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Living and caring for all
- Author:
- LLOYD James
- Publisher:
- International Longevity Centre UK
- Publication year:
- 2008
- Pagination:
- 26p., bibliog.
- Place of publication:
- London
Drawing on and responding to Living and Caring? An Investigation of the Experience of Older Carers (a study exploring the effect of care provision on the lives of people aged 50 years and older), this report aims to explore key strategic public policy issues concerning unpaid care provision by older people. It discusses factors shaping the provision and patterns of unpaid care by the older population, reviews the outcomes that older carers experience, and summarises research evidence about the quality of life of older carers. It considers the future of carers policy, commenting that demand for social care will increase in line with population ageing and increasing longevity, and recommends increasing the supply and availability of formal care, and dispersing the burden of unpaid care by increasing the number of unpaid carers through approaches such as improved support for carers.
Integrated care for older people in Europe: latest trends and perceptions
- Author:
- LEICHSENRING Kai
- Journal article citation:
- International Journal of Integrated Care, 12(1), 2012, Online only
- Publisher:
- International Foundation for Integrated Care
This perspectives paper reflects upon the authors experience in researching long-term care, the rationale for creating integrated long-term care systems, and discusses some innovations. As a researcher and consultant he has coordinated local pilots and European research projects to improve long-term care for older people by better integrating health and social care systems. One of his main conclusions is the need to treat long-term care as a system in its own right. It is suggested that long-term care systems require a discernable identity; specific policies, structures, processes and pathways; and the leadership and resources that can underpin expectations, drive performance for better outcomes for those living with (and working for those with) long-term care needs. The author notes that progress in developing LTC systems can be identified in all European countries. Integrated care solutions at the interface of health and social care, and between formal and informal care, have appeared. He notes that these have been achieved partly by means of (slow) political reforms, partly as a response to market-oriented governance, and in many cases through pioneering community and civil society initiatives. The paper concludes that it will depend on such initiatives, and their ability to convince both citizens and policy-makers, as to whether new societal approaches to long-term care are created that meet the demands of ageing societies.
Informal carers: who takes care of them?
- Authors:
- HOFFMANN Frederique, RODRIGUES Ricardo
- Publisher:
- European Centre for Social Welfare Policy and Research
- Publication year:
- 2010
- Pagination:
- 16p., bibliog.
- Place of publication:
- Vienna
The aim of this policy brief is to look at what is known about who provides informal care and who benefits from it, what differences, if any, are found between different countries, and what policies are in place to support informal carers, focusing mainly on countries of the European Union and using data from national and international sources and qualitative information from the European Centre's publication Facts and Figures on Long-Term Care - Europe and North America. It provides an overview of informal care giving across Europe, highlighting common characteristics and differences across countries, and discusses whether informal care in its present form is sustainable and why it may come under pressure in future, and recent policy developments in long-term care including providing cash to carers and the importance of providing services to carers. The authors conclude that informal caregiving remains the backbone of care provision in Europe and is the preferred care option for many dependent older people, that complete replacement of informal care by formal care services is neither financially feasible nor socially desirable, and that policy-makers should therefore ensure that carers' needs, as well as those of the care recipients, are taken into consideration and met, commenting that some countries already provide carers with a statutory right to receive an assessment of their needs for services in addition to services for older people, as is the case of the United Kingdom.
Older women’s expectations of care, reciprocity, and government support in Australia. ‘Am I not worthy?’
- Authors:
- CURRYER Cassie, GRAY Mel, BYLES Julie E.
- Journal article citation:
- Ethics and Social Welfare, 12(3), 2018, pp.259-271.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
This paper considers the lived experience and meaning of care for women born between 1946 and 1951, who are living alone, and are participants in the Australian Longitudinal Study of Women’s Health (ALSWH). The discussion is based on free-text survey comments (n = 150 women) and in-depth interview data (n = 15 women) exploring women’s experiences of ageing and their future expectations of care. It delves into tensions within relevant themes relating to care (unpaid informal care, volunteer work, and reciprocity), and the caring ethos, as described by women who are ageing in Australian communities. It highlights dilemmas faced by women who have grown old with the expectation of government support and care in later life, but who are facing the possibility this might not eventuate. These dilemmas are discussed with reference to governmental ethical-moral responsibilities for care within the context of user-pays welfare systems and profiteering within marketised aged-care services. (Publisher abstract)
The Taiwanese Association of Family Caregivers: transformation in the long-term care debate for carers
- Authors:
- WANG Frank T. Y., CHEN Chen-Fen
- Journal article citation:
- International Journal of Care and Caring, 1(1), 2017, pp.121-126.
- Publisher:
- Policy Press
Accepting political appointment from the government is a double-edged sword for an advocacy group, which could mean a chance to influence policies or conflicts with other advocacy groups. The Taiwanese Association of Family Caregivers (TAFC) went through such a process of transformation when it was appointed as a member of a formal committee set up by the Taiwanese government in 2009 in order to develop and implement a long term care insurance scheme. The process was named TAFC's awakening because the opportunity served as a catalyst for TAFC to confirm its identity as a representative of carers, speaking solely from the carer's perspective. (Publisher abstract)
Co-design of a carers strategy for New South Wales: reflections on a new approach to collaborative policy making with carers
- Authors:
- McFARLANE Helen, TURVEY Karen
- Journal article citation:
- International Journal of Care and Caring, 1(1), 2017, pp.127-134.
- Publisher:
- Policy Press
NSW is Australia's most populous state, with 7.7 million people (about a third of the Australian population). There are 905,000 carers in NSW. Carers provide ongoing unpaid support to people who need it because of their disability, chronic illness, mental ill-health, dementia or frail age. This article looks at the New South Wales (NSW) Carers Strategy 2014–19 (NSW Department of Family and Community Services, 2014), which is a whole-of-government and whole of-community response to support carers in NSW The aim is for carers in NSW to be supported to participate in social and economic life, to be healthy, and to live well. (Edited publisher abstract)
Long term care policies in Italy, Australia and France: variations in cash-for-care schemes
- Author:
- Da ROIT Barbara
- Journal article citation:
- Social Policy and Administration, 41(6), December 2007, pp.653-671.
- Publisher:
- Wiley
Cash benefit provisions have been at the core of many recent reforms in the long-term care sector in Europe. The respective schemes, however, vary widely in terms of the definition of entitlements, the level of benefits, and the ways in which benefits can be used by recipients. This article investigates cash-for-care schemes in three European social insurance countries. It asks whether the diversity of these schemes indicates different paths or just differences in the pace with which the respective policies address the risk of dependency. A characterization of the three schemes and a discussion of the implications for care work arrangements lead to the conclusion that the context and timing of long-term care reform processes are in fact quite variegated. All three countries have histories of cash schemes and of applying the cash approach to support – and to some extent relieve – traditionally strong family obligations. Differences predominate in terms of linking cash to employment, although some convergence is apparent in the effects on qualifications, working conditions and wages in care work.