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Care home census 2013: statistics on adult residents in care homes in Scotland
- Publishers:
- ISD Scotland, Information Services Division, NHS National Services Scotland
- Publication year:
- 2013
- Pagination:
- 35
- Place of publication:
- Edinburgh
This publication presents information on adult residents in Care Homes in Scotland collected as part of the annual Scottish Care Home Census (SCHC) held at 31st March 2013. The census covers all adult care homes in Scotland that are registered with the Care Inspectorate and data are collected via the Care Inspectorate’s web based “eForms” system. The report also includes care homes for older people, and care homes for other main client groups (adults with physical disabilities, adults with mental health problems or adults with learning disabilities). As at 31st March 2013 there were 1,282 care homes for adults in Scotland providing 42,755 places to 36,578 residents. This report notes that for the 2011 census, ISD Scotland (Ihe Information Services Division of NHS National Services Scotland) published two reports: an interim report and a detailed findings report. For the 2012 census onwards, ISD has produced a single annual report. (Edited publisher abstract)
The road barely taken: funerals, and people with intellectual disabilities
- Author:
- FORRESTER-JONES Rachel
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 26(3), 2013, pp.243-256.
- Publisher:
- Wiley
This small exploratory UK study sought to investigate how practitioners deal with the topic of funerals and to capture the views of older people with and without intellectual disabilities about funerals. A semi-structured questionnaire was administered to 40 service managers, and five focus groups for 26 people with and without intellectual disabilities were facilitated. Questionnaires were subjected to thematic content analysis; focus group data were analysed using a grounded theory approach. Managers demonstrated confusion about organizing the funerals of people with intellectual disabilities. Few differences existed between the views of people with and without intellectual disabilities in relation to funerals and a number of core themes were identified including the lack of opportunities to attend funerals. More thought and practical interventions are needed to support vulnerable people to participate in the funerals of people they know. (Edited publisher abstract)
Self-Injurious behavior in older adults with intellectual disabilities
- Authors:
- GLAESSER Richard S., PERKINS Elizabeth A.
- Journal article citation:
- Social Work: A journal of the National Association of Social Workers (NASW), 58(3), 2013, pp.213-221.
- Publisher:
- Oxford University Press
Self-injurious behavior (SIB) is a distressing type of problem behaviour that may be exhibited in individuals with intellectual disabilities (IDs). This article provides an overview of SIB, its underlying causes and functions, as well as other key variables associated with its manifestation. Adults with IDs are routinely living longer. Given this rapidly emerging and expanding population, special attention is given to SIB in aging adults with IDs that may result from age-related risk factors. Risks include increasing and unresolved health issues, physical changes, declining physical abilities, transitions to new residential environments, and the potential for experiencing loss and bereavement. The article concludes with practice implications for social workers who may encounter older individuals with IDs and SIB. (Publisher abstract)
Commentary on “Growing older together: ageing and people with learning disabilities and their family carers”
- Author:
- THOMPSON David
- Journal article citation:
- Tizard Learning Disability Review, 18(3), 2013, pp.120-123.
- Publisher:
- Emerald
This commentary aims to support Carol Walker and Cally Ward's paper by directing readers to work which could guide their practice with older people with learning disabilities and ageing family carers. It reviews selected initiatives to support older people with learning disabilities and their family carers over the past decade. Examples from the author's personal contacts are also used to illustrate the discussion. (Edited publisher abstract)
Growing older together: ageing and people with learning disabilities and their family carers
- Authors:
- WALKER Carol, WARD Cally
- Journal article citation:
- Tizard Learning Disability Review, 18(3), 2013, pp.112-119.
- Publisher:
- Emerald
This article explores the new challenge posed by the first generations of people with learning disabilities who are now living into older age in significant numbers. Most are living with family carers, who are themselves ageing. This represents a major transition in people's lives and one to which services must respond if a normal life event is not to be turned into a crisis. The article draws on the work of the authors for over a decade in this field. It examines the implications for both the older people themselves and for the ageing family carers with whom the majority live and of current government policy in social care and welfare benefits for this very vulnerable group. Learning disabled people are likely to experience the age discrimination common in much older people provision and practice and the caring relationship is undermined in the short and long term. Evidence on the extension of personalisation indicates that it presents very considerable challenges for this group of families. More information is needed on this growing population. More preventative support is needed to sustain the caring relationship while the family is living together, to support families to plan for the future, and to provide support when the caring relationship breaks down. (Edited publisher abstract)
The need for future alternatives: an investigation of the experiences and future of older parents caring for offspring with learning disabilities over a prolonged period of time
- Authors:
- CAIRNS Deborah, et al
- Journal article citation:
- British Journal of Learning Disabilities, 41(1), 2013, pp.73-82.
- Publisher:
- Wiley
This article reports on the results of a qualitative study (in-depth interviews) carried out in the United Kingdom as part of a larger (two-phased) study investigating the experiences, health and future perspectives of older parent carers aged between 65 and 89 years (six mothers and two fathers) of offspring with learning disabilities over a prolonged period of time. The article: (i) presents a conceptual framework, grounded in the experiences of older parent carers who participated in this research and; (ii) aims to come to a more in-depth understanding of older parent carers’ experiences of caregiving, and views on their own future. A detailed analysis of the data revealed important issues with regard to prolonged caregiving. Participants responses are discussed under the following themes: a life not forseen; going it alone; reaching a decision; and nearing the end. Overall, older parent carers felt that they lacked support, information and practical resources throughout their caregiving career. Some parents continued in their caregiving role despite their deteriorating mental and/or physical health as there appeared to be no alternative, and most parent carers expressed that they were unable to think ahead to their own future and needs owing to the absence of suitable care alternatives. The findings suggest that there is an urgent need to review how individuals with learning disabilities and parent carers are supported throughout their lifespan. (Edited publisher abstract)
Future need of ageing people with an intellectual disability in the Republic of Ireland: lessons learned from the literature
- Authors:
- DOODY Catriona M., MARKEY Kathleen, DOODY Owen
- Journal article citation:
- British Journal of Learning Disabilities, 41(1), 2013, pp.13-21.
- Publisher:
- Wiley
This article synthesises current literature regarding ageing and service provision for people with an intellectual disability. It presents the context of intellectual disability in Ireland and ageing for people with intellectual disability in relation to increased longevity and service provision. Searches were conducted through electronic databases (EBSCO and CINAHL) retrieving literature published between 1980 and 2010. Computerised searches using the terms, ‘old age, aged, ageing, ageing, mortality, morbidity’, were used in conjunction with the terms ‘intellectual disability, mental handicap and mental retardation’. The review found that Ireland has and is seeing a dramatic change in the age profile of clients and the support services they require. While Ireland had specifically trained nurses in intellectual disability, they predominately work in residential settings. This can be seen as been at odds with the philosophy of supporting people with intellectual disability live at home with their family and the primary care system. As the ageing population is rising, intellectual disability services need to proactively develop and respond to this changing age profile by reviewing and adjusting the way in which they deliver services, not only in terms of how services develop and respond to a changing age profile but also in terms of collaborative working across all health services. (Edited publisher abstract)
Support workers' knowledge about dementia: a vignette study
- Authors:
- HERRON Daniel L., PRIEST Helena M.
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 7(1), 2013, pp.27-39.
- Publisher:
- Emerald
Because of the relationships they build, support workers can play a vital role in recognising and attending to the mental health needs of service users with intellectual disabilities. However, many lack the knowledge, skills and confidence to identify and respond appropriately. This paper focuses on the mental health of older people with intellectual disabilities. Fourteen support workers, working in one UK county, completed a questionnaire in which three vignettes presented progressively worsening indicators of dementia in an older person with intellectual disabilities. Participants explained what they thought was happening and what action they would take. Few of the participants had any mental health training, and only one in relation to older people. They were generally poor at judging early and intermediate indicators of dementia, sometimes attributing these to changes in routine or difficulty in communicating needs. The support workers were able to identify more overt later signs but believed these advanced indicators to be the onset of dementia. Proposed action was however appropriate, for example observation and referral. Abuse was often considered as a causal factor. The authors believe that their findings demonstrate the need for training in the mental health needs of older people, in particular, the general and specific indicators and expected trajectory of dementia in this population.
Improving the quality of life for people with learning disabilities as they grow older: a challenge for providers
- Author:
- WARD Cally
- Publisher:
- Association for Real Change
- Publication year:
- 2013
- Pagination:
- 24
- Place of publication:
- Chesterfield
This document is uses eight outcomes statements to identify what learning disability providers must do to meet the Real Change Challenge of improving the quality of life for people who have a learning disability as they grow older. It provides advice and sets out practical steps on how to ensure that people with learning difficulties continue to have lives that are healthy, happy and fulfilled. The eight outcomes aim to ensure that people are supported, involved, have good health, feel safe, are able to take part in activities, are in contact with people in their social networks, are supported when people close to them die, and that they can come to terms with their own end of life. Bullet points provide advice on how to deliver outcomes and implications for staff development. (Original abstract)
Identifying and applying early indicators of concern in care services for people with learning disabilities and older people: the abuse in care project
- Author:
- UNIVERSITY OF HULL. Centre for Applied Research and Evaluation
- Publisher:
- Scotland. Scottish Government
- Publication year:
- 2013
- Pagination:
- 21
- Place of publication:
- Edinburgh
This small scale research initiative aimed develop an information-led process that might help health and social care practitioners to examine their early concerns about care services for people with learning disabilities and older people with significant care needs who lived in staffed settings such as care homes and group homes. Focus groups with staff in Dundee identified six main areas of concern: concerns about management and leadership; staff skills, knowledge and practice; residents behaviours and wellbeing; the service resisting the involvement of external people and isolating individuals; the way in which services are planned and delivered; and the quality of basic care and the environment. Barriers were also identified relating to practitioners sharing their concerns about services, including ICT compatibility problems, and the need for procedures, tools and processes. (Original abstract)