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A different ending: addressing inequalities in end of life care: people with dementia
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 4
- Place of publication:
- Newcastle upon Tyne
This document outlines the experience of people with dementia of barriers to good end of life care. The report is one of a suite of documents reporting on the Care Quality Commission end of life care thematic review, and is designed to be read in conjunction with the other documents. The review supports existing evidence that there are a number of barriers that prevent people with dementia receiving good end of life care, including lack of identification and planning, unequal access to care, and poor quality of care. The Care Quality Commission encourages health professionals, including GPs, to facilitate early conversations with people with dementia and those who are important to them about their wishes and choices for end of life care, and help them to contribute to an advance care plan wherever possible; commissioners and providers to make sure that staff have the training and support they need to care for people with dementia who are approaching the end of life, and to understand and implement the requirements of the Mental Capacity Act 2005; and hospices to consider to what extent they are meeting the end of life care needs of people with dementia, and take action where required in line with our definition of good end of life care in hospice services. (Edited publisher abstract)
A different ending: addressing inequalities in end of life care: lesbian, gay, bisexual or transgender people
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 4
- Place of publication:
- Newcastle upon Tyne
This document outlines the barriers to good end of life care experienced by lesbian, gay, bisexual or transgender people. The report is one of a suite of documents reporting on the Care Quality Commission end of life care thematic review, and is designed to be read in conjunction with the other documents. Although LGBT people experience a higher incidence of life-limiting illness, their experience of care at the end of life has often been overlooked. Evidence shows that discrimination continues to have an adverse impact on people’s access, needs and experience of services. The review found limited evidence of services proactively engaging with LGBT people or specifically considering their needs, although LGBT people were represented in forums or consultations in some areas. LGBT people who took part in the review spoke about their fear of discrimination, which led to some older people hiding their sexual orientation or gender identity, while some same sex couples could feel inhibited and unable to comfort their partner physically in a hospital environment. LGBT people sometimes felt that staff made assumptions about their preferences so they were less able to make choices. They also felt that their partners were sometimes not involved in their care in the same way that a heterosexual partner would be. However, for some LGBT people end of life care they received was good. Some people felt respected, and sexual orientation or gender identity were not felt to be an issue. The Care Quality Commission encourages commissioners, providers and health and care staff to consider the needs of LGBT people in planning and delivering end of life care services; health and care staff to communicate openly and sensitively about sexual orientation and gender identity as a routine part of their delivering good quality, personalised end of life care; and commissioners and providers to collect data on sexual orientation and gender identity as part of an equalities approach to monitoring end of life care outcomes. (Edited publisher abstract)
A different ending: addressing inequalities in end of life care: older people
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 3
- Place of publication:
- Newcastle upon Tyne
Provides detailed information on older people’s experiences of end of life care. This report is one of a suite of documents reporting on the Care Quality Commission end of life care thematic review, and is designed to be read in conjunction with the other documents. The review shows that older people’s experiences of end of life care are mixed, and the document focuses in particular on: staff attitudes; personalised care; and training and support for staff. The document sets out two key recommendations: commissioners and providers to develop systems to support care homes to care for people well at the end of life - to help reduce avoidable hospital admissions and to enable people to die where they choose; and commissioners and providers to make sure that staff who care for people who are likely to be approaching the end of life in any setting to have appropriate training and support to enable them to care for people approaching the end of life. (Edited publisher abstract)
A different ending: addressing inequalities in end of life care: overview report
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2016
- Pagination:
- 41
- Place of publication:
- Newcastle upon Tyne
This report provides the background to the Care Quality Commission thematic review of how dying patients are treated across various settings, an overview of the key findings and recommendations for providers, commissioners and local health and care system leaders, as well as information on what CQC will do going forward. The review focused on end of life care for people who may be less likely to receive good care, whether because of diagnosis, age, ethnic background, sexual orientation, gender identity, disability or social circumstances. The report shows that where commissioners and services are taking an equality-led approach that responds to people’s individual needs, people receive better care. Although some commissioners and providers of end of life care are doing this well, many are not. People from the groups included in the review reported mixed experiences of end of life care, and highlighted barriers that sometimes prevented them from experiencing good, personalised end of life care. In particular, the review found that lack of awareness of people’s individual needs is a significant barrier to good care and that commissioners and providers do not always consider the needs of everyone in their community. (Edited publisher abstract)