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Current and future concerns of older parents of sons and daughters with intellectual disabilities
- Authors:
- WEEKS Lori E., et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(3), September 2009, pp.180-188.
- Publisher:
- Wiley
Using both qualitative and quantitative methods, the authors examined the concerns of older parent carers of their sons and daughters with learning disabilities in Prince Edward Island, Canada. Of 132 identified families in the province, 10 parents voluntarily participated in pilot interviews, and 33 parents agreed to complete in-depth interviews. Analysis of qualitative data resulted in the following five themes: (1) worry about the future care of son or daughter; (2) concern about services funding; (3) having housing and care options; (4) lack of provider understanding of carer's needs; and (5) helping son or daughter become a productive and active member of society. Key issues identified through quantitative analysis included interactions with the government, the need for respite care, and meeting social and emotional needs. Preferred types of housing and care options included "small option homes" and services that provide care to both older parents and their sons and daughters. The authors' results emphasize the necessity of adequate supports being made available to older parents who wish to support their sons and daughters with intellectual disabilities at home and to ensure that desired supports are available in the future when they are no longer able to provide care.
Caring for older people in the community
- Editors:
- HUDSON Angela, MOORE Lesley, (eds.)
- Publisher:
- Wiley-Blackwell
- Publication year:
- 2009
- Pagination:
- 245p.
- Place of publication:
- Chichester
This book is a compilation from 9 academics and practitioners, including the two editors. The first section (Chapters 1-3) discusses the past and current influences on physical, psychological and social ‘nursing’ practices and ethical tensions, when working with older people. Topics covered in the second section (chapters 4-6) with regard to contemporary challenges with older people who may have learning disabilities and dementia as well as experiencing ageing are, health education, sexual health, substance misuse, and the role of assistive technology. Examples of lived scenarios from service users and reflections from professionals are included. Current issues of kinship care for older people, ethics, palliative care and end of life decision making, complementary therapies, vulnerability, citizenship, informed consent, advocacy, empowerment, personalisation and a person centre approach are also mentioned. The third section from the joint editors, is on future challenges and covers: community hospitals, bringing diagnostic technology and chemotherapy interventions closer to cancer patients, the national panel for information and communications technology, ‘whole system demonstrators’, moving towards seamless care, and partnership with older people projects.
Quality of life in group homes and older persons' homes
- Authors:
- HIGGINS Laura, MANSELL Jim
- Journal article citation:
- British Journal of Learning Disabilities, 37(3), September 2009, pp.207-212.
- Publisher:
- Wiley
A non-equivalent comparison group design was used to compare the quality of life of 59 people in three groups; older people without an intellectual disability living in older people's homes (n = 20), older people with an intellectual disability living in older people's homes (n = 19) and older people with an intellectual disability living in intellectual disability homes (n = 20). Data were collected on participant characteristics, adaptive behaviour and three aspects of quality of life; community involvement, participation in domestic living and choice making. The three groups were comparable in terms of gender, ethnicity and additional impairments but the older people without an intellectual disability were older and had more adaptive skills than the other groups. Older people with an intellectual disability experienced better quality of life outcomes in terms of participation in meaningful activity and community access when they lived in intellectual disability homes compared with older people's homes. It was not possible to achieve reliability on the measure of choice-making. This study provides some evidence to suggest that older people with an intellectual disability may be best served in intellectual disability homes rather than older people homes and that it is an area of research which needs further exploration.
Think pain
- Authors:
- KERR Diana, WILKINSON Heather, CUNNINGHAM Colm
- Journal article citation:
- Learning Disability Today, February 2009, pp.34-36.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The research reported in this paper explores the pain experiences amongst people with a learning disability who also have dementia. The paper outlines the additional issues that need to be taken into consideration when providing care for someone with a learning disability and dementia. Areas discussed include: misunderstanding behaviour that is 'challenging', problems with communication, lack of staff knowledge about the conditions of older age and the impact of dementia, and prescription of medication.
Assessment and characteristics of older adults with intellectual disabilities who are not accessing specialist intellectual disability services
- Authors:
- DODD Philip, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(1), January 2009, pp.87-95.
- Publisher:
- Wiley
Individuals with intellectual disabilities (I.D.) who are not accessing any specialist services are a vulnerable group, especially with advancing age. In Ireland, the National Intellectual Disability Database (N.I.D.D.) records the current and future service needs of people with intellectual disabilities, as well as those individuals who are not in receipt of services. This two-part study firstly used the N.I.D.D. to look at the number and characteristics of those older individuals outside services. Following this, a questionnaire was developed to examine the contact and assessment procedures practised with people who are listed on the N.I.D.D. as not requiring any specialist service. Analysis of the database showed that 7.5% of people on the N.I.D.D. with moderate, severe or profound I.D., over the age of thirty and living at home with family were awaiting, or were not in receipt of specialist services. For these people not accessing any services, the questionnaire responses highlighted poor assessment practices including significant periods of time passing between contacts with the individual and limited contact regarding service planning. Specialist services need to be more pro-active in engaging vulnerable older individuals in services. A standardised approach needs to be developed in the assessment and monitoring of individuals and families refusing services.
The effect of reminiscence group work on life satisfaction, self-esteem and mood of ageing people with intellectual disabilities
- Authors:
- VAN PUYENBROECK Joris, MAES Bea
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(1), January 2009, pp.23-33.
- Publisher:
- Wiley
This study evaluates the effects of reminiscence group work on the subjective well-being of ageing people with intellectual disabilities. The content of the successive group work sessions was manipulated as follows: a control-phase with three 'current topics' sessions, an experimental phase with six 'reminiscence' sessions and finally three 'current topics' sessions. Life satisfaction, perceived self-competence and mood were measured by questionnaires, filled in by the participants and direct support workers. A quasi-experimental pre-test–post-test design (n = 41) did not detect any changes in life satisfaction and perceived self-competence. For mood, a quasi-experimental ABA-design (n = 41) did not yield an experimental treatment effect, but a significant increase in scores was observed over time. Personality characteristics 'extraversion' and 'emotional stability', but not memory specificity were found to be significant covariates for the mood scores. Although the study's design did not allow the researchers to confirm the effect of reminiscence group work, the analysis nonetheless revealed some useful indications for further research. Also, interviews conducted before and after the programme resulted in positive appraisals of the programme as a worthwhile and meaningful activity for ageing people with intellectual disability.
Adult community statistics: 1st April 2008-31st March 2009
- Author:
- NORTHERN IRELAND. Department of Health, Social Services and Public Safety
- Publisher:
- Northern Ireland. Department of Health, Social Services and Public Safety
- Publication year:
- 2009
- Pagination:
- 80p., tables
- Place of publication:
- Belfast
This statistical report presents information on activity for all Programmes of Care for adults, gathered from HSC Trusts via the annual and quarterly statistical returns. Statistical tables are presented in 6 sections. All Programmes of Care, Elderly Care, Mental Health, Learning Disability, Physical and Sensory Disability, and Primary Health and Adult Community.
'A Story to Tell': learning from the life-stories of older people with intellectual disabilities in Ireland
- Authors:
- HAMILTON Carol, ATKINSON Dorothy
- Journal article citation:
- British Journal of Learning Disabilities, 37(4), December 2009, pp.316-322.
- Publisher:
- Wiley
This article, drawing on life-stories told by older people with intellectual disabilities for a research study in the Republic of Ireland, interviewed 15 research participants over the age of 60 who recalled, in an hour long life-story collecting meeting, their experiences of confinement, coercion and exclusion that resulted from their being labelled as having intellectual disabilities. The participants also recalled the positive interactions with workers and family members that sustained them during those difficult times. Extracts from these narratives show how past medical and social processes interlinked to classify members of this group as 'deficient' or 'lacking' in some way. Life-stories collected in this project illustrate the value of a narrative approach to exploring how services might begin to enhance the quality of support currently available to older people with intellectual disabilities. The authors’ state, however, life-story work in a service setting is far from straightforward, and further support is needed for staff involved in this process.
Managing transitions: support for individuals at key points of change
- Editors:
- PETCH Alison, (ed.)
- Publisher:
- Policy Press
- Publication year:
- 2009
- Pagination:
- 170p.
- Place of publication:
- Bristol
Highlights the issues common to all when experiencing transitions as well as the dilemmas specific to particular situations: how transition is experienced by young people leaving care, and by those with learning disabilities or mental health problems. For young asylum seekers there are multiple transitions. Other topics covered are the current transition from service provision to self-directed support, the transition for older people who move to supported living and the challenges that attend the transition from hospital to community.
Reducing restraints in health and social care: practice and policy perspectives
- Editors:
- HUGHES Rhidian, (ed.)
- Publisher:
- Quay Books
- Publication year:
- 2009
- Pagination:
- 141p.
- Place of publication:
- London
The book also explores restraint from the perspective of people who use health and social care services. Chapter 1 provides an historical perspective on the use of restraint, and Chapter 2 provides a broad introduction to the current use of restraint in health and social care, highlighting the tension between policy and practice. Individual chapters then explore physical restraint from the perspective of people who use health and social care services. Individual chapters are included on physical restrain with children and young people; among adults with learning disabilities; people with mental health needs; and older people, paying special attention to people with dementia. The concluding chapters cover changing the culture of care and moving towards restraint free care.