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Siblings of adults with developmental disabilities: psychosocial outcomes, relationships, and future planning
- Authors:
- HELLER Tamar, ARNOLD Catherine Keiling
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(1), March 2010, pp.16-25.
- Publisher:
- Wiley
As a result of longer lifespan and the aging of their parents, siblings play an increasing role in the lives of people with intellectual and developmental disabilities. In this article, the authors reviewed the literature on siblings of adults with intellectual and developmental disabilities, concentrating on three main questions: what are the psychosocial outcomes of having a sibling with an intellectual and developmental disabilities on the sibling without a disability?; what factors relate to the nature of the sibling relationship?; and what factors relate to future planning, including expected and future relationships when parents can no longer provide care? The authors examined 23 relevant published studies for the period 1970–2008 on adult siblings over 21 years of age that addressed the relationships, psychosocial outcomes, and involvement in future planning. In conclusion, the authors suggest that these studies present a mixed, but positive picture of the psychosocial outcomes of having a sibling with a disability. They also indicate that siblings tend to have long-lasting close relationships with their siblings with a disability and anticipate taking on greater supportive roles as both grow older.
Barriers and supports for exercise participation among adults with Down Syndrome
- Authors:
- HELLER Tamar, HSIEH Kelly, RIMMER James
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.161-177.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Examines the impact of exercise barriers and carer attitudes regarding exercise outcomes on the exercise participation of adults with Down syndrome (DS). The sample included 44 adults age 30 years and older with DS and mild to moderate intellectual disability and their carers (family members or staff). Measures included personal characteristics of the adults with DS (age, level of adaptive behavior, and health status),carer perceived outcomes of exercise for people with DS, socio-emotional barriers, and access barriers to exercising. The significant determinants of exercise participation were carers' perceived outcomes of exercise for persons with DS and access barriers. When carers perceived greater benefits of exercise and when there were fewer access barriers, the adults with DS were likely to exercise more frequently.