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Why family carers matter: a local study of the work of Suffolk Family Carers (part of the Princess Royal Trust Carers Centre Network)
- Authors:
- McDONALD Ann, BAILEY Sue
- Publisher:
- University of East Anglia. School of Social Work and Psychosocial Studies
- Publication year:
- 2008
- Pagination:
- 41p., bibliog.
- Place of publication:
- Norwich
The report is an evaluation of ‘Suffolk Family Carers’ which is a registered charity providing support for people who are caring at home for a family member or friend who is frail, elderly, sick or disabled. The evaluation has a number of different strands. Firstly it will look at who uses their services; where in Suffolk they live, which services they use and with what frequency. Secondly it evaluates whether and how Suffolk Family Carers help carers in their caring role. Thirdly it considers the impact that the organisation has on aspects of carer wellbeing and quality of life, and whether the services enable carers to maintain and develop social and leisure contacts, remain in employment and maintain good health. Fourthly it assesses any preventative impact that the organisation’s services have, in terms of avoiding increased levels of dependency on public services by the carer and the cared-for person. Finally the views of key stakeholders, including commissioning and funding bodies, are sought as to how the organisation is fulfilling its role.
Implementation and delivery of an intergenerational community learning experience: the family home visit program
- Authors:
- NEWELL Debra A., BEACH Robert E.
- Journal article citation:
- Journal of Intergenerational Relationships, 3(1), 2005, pp.6-26.
- Publisher:
- Routledge
- Place of publication:
- Philadelphia
The Family Home Visit Program (FHV) is part of the year-long 1st year Practice of Medicine course, and involves local multi-generational families and students from the schools of medicine and allied health. The FHV program differs considerably from more traditional community-based clinical practice experience: visits to an ill individual, community-based experiences designed for reminiscence by the “patient,” or multiple community-based agency courses/visits. The focus of the current intergenerational FHV is on interaction between families and students in a non-clinical setting, learning about the social and familial context in which health and illness occur and the healthcare priorities of family members. In year 1 of the program, 200 medical students, 40 OT/PT students and 68 families participated; 204 medical students, 70 OT/PT students and 70 families participated in year 2. The development, implementation, evaluation and outcomes of the program across two years are discussed. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Family involvement in residential long-term care: a synthesis and critical review
- Author:
- GAUGLER F.
- Journal article citation:
- Aging and Mental Health, 9(2), March 2005, pp.105-118.
- Publisher:
- Taylor and Francis
The objective of this review is to critically synthesize the existing literature on family involvement in residential long-term care. Studies that examined family involvement in various long-term care venues were identified through extensive searches of the literature. Future research and practice must consider the complexity of family structure, adopt longitudinal designs, provide direct empirical links between family involvement and resident outcomes, and offer rigorous evaluation of interventions in order to refine the literature.
Agreement between dementia patient report and proxy reports using the Nottingham Health Profile
- Authors:
- BOYER F., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 19(11), November 2004, pp.1026-1034.
- Publisher:
- Wiley
The aim of the study was to examine the agreement between patient reports and their proxy reports (family and care provider proxies) on Health Status in a sample of patients with dementia. Completion rates for the different NHP dimensions ranged from 78 to 90% for the dementia subjects. Inter-rater agreement between different proxies and subject was from moderate to good for physical assessment (ICCs from 0.54 to 0.78 for physical mobility scales). Patient/family proxy concordance was moderate to good for five out of six dimensions (physical mobility, social isolation, pain, energy, sleep) and poor for emotional reaction. Family proxies systematically reported lower functioning than did patients in the four subscales assessing: physical mobility (p < 0.0001), energy (p < 0.005), social isolation (p < 0.01) and sleep (p < 0.03). Care provider proxies only estimated physical mobility as lower (p < 0.0001). Age and physical status of the patient significantly affected agreement in patient-care provider proxy ratings. Thus, caution is appropriate when resorting to proxies to estimate the Health Status of a dementia patient.
Gauging quality in constructivist research: the Aldre Vaste Sjuharad model revisited
- Authors:
- NOLAN Mike, et al
- Journal article citation:
- Quality in Ageing, 4(2), August 2003, pp.22-27.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
The Aldre Vaste Sjuharad Centre in West Sweden has as its main goal the promotion of partnerships between older people and their families. In pursing these goals the Centre adopts a broadly constructivist method to research that is 'authentic and meaningful' to those that take part. This paper assesses the quality of the resultant research.
Respite programs for caregivers of persons with dementia: a review with practice implications
- Authors:
- GOTTLIEB B.H., JOHNSON J.
- Journal article citation:
- Aging and Mental Health, 4(2), May 2000, pp.119-129.
- Publisher:
- Taylor and Francis
Critically reviews evidence concerning the role and impact of centre-based respite programs for the family caregivers of persons with dementia. It examines the timing, intensity and duration of day program utilisation, the expectations the caregivers bring to these programs, and the impacts that derive from program participation, drawing on this information to propose ways of optimising the role played by this component of the community's long-term system of care.
Formal and informal support: the great divide
- Authors:
- LYONS Karen S., ZARIT Steven H.
- Journal article citation:
- International Journal of Geriatric Psychiatry, 14(3), March 1999, pp.183-196.
- Publisher:
- Wiley
As we approach the next century, it is clear that neither formal services nor informal family caregivers can meet the needs of a growing population. It is therefore pertinent to reconceptualize the linkages between formal and informal care and move towards an integrative model. This article explores several models of such an interface that exist in the literature and proposes that many of these overlap. Various predictors of formal service use are also explored, with an emphasis on the outcomes of both the informal care giver and the care recipient. Implications for future research include further exploring and understanding the link between formal and informal support and the need to increase recipient of formal care among family caregivers.
A feasibility study of videotaping to assess the relationship between distress in Alzheimer's Disease caregivers and their interaction style
- Authors:
- GALLAGHER-THOMPSON D., et al
- Journal article citation:
- Aging and Mental Health, 1(4), November 1997, pp.346-355.
- Publisher:
- Taylor and Francis
Describes the results of an observational study of spouse dyads where the wife was the caregiver and the husband was the care-receiver, diagnosed with 'probable Alzheimer's Disease'. Couples were videotaped in their home interacting in an unstructured mealtime, and in a structured planning task. A significant correlation was found between the level of conflict in the marriage and the frequency of positive codes observed in the wife during the observations. Several other correlations fell in the expected direction. Limitations of this study and suggestions for future research are also discussed.
Social network patterns among the elderly in relation to their perceived life history in an Eriksonian perspective
- Authors:
- RENNEMARK M., HAGBERG B.
- Journal article citation:
- Aging and Mental Health, 1(4), November 1997, pp.321-331.
- Publisher:
- Taylor and Francis
Looks at how past research has shown that social network patterns, the remembered past, and sense of coherence are all important factors for well-being in old age. In this article, these interrelationships are examined, with special attention given to the gender differences, concerning structures and functions of the social network. Suggests that structures and functions of the social network are sometimes used as compensation for shortcomings in the internal-based self-concept.
Evaluation of a family support unit for elderly mentally infirm people and their carers
- Authors:
- DONALDSON Cam, et al
- Publisher:
- University of Newcastle upon Tyne. Health Care Research Unit
- Publication year:
- 1988
- Pagination:
- 51p., tables, bibliog.
- Place of publication:
- Newcastle upon Tyne
Describes a family support unit funded under the "Rising Tide" initiative, aimed at identifying innovative services which would meet the increasing proportion of elderly and very elderly people in society.