Foundation for Integrated Care
Introduction: Integration has become a major concern for governments, healthcare and aged care systems in many countries. However, the research on and implementation of integrated care in China started relatively late, and there is no review on the needs of older adults with regard to integrated care and the influencing factors. Therefore, this paper aims to provide a scoping review by searching, evaluating, and summarizing the Chinese and international literature on the need for and the factors influencing integrated care for older people. In addition, this review highlights evidence of the gap between China and the world in integrated care. Methods: Using a framework proposed by Arksey and O’Malley, a systematic search of 12 domestic and international databases was conducted. Of the 890 original studies retrieved, those that met the established inclusion criteria were screened and scored using the Ekman quality assessment tool. The qualitative description method was used to summarize the demand for integrated care for older adults and the influencing factors. Results: A total of 49 papers were included. These studies were from eleven countries on five continents (most commonly China and the US) and were mostly cross-sectional quantitative studies that surveyed the integrated care needs of older people living in homes/communities or long-term care facilities. The analysis shows that existing research on the integrated care needs of older people in China adopts a single perspective and is inadequate and unsystematic in its assessment; the integrated care needs of older adults and the factors influencing them are multifaceted; and both in China and internationally, the community-home care scenario most consistently meets the needs and expectations of older adults. Conclusion: Although there is no uniform definition of integrated care in China or abroad and each country has its own national definition and system of integrated care, there are certain commonalities regarding the needs of older adults and the factors that influence them across countries. Our research reveals a gap between China and the international community in terms of integrated care. (Edited publisher abstract)
Diversity in older age: older refugees and asylum seekers
- Author:
- CENTRE FOR POLICY ON AGEING
- Publisher:
- Centre for Policy on Ageing
- Publication year:
- 2016
- Pagination:
- 9
- Place of publication:
- London
This review summarises findings from selected literature and statistics on older refugees and asylum seekers. It is one of a series of rapid reviews commissioned by Age UK into the diversity that exists in the older population and the inequalities faced by specific groups of older people. It provides a demographic overview of the number of older refugees and asylum seekers in Europe and the UK and highlights some of their specific needs. Issues facing older refugees and asylum seekers include low income, language barriers, the risk of loneliness and a lack of social networks, and often a loss of social status. (Edited publisher abstract)
Diversity in older age: older offenders
- Author:
- CENTRE FOR POLICY ON AGEING
- Publisher:
- Centre for Policy on Ageing
- Publication year:
- 2016
- Pagination:
- 14
- Place of publication:
- London
This review summarises findings from selected literature and statistics on older offenders. It is one of a series of rapid reviews commissioned by Age UK into the diversity that exists in the older population and the inequalities faced by specific groups of older people. Areas covered include: demographics, health and care needs, resettlement planning for prison release, and end of life care and death in prison. (Edited publisher abstract)
Palliative care: the solid facts
- Editors:
- DAVIES Elizabeth, HIGGINSON Irene J., (eds.)
- Publisher:
- World Health Organization. Regional Office for Europe
- Publication year:
- 2004
- Pagination:
- 32p.
- Place of publication:
- Copenhagen
The purpose of this booklet, intended mainly for decision makers and health professionals at all levels, is to provide a concise overview of the best available evidence on the concept of palliative care and related services. It expresses a European viewpoint. Drawing mainly on evidence from a systematic review of scientific evidence from Europe and North America, it discusses: why changes in populations make care towards the end of life a public health issue, the emerging needs for care towards the end of life, what palliative care is, the importance of individual rights, preferences and options, the evidence for effective palliative care, and the need to ensure access to palliative care for vulnerable groups. It also looks at how to develop programmes to improve the quality of palliative care, how to improve education and training in palliative care for health professionals, the need to increase public awareness of palliative care issues and options, and the kind of research and development on palliative care that will help policy makers. A separate companion booklet, Better palliative care for older people, considers the care of older people.
Self-neglect in later life
- Author:
- JOHNSON Julia
- Journal article citation:
- Health and Social Care in the Community, 4(4), July 1996, pp.226-233.
- Publisher:
- Wiley
Reviews the research literature on self-neglect which comes primarily from the medical profession. It is argued that evidence that gross self-neglect constitutes a specific psychiatric syndrome (commonly referred to as Diogenes syndrome) is scant. Given current moves to make legal provision for the protection of 'vulnerable' older people, more rigorous research into self-neglect is required.
Neglect of older people: touching on forensic and pathophysiological aspects
- Authors:
- ALTENDORF Annette, et al
- Journal article citation:
- Gerontologist, 60(6), 2020, pp.e449-e465.
- Publisher:
- Oxford University Press
Neglect of older people is common and may result in fatal and nonfatal outcomes. Normal changes of aging and disease-related symptoms may overlap with markers of neglect and lead to under-detection. This review aims to delineate medical, psychiatric, and pathophysiological indicators in the victim—identified in forensic case reports—to point out areas of overlap and raise awareness in Health Care Professionals.Research Design and Methods: Medical and forensic databases were searched with the search terms: neglect, elder, elderly, forensic, homicide for detailed case reports on elder neglect. Cases were reviewed as to victim age, sex, medical/psychiatric diagnosis, perpetrator, victim-to-perpetrator relationship, cause of death (if fatal), location of incident, autopsy findings (if fatal), and ancillary studies. A total of 168 publications were retrieved, of these 11 publications, containing a total of 25 cases, yielded sufficient detail on each case to be included in the qualitative analysis. Results: Neglect is associated with poor physical, psychological, and mental health. Neglect can be a direct cause of death or contribute to a fatal outcome by exacerbating existing conditions. Red flags of neglect included malnutrition, dehydration, poor hygiene, untreated decubitus ulcers, hypothermia, contractures, and an uncooperative caregiver. However, incontrovertible evidence of neglect is not always easy to obtain due to age and disease-related changes. Discussion and Implications: The findings document the extent and seriousness of elder neglect and highlight the importance of detailed documentation as well as collaboration between clinicians, allied health professionals, law enforcement and medical forensic services to improve patient outcomes and reduce the risk of further incidents. (Publisher abstract)
Ageing carers and intellectual disability: a scoping review
- Authors:
- MAHON Aoife, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 20(4), 2019, pp.162-178.
- Publisher:
- Emerald
Purpose: Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK. Design/methodology/approach: A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings. Findings: Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed. Originality/value: This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers. (Edited publisher abstract)
Utilising carer related research and knowledge: a scoping review and information resource. Research findings
- Authors:
- LARKIN Mary, MILNE Alisoun, HENWOOD Melanie
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2019
- Pagination:
- 5
- Place of publication:
- London
A summary of key findings from a scoping review on carers and caring. The review carried out searches between June and December 2016, retrieving a total of 3,434 references. The resources were classified into four categories: the impact of care; carer variables - the characteristics and features of different types of carer and caring situations; Type of care - the nature of needs of the cared for person, and the features of the care situation; and Support and carers. Key findings include that: caring is extremely diverse and involves all sections and age groups of the population; although there are similarities in the experiences of carers, all caring is unique; and that knowledge about groups of 'hard to-reach' carers remains relatively poor and there are deficits in relation to BAME carers and LGBT groups. The report also outlines the implications of these findings for policy, practice and research. (Edited publisher abstract)
The 1960s baby boomers: future needs and preferences
- Authors:
- YOUNG Aideen, TINKER Anthea
- Journal article citation:
- Working with Older People, 21(4), 2017, pp.215-223.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to consider the likely needs and priorities of the 1960s baby boomers in later life (defined as those born in this country between 1960 and 1969 inclusive), based on their characteristics outlined in the accompanying paper. Design/methodology/approach: A non-systematic search of academic and grey literature plus key policy and statistical data from sources including the Office for National Statistics to identify studies and data relevant to people born in the 1960s in the UK. Findings: The 1960s baby boomers are characterised by high levels of education and technological proficiency and a youthful self-image. They have longer working lives and display greater levels of consumption than previous cohorts. These attributes will likely make this a highly demanding group of older people. Maintaining their health and function is important to this group so there is a scope for products that enable active and healthy ageing. Relatively high levels of childlessness may give rise to innovative housing solutions. At the same time, products that help the baby boomers stay independent at home will help alleviate pressure on social care. Originality/value: There has been little examination of the needs of the 1960s baby boomers in the UK. Given that they stand on the brink of later life, it is timely to consider their likely needs as older people. In view of the size of this cohort, this group’s requirements in later life provide a significant opportunity for businesses to fill the current gaps in the market. Moreover, in the context of increasing neoliberalism, innovations that reduce the dependence of this large cohort on the state and facilitate self-reliance will benefit individuals and society. (Publisher abstract)
Ageing with a unique impairment: a systematically conducted review of older deafblind people's experiences
- Author:
- SIMCOCK Peter
- Journal article citation:
- Ageing and Society, 37(8), 2017, pp.1703-1742.
- Publisher:
- Cambridge University Press
Little is known about the experiences of people ageing with impairments; social gerontology has largely focused on those ageing into disability rather than those ageing with disability. This paper synthesises existing knowledge to determine what is known about the experiences of those ageing with deafblindness. A comprehensive literature search was undertaken between April 2013 and May 2014. The review method was informed by systematic review principles. A total of 24 references were identified for inclusion. No studies examining deafblind people's experience of ageing and old age specifically were found, suggesting that those ageing with deafblindness are an under-studied sub-group within the deafblind population. However, deafblind people describe ageing experiences in studies exploring their lives generally, and in personal accounts of living with the impairment. Practitioner-authored material also explores the topic. Similarities in experience were identified between those ageing with deafblindness and those ageing with other impairments: ongoing change and consequent need for adaptation; a particular relationship between ageing and impairment; a sense that whilst one can learn adaptive strategies having lived with impairment for many years, it does not necessarily get easier; and a particular relationship with care and support services. These experiences illustrate the unique nature of ageing with impairment, and challenge gerontologists to engage in further research and theorising in the field of disability in later life. (Publisher abstract)