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The end of life within social work literature: a conceptual review
- Authors:
- HOLLAND Margaret M., PROST Stephanie Grace
- Journal article citation:
- OMEGA - Journal of Death and Dying, 82(4), 2021,
- Publisher:
- Sage
The current conceptual review sought to identify and describe how the end of life was conceptualized and operationalized in top-ranking, peer-reviewed social work journals considering the highly individualized and multidimensional experience of dying put forth by modern scholars and social work practitioners. An iterative content analysis of included articles (N = 103) revealed six themes within reported definitions and four themes within eligibility criteria. Definitions (n = 66) related to treatment responsiveness, the death process, dying, prognosis, admission to specific services, and old age. Eligibility criteria (n = 18) related to proxy assessment, diagnosis, prognosis, and functional ability assessments. Over one-third of included articles did not define what was meant by the end of life (36%; n = 37) and the majority did not include eligibility criteria (83%; n = 85). In conclusion, the complex lived experience of dying was not manifest within included articles raising important implications for research (e.g., measurement, meta-analysis) and social work practice (viz. service eligibility). (Edited publisher abstract)
The role of ethnicity in end-of-life care in care homes for older people in the UK: a literature review
- Authors:
- BADGER Frances, et al
- Journal article citation:
- Diversity in Health and Care, 6(1), March 2009, pp.23-29.
- Publisher:
- Radcliffe Publishing
Care homes for older people are major providers of end-of-life care. There are over half a million deaths a year in the UK, the vast majority occurring among older people, and one in five members of the population dies in a care home. Ensuring the provision of high quality end-of-life care in care homes for older people is an important healthcare issue, and has recently been scrutinised as part of an overall review of end-of-life care in the UK. It is acknowledged that little is known either about the numbers of people from black and minority ethnic groups who are resident in care homes, or about the extent to which their end-of-life care needs are addressed in line with their specific requirements. This paper summarises the current research evidence on cultural issues relating to ethnicity in end-of-life care in care homes, identifying the need for both monitoring and research data on the experiences and perspectives of residents from black and ethnic minorities, and their family carers.
What impact do setting and transitions have on the quality of life at the end of life and the quality of the dying process?
- Authors:
- MEZEY Mathy, et al
- Journal article citation:
- Gerontologist, 42(Special Issue III), October 2002, pp.54-67.
- Publisher:
- Oxford University Press
The aim of this article was to identify major research needs related to quality of life at the end of life and quality of the dying process for vulnerable older people at home, in assisted living facilities, in skilled nursing facilities, and in prisons. Review and analysis of the literature was used. Few studies address actively dying patients and the reasons for transfers between home and other settings. Existing studies are primarily anecdotal, descriptive, have small samples, and involve a single setting. Participant decisional capacity is a barrier to conducting research in these settings.
Measurement of quality of care and quality of life at the end of life
- Authors:
- TILDEN Virginia P., et al
- Journal article citation:
- Gerontologist, 42(Special Issue III), October 2002, pp.71-80.
- Publisher:
- Oxford University Press
Consumers and providers demand better indicators for quality of care and quality of life at the end of life. This article presents recommendations for advancing the science of measurement at end of life. Measurement bridges the conceptual and operational levels of scientific research, clinical care, and quality improvement.
Assessment of spirituality and religion in later life: acknowledging clients' needs and personal resources
- Authors:
- ORTIZ P.A. Larry, LANGER Nieli
- Journal article citation:
- Journal of Gerontological Social Work, 37(2), 2002, pp.5-21.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article presents a brief set of questions to be used in direct practice encounters with the aged. Founded on a body of research literature that suggests a positive relationship between higher levels of spiritual and religious activities and well being among the aged. Open ended questions are designed to assist practitioners working with the elderly explore the role religion and spirituality play in their lives with respect to affective and instrumental support and meaning making. This short inventory can be integrated into any assessment or at any point in the helping relationship.
Ethics and dementia: mapping the literature by bibliometric analysis
- Authors:
- BALDWIN Clive, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 18(1), January 2003, pp.41-54.
- Publisher:
- Wiley
This paper reports on a bibliometric analysis of keywords in the literature on ethics and dementia during the period 1980-2000. Keywords were drawn from titles, abstracts and keyword fields of 14 bibliographic databases and clustered in to 19 categories. These categories were then examined for their frequency and co-occurrences. Four categories appear consistently and frequently in the literature: professional care, end-of-life issues, decision-making and treatment. Other issues come and go (such as quality-of-life issues) while others appear to respond to outside events (e.g. feeding issues). The research literature is based predominantly on surveys or studies soliciting responses to predefined issues. Little research has been undertaken to establish the range of ethical issues for either family members or professionals
The experience of dying: an ethnographic nursing home study
- Author:
- KAYSER-JONES Jeanie
- Journal article citation:
- Gerontologist, 42(Special Issue III), October 2002, pp.11-19.
- Publisher:
- Oxford University Press
This article reviews the literature on "The Experience of Dying" and presents data from a larger, ongoing study of an ethnography of dying in nursing homes. The purpose of the ethnographic study was to investigate the process of providing end-of-life care to residents who were dying in nursing homes. The review of the literature disclosed that research on the experience of dying is limited; most of the studies have been conducted in acute care hospitals among people who were dying of cancer. The ethnographic study found that lack of attention to cultural needs, cognitive status, inadequate staffing, and inappropriate and inadequate communication between health care providers and nursing home residents and their families were the predominant factors that influenced the experience of dying.