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Caregiving load and respite service use: a comparison between older caregivers and younger caregivers
- Authors:
- SHI Junrong, et al
- Journal article citation:
- Journal of Gerontological Social Work, 61(1), 2018, pp.31-44.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Study aims were to explore differences in predictors of respite care use between older (aged 65+) and younger caregivers (aged 18–64 years), and associations between caregiving load and respite care use using multivariate logistic regression analysis and unpaid caregiver (n= 10,500) data from the 2009 California Health Interview Survey. Caregiving load comprised number of care recipients, weekly hours in caregiving, and caregiving duration. Variables with a significant association with respite care for older caregivers were female gender, income, and health insurance. For younger caregivers, respite care use associations were with ethnicity, caregiving relationship, education, and availability of substitute help. (Publisher abstract)
Literature review: use of respite by carers of people with dementia
- Authors:
- NEVILLE Christine, et al
- Journal article citation:
- Health and Social Care in the Community, 23(1), 2015, pp.51-63.
- Publisher:
- Wiley
Respite care is a cornerstone service for the home management of people with dementia. It is used by carers to mitigate the stress related to the demands of caring by allowing time for them to rest and do things for themselves, thus maintaining the caring relationship at home and perhaps forestalling long-term placement in a residential aged care facility. Despite numerous anecdotal reports in support of respite care, its uptake by carers of people with dementia remains relatively low. The aim of this paper was to examine the factors that constitute the use of respite by carers of people with dementia by reviewing quantitative and qualitative research predominantly from the years 1990 to 2012. Seventy-six international studies of different types of respite care were included for this review and their methods were critically appraised. The key topics identified were in relation to information access, the barriers to carers realising need for and seeking respite, satisfaction with respite services including the outcomes for carers and people with dementia, the characteristics of an effective respite service and the role of health workers in providing appropriate respite care. Finally, limitations with considering the literature as a whole were highlighted and recommendations made for future research (Publisher abstract)
The experience of family care-givers and migrant paid care-givers' relief of burden: a contrasted qualitative analysis
- Authors:
- DE LA CUESTA-BENJUMEA Carmen, ROE Brenda
- Journal article citation:
- Ageing and Society, 34(7), 2014, pp.1219-1242.
- Publisher:
- Cambridge University Press
Older people are increasingly being cared for in the community across Europe. Dependent care in Spain largely remains a private issue involving family carers and migrant women from developing countries. Qualitative research on respite care has contributed to our understanding of respite as a subjective experience. Nonetheless, how care-givers relieve the burden of care is still not fully understood. Migrant care-givers are present in family life but their need for rest remains unseen. The aim of the study presented in this paper was to contrast family care-givers and migrant care-givers' strategies for relief from their caring role. Care-givers rest by thinking, doing and being but in a different manner from that of care-giving, that is: when they are a different person. To leave the life of care-giving is the general strategy that family care-givers use to rest from their care-giving selves while turning to one's own world describes the way migrant care-givers seek to relieve the burden of care. The comparative analysis shows that both strategies have in common the necessity to disconnect from the care-giving identity and that both migrant and family care-givers employ strategies that are false exits to a care-giving identity: they apparently relieve the burden of care. Respite goes beyond places, times and activities; as family care itself, it requires identity. (Publisher abstract)
Caring for the caregivers: developing models that work
- Authors:
- BROWDIE Richard, NOELKER Linda
- Journal article citation:
- Generations, 36(1), 2012, pp.103-106.
- Publisher:
- American Society on Aging
This article describes innovative approaches to family respite for family members of elderly participants in the Ohio HCBS (Home and Community Based Services) waiver programme—individuals who are, by definition, financially and functionally eligible to be served in nursing homes. The article provides an overview of the programme—who it serves and how, and with what results, and also offers case studies of how this programme has made continuing HCBS possible for older adult HCBS waiver clientele. (Edited publisher abstract)
Information-sharing with respite care services for older adults: a qualitative exploration of carers' experiences
- Author:
- McSWIGGAN Linda C.
- Journal article citation:
- Health and Social Care in the Community, 25(4), 2017, p.1404–1415.
- Publisher:
- Wiley
Respite services play an important role in supporting older adults and their carers. When an older person is unable to fully represent themselves, provision of respite care relies on effective information-sharing between carers and respite staff. This study aimed to explore, from carers' perspectives, the scope, quality and fit of information-sharing between carers, older people and respite services. An explorative, cross-sectional qualitative study involving a purposive sample of 24 carers, recruited via carer support groups and community groups in voluntary organisations, was undertaken in North East Scotland. Data were collected from August 2013 to September 2014, with participants taking part in a focus group or individual interview. Data were analysed systematically using the Framework Approach. The multiple accounts elicited from carers identified how barriers and facilitators to information-sharing with respite services changed over time across three temporal phases: ‘Reaching a point’, ‘Trying it out’ and ‘Settled in’. Proactive information-sharing about accessibility and eligibility for respite care, and assessment of carers' needs in their own right, were initially important; as carers and older people moved on to try services out, time and space to develop mutual understandings and negotiate care arrangements came to the fore; then, once shared expectations had been established, carers' chief concerns were around continuity of care and maintaining good interpersonal relationships. The three temporal phases also impacted on which modes of information-sharing were available to, and worked best for, carers as well as on carers' perceptions of how information and communication technologies should be utilised. This study highlights the need for respite staff to take proactive, flexible approaches to working with carers and to make ongoing efforts to engage with carers, and older people, throughout the months and years of them utilising respite services. Information and communication technologies have potential to enhance information-sharing but traditional approaches will remain important. (Publisher abstract)
Support for carers of older people: independence and well-being 5
- Author:
- AUDIT COMMISSION
- Publisher:
- Audit Commission
- Publication year:
- 2004
- Pagination:
- 71p.
- Place of publication:
- London
This study looked at the extent to which carers’ expectations are being realised. It has involved consultations with a range of national organisations, including Carers UK and the King’s Fund, about issues currently facing carers and current policy developments. It went on to look at the support and services for carers of older people in six different areas of England, covered by county councils, unitary authorities and inner and outer London boroughs. Carers could expect primary care staff to identify them as carers and make suitable reference in their notes (and that of the person they care for), saying that they are a ‘carer’. They should also expect councils to identify them as carers when a referral has been made to them, from whatever source. They should be able to expect clear, concise, relevant information about their rights and the benefits and support they can get, without asking for it, or at the very least, to be able to find it without looking too hard – from both local and national sources. With the introduction of the Carers Grant, they would be provided with breaks. Carers who are working or who want to return to work should expect to receive some help. Carers should expect that any assessments of the person they care for would be done in consultation with them as the carer. They should then be offered an assessment of their needs on top of this. As a result, they could expect to ‘become real partners in the provision of care to the person they are looking after…’ as the national strategy clearly sets out. As partners, carers should be able to expect that they are not only included in consultations with social services whenever any contact is made with the person they care for, but in consultations at the hospital discharge process and at the GP practice – provided the person they care for has given permission.
Alzheimer's Disease and carers
- Author:
- MASON Simon
- Journal article citation:
- Nursing Times, 22.11.95, 1995, pp.29-31.
- Publisher:
- Nursing Times
Draws on the author's experience of placement in mental health centres in North Lincolnshire. Focuses on the nature of the relationship between the older person with dementia and those who care for them - nurses and relatives.
Challenging professional roles: lay carers’ involvement in health care in the community
- Authors:
- PICKARD Susan, JACOBS Sally, KIRK Susan
- Journal article citation:
- Social Policy and Administration, 37(1), February 2003, pp.82-96.
- Publisher:
- Wiley
The bulk of care in the community is carried out by lay carers. Recent policy initiatives to support them in the United Kingdom are outlined. There remains evidence of significant gaps in support from professional health and social–care workers including community nurses. This paper reports three studies of lay carers: those caring for older people, carers of technology–dependent children, and home–care workers involved in the “direct payments” scheme. Findings are reported in the areas of decisions about appropriate caring roles, the lay–professional boundary, training and respite opportunities and the expertise of lay carers.
Best practice forum: dementia. Making people matter
- Author:
- -
- Journal article citation:
- Community Care, 18.11.99 Special Supplement, 1999, pp.v-vi.
- Publisher:
- Reed Business Information
The work of the winner: Alan McLure House advocacy project; and runners up: Cambridge person centred dementia care project, Waltham Forest Dementia Support Service and support groups run by Admiral Nurses, of this category are described.