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Dignity in care: choice and control
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2014
- Pagination:
- 13 minutes 30 seconds
- Place of publication:
- London
Everyone has the right to make choices about how they live and how their support is provided. This film shows how people with care and support needs can be supported to have choice and control. Three examples shown are owning a budgerigar; deciding between mince with dumplings or a roast chicken dinner; and going shopping. The young men with learning disabilities who draw up their preferred shopping list travel to town unsupported, buy the food, come back and cook it and then eat it. It's important to take time to understand and know the person, their previous lives and past achievements, and to support people to develop things like ‘life story books'. If you treat people as equals, you can make sure they remain in control of what happens to them. (Edited publisher abstract)
Sounds familiar
- Author:
- VALIOS Natalie
- Journal article citation:
- Community Care, 3.4.03, 2003, pp.32-33.
- Publisher:
- Reed Business Information
Looks at the importance of communicating with service users sensibly and sensitively, avoiding patronising expressions that may give offence.
Retirement or just a change of pace: an Australian national survey of disability day services used by older people with disabilities
- Authors:
- BIGBY Christine, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 29(3), September 2004, pp.239-254.
- Publisher:
- Taylor and Francis
Definitions of old age selected by researchers should reflect differences in culture and life expectancy within and between developing and developed nations. Fifty-five years was used to denote older people in both the Australian national survey and a Victorian study. Consequently, 55 years and older has been used to denote older people in this study. people with a lifelong disability are discussed. A postal survey of 596 day programmes for people with disabilities was conducted, with a response rate of 28%. Findings show that only 19% of service users were aged over 55, and the largest subgroup were people with intellectual disability. Many older people attended programs that were not age specific and a typology of the seven program types utilised was constructed. Individualised planning, flexibility and choice were perceived as fundamental to a successful program. The location of activities in the community, maintenance of social relationships, and opportunities to develop new contacts were also seen as important. Little understanding, however, of the diversity of the ageing process or notions of healthy ageing was demonstrated by service providers, many of whom had limited expectations of older people. Challenges identified in providing day support for older people were lack of financial resources, knowledge and expertise amongst staff, and difficulties interfacing with other service systems.
Annual report 1987/88
- Author:
- KIRKLEES. Directorate of Social Services
- Publisher:
- Kirklees. Social Services Department
- Publication year:
- 1988
- Pagination:
- 24p.
- Place of publication:
- Huddersfield
Has service user participation made a difference to social care services?
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, CARR Sarah
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2004
- Pagination:
- 31p.,bibliog.
- Place of publication:
- London
This paper brings together the key themes and findings from the synthesis of six literature reviews on the impact of user participation on change and improvement in social care services. Reviews on older people, children and young people, people with learning difficulties and disabled people were commissioned by the Social Care Institute for Excellence (SCIE). Reviews on mental health service user participation and on general user/ consumer involvement were commissioned by NHS Service Delivery and Organisation Research and Development Programme. The aim of this work is to give an overview or synthesis of these reviews in order to provide a comprehensive, accessible account of what is currently known about the impact of service user participation on change and improvement in social care services. It will also provide a basis for SCIE Practice guides on service user participation.
Using healthcare services: perspectives of community‐dwelling aging adults with intellectual disabilities and family members
- Authors:
- BAUMBUSCH Jennifer, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 16(1), 2019, pp.4-12.
- Publisher:
- Wiley
The aging of adults with Intellectual Disability (ID) in the community resulting from deinstitutionalization signals a need for change in healthcare policy and services. This population is growing older at rates similar to the rest of the population, and individuals with ID often have multiple chronic illnesses and may experience young‐onset dementia, increasing their need to use healthcare services. However, it is widely recognized that currently healthcare services are ill‐prepared to meet the unique needs of this population as they age in their communities. The purpose of this study was to explore this issue from the perspectives of aging individuals with ID and family members (FMs). This study employed qualitative description as the method of inquiry and took place in British Columbia, Canada. Adults with ID age 40 years and older (N = 21) and FMs (N = 26) participated. Data were collected through focus groups and semistructured interviews. Thematic data analysis was conducted to generate the main study findings. Two overarching themes were identified. First, “the organization and culture of healthcare services in the community.” This theme included issues such as age restrictions on health services, navigating health services, the culture of appointment‐making, and implications of living in rural settings, all of which influenced how individuals used healthcare services. Second, “interactions with healthcare providers” illustrated ways in which providers contribute to healthcare experiences. Many factors, both organizational and interpersonal, shape the experiences of aging individuals with ID using healthcare services in their communities. There continues to be a policy and service gap that can create unnecessary and avoidable difficulties in using healthcare services. Policies, service delivery, and education of healthcare providers need to be revisited in light of the unique needs of this population aging in the community in order to ensure healthcare is accessible. (Edited publisher abstract)
A synthesis of the evidence on peer research with potentially vulnerable adults: how this relates to dementia
- Authors:
- DI LORITO Claudio, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 32(1), 2017, pp.58-67.
- Publisher:
- Wiley
Background: This study aims to identify the benefits, the risks and the practical challenges and to develop a model of good practice in peer research with people with dementia. Methods: The review conducted searches on PsycInfo, PubMed and Google Scholar for empirical investigations or discussion papers on peer research. Given the limited literature in the field of dementia, studies with groups who share similar demographics (older people), experience of stigma (mental health service users) and exclusion from research (people with learning disabilities) were included. No restrictions on language and publication date were applied. Analysis: Three themes were identified: the potential benefits, the potential risks and the practical challenges of peer research. The authors the developed a model of good practice. The European Working Group of People with Dementia reviewed the authors' paper and added to the findings. Results: Seven papers were included in the evidence synthesis. Potential benefits of peer research included enriched data and empowering people with dementia. Potential risks included power differentials between researchers and issues of representativeness. The practical issues for good practice included the training of peer researchers, defining involvement and roles, working with cognitive impairment and considering resource implications. The European Working Group of People with Dementia emphasised the importance of equality issues. Conclusion: Involving people with dementia in peer research can generate several benefits, including empowerment and opportunities for inclusion for the peer researchers and the research participants living with dementia, challenging academics' traditional views on research processes and gathering enhanced research data. There remains a need for further research on the impact of peer research in dementia studies. (Edited publisher abstract)
Helping vulnerable adults to keep safe
- Authors:
- COLLINS Mick, WALFORD Mel
- Journal article citation:
- Journal of Adult Protection, 10(1), February 2008, pp.7-12.
- Publisher:
- Emerald
This article describes innovative work in Powys, mid Wales, where trainers are working with vulnerable adults to help them reduce the risk that they will be abused, or if the worst happens, where to turn for help. College staff have developed a course that runs to one afternoon a week for the academic year for people with learning disabilities. For people with mental health problems the approach had been workshop based, with a programme of six or eight workshops, run by skilled trainers. For older people a third approach has been developed because there are so many older people who need to hear about Keeping Safe. After piloting one-off workshops and presentations, the trainer has worked with staff and volunteers from a variety of agencies who already work with older people to train them as trainers working in pairs. Those who have received training will be delivering sessions in luncheon clubs, day services, care homes etc.
Direct payments in England: factors linked to variations in local provision
- Authors:
- FERNANDEZ Jose-Luis, et al
- Journal article citation:
- Journal of Social Policy, 36(1), January 2007, pp.97-121.
- Publisher:
- Cambridge University Press
- Place of publication:
- Cambridge
Direct payments have moved to the heart of the government's drive for increased user choice. At the same time, implementation has remained disappointing. This article explores the demand, supply and related factors associated with patterns of local variability in uptake and intensity of care package provision. Statistical analyses are conducted for key client groups – people with physical disabilities, older people, people with learning disabilities and people who use mental health services – using data for England from 2000–01 to 2002–03. The results suggest that direct payments variability reflects a complex array of factors, both within and beyond the control of local public actors. In particular, while local policy preferences appear to shape the extent of direct payments growth, the results also demonstrate that understanding levels of activity requires attention to local circumstances.
A content analysis of direct payment policies within England
- Authors:
- TOBIN Roseanne, VICK Nicola
- Publisher:
- Health and Social Care Advisory Service
- Publication year:
- 2004
- Pagination:
- 33p., bibliog.
- Place of publication:
- London
Under the provisions of the Community Care (Direct Payments) Act (1996) disabled people have the legal right to receive payment of community care monies and to purchase their own care based on an agreed needs-led assessment, their eligibility under the Act and their eligibility for a community care payment. Despite a growth over time in the numbers of people in receipt of direct payments, wide variations persist in the availability of direct payments support schemes and in the take up of payments across care groups. This study aims to evaluate the process of direct payment policy implementation and the impact of social care modernisation on the availability of support schemes and on ensuring equity of access for users of physical disability, learning disability, mental health, older persons’ services and their carers.