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Exemplar models and support for older carers and carers of people with dementia: informing commissioning
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- Melanie Henwood Associates
- Publication year:
- 2018
- Pagination:
- 78
This scoping report identifies models of support for older carers and carers of people with dementia. The report was commissioned by NHS England in support of its Commitment to Carers programme. The scoping carried out a review of the literature and also identified examples from the third sector using an online survey and interviews. The results found the most frequently identified models of support related to peer support and befriending, educational/coping support and resilience development. High proportions of responding organisations indicated that they were also providing support for carers in BAME and LGBT communities, though largely indicative of an inclusive approach to services rather than responding to specific needs. Specific models of support for carers of people with younger onset dementia were relatively absent. The analysis focuses on the main cross-cutting themes, and in particular these concerned: information and practical help (including sub-themes of: beyond diagnosis; signposting; locally based community support; respite; carer hubs, and dementia hubs); relationships (including sub-themes of: peer support; co-dependency; and organisational relationships); model development (including contracts and tendering), and outcomes. The report identifies areas that offer the most promising directions for future development are: building carer resilience; reducing carer isolation and loneliness; living a life beyond diagnosis; reimagining respite; and space and scope to expand. (Edited publisher abstract)
Popp: the story so far
- Author:
- HENWOOD Melanie
- Journal article citation:
- Community Care, 18.2.10, 2010, pp.30-31.
- Publisher:
- Reed Business Information
The Partnerships for Older People Projects (Popp) initiative was funded by the Department of Health to develop services for older people to promote their health, well-being and independence, and prevent or delay their need for institutional care. Twenty-nine councils in England were involved as sites for the pilots, which ran from 2006 to 2009. This article reviews the National Evaluation of Popp which suggests nearly all projects are cost effective, while there was particular success with the provision of practical help.
Seeing the wood for the trees: carer-related research and knowledge
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- NIHR School for Social Care Research
- Publication year:
- 2019
- Pagination:
- 44
- Place of publication:
- London
A summary report of a scoping review on carers and caring, which was funded by NIHR SSCR-funded undertaken between April 2016 and January 2017. The review brought together evidence and knowledge on carers and provided a detailed mapping of what is known about carers and caring. The report contextualises the review in relation to research and policy since the mid-1980. It has also been informed by reflections from a workshop held to discuss the findings. The report examines the findings across four key themes: Carer variables - characteristics of different types of carers and caring situations, such as age and ethnicity; Type of care - the needs of the cared for person and features of the situation; Impact of care - such as stress, resilience, and employment; and Support for carers. The key messages for practice, policy and research from the review include: the importance of building carers' resilience and enabling them to develop strategies to manage stress; the adoption of an integrated approach to research which incorporates the complexity of knowledge about care and care giving; addressing the deficits in existing knowledge and expanding the evidence base; and greater generation and use of longitudinal data in order to examine the impact and experience of caring over time. An extended report including a full bibliography of resources is also available. (Edited publisher abstract)
Seeing the wood for the trees. Carer-related research and knowledge: a scoping review
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- Melanie Henwood Associates
- Publication year:
- 2017
- Pagination:
- iv, 303
This NIHR-SSCR funded scoping review provides a comprehensive mapping of what is known about carers and caring, and aims to help inform policy, practice and research in relation to carers. The review was undertaken by searching 10 electronic bibliographic databases, supplemented by additional web searches to identify academic research, grey literature and wider knowledge. The analysis adopts a selective thematic approach covering: carer variables - the characteristics of different types of carer and different caring situations; types of care - the nature of needs of the cared for person and the features of the care situation; the impact of caring – resilience and coping, employment and health; and carer support and needs assessment. The final section highlights key messages identified from the review. It found that caring involves all sections and age groups of the population, with people are likely to experience one or more periods of caregiving over their lifetime. The uniqueness of each caring relationship is also highlighted. In relation to types of carers, knowledge about ‘hard to reach’ groups, such as BAME and LGBT carers, remains sparse. Older carers are also relatively invisible in policy and research terms. It found that much of the knowledge about carers identified in the review relates to their characteristics, their lived experience and the nature of their caregiving, with relatively less being known about the effectiveness of interventions to support them. The report concludes by offering suggestions for policy and practice. An appendix provides a bibliography of the 3,434 items identified in review, classified into 17 types of reference. (Edited publisher abstract)