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Exploring the relationships between choice and independence: experiences of disabled and older people
- Author:
- RABIEE Parvaneh
- Journal article citation:
- British Journal of Social Work, 43(5), 2013, pp.872-888.
- Publisher:
- Oxford University Press
Extending choice and control to the users of publicly funded services is a cornerstone in the personalisation agenda. It is assumed that giving service users greater choice and control will promote users' independence. As service users are increasingly given the responsibility to determine their support, social work practitioners need to work differently with service users in order to provide personalised support in exercising choice. This requires practitioners having a nuanced understanding of people's concepts of independence, how people make choices about support services and how those choices can impact on their perceived independence in the longer term. This paper reports new findings from a longitudinal qualitative study of choice and control over the life course in England. Semi-structured interviews were carried out with fifty adults and older people experiencing fluctuating support needs and/or a sudden deterioration in health. The paper discusses the relationships between choice and independence as experienced by disabled and older people. The findings show that independence is not a fixed concept, but is relative and multidimensional. There are multiple relationships between the choices people make and the consequences of those choices for people's subjective views of their independence. The paper concludes by highlighting the implications of findings for the role of social work practitioners. (Publisher abstract)
Choice: what, when and why? Exploring the importance of choice to disabled people
- Authors:
- RABIEE Parvaneh, GLENDINNING Caroline
- Journal article citation:
- Disability and Society, 25(7), December 2010, pp.827-839.
- Publisher:
- Taylor and Francis
This paper reports evidence from an ongoing qualitative longitudinal study into the realities of exercising choice about support and related services as experienced by disabled and older people and their families. Findings are reported from the first round of interviews, conducted in 2007-08, with 27 young people (aged 13-21) with degenerative/progressive conditions and 34 of their parents, 30 adults and older people with fluctuating support needs, and 20 adults and older people who had recently experienced the sudden onset of a disabling condition. There was considerable diversity among each of these groups in terms of gender, ethnicity and household composition. Key findings are discussed under the headings of healthcare, equipment, housing and adaptations, education/training, social care, employment, and leisure and transport. Almost all respondents felt that having choice was important, however, this is only meaningful if the choices are ‘real’. The choices considered to be important and the way choice was prioritised was shaped by the respondents age and the nature and severity of their condition and also by previous experience of services, future expectations, the availability of information, individual preferences, family responsibilities and the role of others providing support. The importance of learning over time and how this can shape experiences of choice making was also highlighted. Implications of the findings for policy and practice are discussed.
Same difference? Older people's organisations and disability issues
- Authors:
- PRIESTLEY Mark, RABIEE Parvaneh
- Journal article citation:
- Disability and Society, 17(6), October 2002, pp.597-611.
- Publisher:
- Taylor and Francis
This article addresses some important areas of commonality in the political interests of older and disabled people. It reports findings from survey and interview research with local organisations representing older people, and their engagement with disability issues. The authors review similarities in the claims and mobilisation of older and disabled people, and by reviewing the groups that participated in the study. The main part of the article identifies substantive policy issues that were perceived as important to older people. Here, there are considerable areas of overlap with the claims of disabled people's organisations (for example, in relation to information, independent living, accessible housing, transport, social support, and incomes).