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Family caregivers and in-home respite options: the consumer-directed versus agency-based experience
- Authors:
- FEINBERG Lynn Friss, WHITLATCH Carol J.
- Journal article citation:
- Journal of Gerontological Social Work, 30(3/4), 1998, pp.9-28.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This American study examines the preferences for and characteristics of consumer-directed (i.e. direct pay) and professionally-managed (i.e. agency-based) respite for family caregivers of adults with cognitive impairments. Respondents in both groups reported the same "most important" reasons for preferring their respective mode of respite: wanting to be sure their love one was safe, and having good, reliable and trustworthy help. The data revealed a clear preference for consumer direction in respite care in the home. Practice implications are addressed for improving the delivery of in-home respite care.
A study of 10 states since passage of the National Family Caregiver Support Program: policies, perceptions, and program development
- Authors:
- FEINBERG Lynn Friss, NEWMAN Sandra L.
- Journal article citation:
- Gerontologist, 44(6), December 2004, pp.760-769.
- Publisher:
- Oxford University Press
Describes the preliminary experiences of 10 US states in providing support services to family or informal caregivers of elderly adults and adults with disabilities, focusing on the newly created National Family Caregiver Support Program, state general funds, Medicaid-waiver programs, and other state-funding streams. Case studies were conducted in March-July 2002 through in-person interviews with state officials and stakeholders in Alabama, California, Florida, Hawaii, Indiana, Iowa, Maine, Pennsylvania, Texas and Washington. States were in the start-up phase of implementing the Program and varied greatly in programme design and integration of caregiver support into their home- and community-based care system. Viewing family caregivers as a client population was a paradigm shift for many state officials. Heavy reliance is currently placed on family and informal caregivers in home- and community-based care, without adequate support services. Family support should be an explicit goal of long-term-care system reform.