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Improving healthcare access for older adults with intellectual disability: what are the needs?
- Authors:
- NAVAS Patricia, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(6), 2019, pp.1453-1464.
- Publisher:
- Wiley
This qualitative study was carried out in Spain with the aim of identifying the changes that the health system should make to improve healthcare access for older adults with intellectual disability. Three hundred and sixty‐nine family members and professionals expressed their opinion on how healthcare access could be improved. Participants responded to two open‐ended questions included in a general survey about the health status of older individuals with intellectual disability. Most informants were women and professionals who had known the person with intellectual disability for more than 12 months. A system of categories, which showed good inter‐rater agreement, was developed to analyse participants’ written responses. Both family members and professionals emphasized the need to improve disability training for healthcare practitioners and highlighted the urgent need for flexibility in the structure of a healthcare system that currently overlooks the specific needs of this vulnerable population. (Publisher abstract)
Care of elderly people with learning disabilities into 1992
- Author:
- COWARD Sandra
- Journal article citation:
- Elders the Journal of Care and Practice, 1(1), January 1992, pp.42-49.
Points out that elderly people with learning difficulties have very little access to services and until now have been an invisible minority, but that the policy of care in the community will increase awareness of their needs; outlines some of the services which will be required.
Older and out
- Author:
- SNELL Janet
- Journal article citation:
- Community Care, 4.10.07, 2007, pp.28-29.
- Publisher:
- Reed Business Information
Older people with learning disabilities are having their hard won independence taken from them as they reach 65. This article look at the importance of providing services to older people with learning disabilities. It also includes a short case study.
Exploring enablers and barriers to accessing health services after a fall among people with intellectual disability
- Authors:
- HO Portia, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(3), 2020, pp.604-617.
- Publisher:
- Wiley
Background: Adults with intellectual disability experience high rates of falls making falls prevention an important health need. The purpose of the study was to seek perspectives of older adults with intellectual disability and their caregivers to (a) explore the experiences of older adults with intellectual disability when seeking healthcare services after a fall and (b) identify enablers and barriers when taking up evidence‐based falls recommendations. Method: A qualitative exploratory study was undertaken as part of a prospective observational cohort study. Semi‐structured interviews were conducted with a purposeful sample. Data were analysed thematically using Colaizzi's method. Results: Seventeen interviews were conducted (n = 21). Emergent themes demonstrated that participants had limited knowledge about falls prevention. Enablers included individualizing falls prevention strategies. Barriers included not being offered access to established falls prevention pathways. Conclusion: There is an urgent need to develop high‐quality falls prevention services for older adults with intellectual disability. (Edited publisher abstract)
Assisting individuals ageing with learning disability: support worker perspectives
- Authors:
- WARK Stuart, HUSSAIN Rafat, EDWARDS Helen
- Journal article citation:
- Tizard Learning Disability Review, 20(4), 2015, pp.213-222.
- Publisher:
- Emerald
Purpose: While ageing with an intellectual (learning) disability has been subject to increased research in recent years, there remains little knowledge regarding the daily practice issues that disability workers struggle most to support in this cohort. This paper aims to gain feedback directly from staff regarding the problems they experience in daily work, and to evaluate whether any changes to legislation or practice could potentially alleviate identified areas of concern. Design/methodology/approach: A Delphi project was conducted over three rounds with participants from rural areas of New South Wales (NSW). The panel was composed of support workers who assist people ageing with a learning disability. Participants were asked their perceptions of the main practice issues facing them while they provide support. Findings: The panel identified 29 issues that were considered problematic in the provision of support to people ageing with a learning disability. A thematic analysis indicated three main themes of access to services; time constraints; and funding. Research limitations/implications: The participants in this study were all disability workers employed by non-government organisations in rural NSW, and as such, many of the issues identified may be specific to this population cohort and geographic setting. Any generalisation of these results to other locations or populations must be considered within these limitations. Originality/value: Identification of the issues facing disability staff may facilitate government, health care providers and disability organisations to proactively plan to address current and future problem areas. The consequent effect of improving practices can assist individuals to receive better support and lead to a corresponding improvement in their quality of life. The current implementation of the National Disability Insurance Scheme in Australia is an ideal opportunity for cross-sectoral collaboration to change practice to facilitate better support for a highly vulnerable group of the community. (Publisher abstract)
"Advocacy is for the people": research into the impact of independent advocacy on the lives of older people
- Author:
- BOCIOAGA Andreea
- Publisher:
- Scottish Independent Advocacy Alliance
- Publication year:
- 2014
- Pagination:
- ii, 35
- Place of publication:
- Edinburgh
This report aims to investigate the impact of independent advocacy on the lives of older advocacy partners. The study is based on qualitative data and it explores people’s perspectives of advocacy. 13 interviews were conducted at 7 different advocacy organisations across Scotland. The findings, which draw on interviews with the advocacy partners and previous literature, suggest that: advocacy can help older people maintain their independence – the support participants had accessed helped them to regain control over their own lives and situations, either by finding new accommodation, making complaints or dealing with the services around them; advocacy can help older people access relevant information and address any power imbalance - participants credited advocacy with helping them access the information they needed in order to make informed choices, challenge the status quo and achieve their goals; advocacy helps safeguard the rights of older people; for those older people suffering from a (perceived or actual) physical or cognitive impairment advocacy can offer vital support when dealing with official matters - some of the participants reported on how their advocate helped them make sense of official documents and ensured that their views were heard when raising an issue with statutory or non-statutory agencies or when making a complaint; advocacy makes the advocacy partners feel valued and listened to, improved their confidence and contributed to reduced stress when dealing with difficult issues. (Edited publisher abstract)
Service for all: making it happen; a report from the Service for All conference held on 18 June 2003 in Edinburgh
- Author:
- SERVICE FOR ALL CONFERENCE
- Publisher:
- Scottish Human Services Trust
- Publication year:
- 2003
- Pagination:
- 42p.
- Place of publication:
- Edinburgh
The conference aimed to bring people together to exchange information, examples of good practice and ideas about making NHS services more accessible. The main elements of the event were to: understand access from the perspective of people with disabilities, people with mental health problems and older people, what helps and what are the main problems?; identify good practice in Scotland and start a database of good practice; share ideas around practical solutions and on ways to get advice and help from others; and inform ongoing development of policies and advice for the Scottish Executive and the NHS in Scotland on how the NHS and people who use services can work together to improve access. Under the Disability Discrimination Act 1995, the NHS and other service providers have to think actively about how to make services accessible. This legislation is important but making this happen is not just about following legislation. It is about people sharing a vision of what a service for all looks like, of imagining better and working together to make it real.
Policy into practice: growing older with a learning disability
- Author:
- THOMPSON David
- Journal article citation:
- Research Policy and Planning, 21(3), 2003, pp.71-78.
- Publisher:
- Social Services Research Group
Identifies the major support needs for older people with learning difficulties. Goes on to discuss the impact of two recent policy documents in England: the 'National Service Framework for Older People' and 'Valuing people: a new strategy for learning disability in the 21st Century' on the lives of older people with learning difficulties.
The state of the nation: June 2022
- Author:
- ACCESS SOCIAL CARE
- Publisher:
- Access Social Care
- Publication year:
- 2022
- Pagination:
- 35
- Place of publication:
- Coventry
This second State of the Nation report explores the increasing need that people have for social care advice, highlights the external factors which may have driven some of this increased need, and details the complexities of some of the issues that those in need are now facing. The report draws together over 74,000 separate data points through a bespoke processing pipeline. We have matched over 1,200 separate organisational data categories to a set of harmonised group categories ('universal themes'). These universal themes match similar group member queries into one category, allowing us to derive greater collective insight across the sector. We categorise member data into group types: 'carers', 'older people', 'sensory disability' and 'learning disability'. We explore key social care trends, investigate the changing pattern of advice provision and detail some examples of the impact this has had on people with social care needs and their families. We observe an unprecedented level of advice provision over and above what we reported in our 2021 State of the Nation report. People continue to struggle in accessing care and support and the increases in advice provision in many of our universal theme areas are stark. Key findings include: our members have provided advice on more social care advice queries in the year 2021/22 compared to 2019/20, a rise of 74%; our members processed 88% more enquiries that were identified as needing specialist legal advice in the year 2021/22 compared to 2019/20; the number of enquiries about social care needs assessments has risen by 229% in the year 2021/22 compared to 2019/20; the number of people contacting our members about problems or concerns about existing social care and support rose by 43% in the year 2021/22 compared to 2019/20. (Edited publisher abstract)
‘Cautiously optimistic’: older parent-carers of adults with intellectual disabilities – Responses to the Care Act 2014
- Authors:
- GANT Valerie, BATES Claire
- Journal article citation:
- Journal of Intellectual Disabilities, 23(3), 2019, pp.432-445.
- Publisher:
- Sage
- Place of publication:
- London
This article discusses potential opportunities for best practice in the United Kingdom that may be brought about by the Care Act (2014). Carers in the United Kingdom were given new rights within this legislation with a focus on needs led assessment. The underpinning philosophy of the Care Act is to streamline the previous legislation and offers a framework for carers and people in receipt of care, to enable a more personalized approach to care and support. Offering a discussion of likely opportunities brought about by provisions of the Care Act, this article draws on a small study involving older parent/carers of sons or daughters with intellectual disabilities. Exploring the extent to which such parents of adults with intellectual disabilities were aware of the details of this legislation and the potential impact it may have on their lives highlighted other significant areas, some of which are discussed below. Semi-structured interviews were conducted with five parents over the age of 60 of sons or daughters with intellectual disabilities in North West England. The study adds to the body of knowledge and understanding about parents of adults with intellectual disabilities and explores and provides a deeper understanding of parents’ experiences of the implementation of this specific piece of legislation and their perception of the relevance of it to themselves. Findings include some awareness of the legislation and some feelings of optimism about its likely implications, although participants appeared less clear about the specificities and the impact of these upon them and/or their sons or daughters. Findings from the semi-structured interviews also showed parent’s articulation of the extent of reciprocal care manifest between them and their son or daughter with an intellectual disability, as well as an awareness of the fragility of their own emotional well-being. (Edited publisher abstract)