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The circumstances and support needs of older people with autism
- Authors:
- STUART-HAMILTON Ian, et al
- Publisher:
- Autism Cymru
- Publication year:
- 2009
- Pagination:
- 55p., bibliog.
- Place of publication:
- Cardiff
Autism Spectrum Disorder (ASD) affects approximately 17,000 people in Wales. It is present from birth and is characterised by difficulties with language and social skills. The full range of forms ASD can take was not understood until the late 1980s, when diagnosis became far common. The result is that older adults missed being diagnosed as children. This project examined the circumstances and support needs of older people with ASD through three research studies: an on-line survey of people with ASD or who believed they had ASD; in-depth interviews with people in middle adulthood diagnosed with, or seeking a diagnosis of, ASD; and secondary analysis of a large Welsh dataset to compare the quality of life and psychological difficulties of adults and older adults with intellectual disability both with and without autism. However, relatively few older adults with ASD were found in spite of a wide-ranging search. Levels of unemployment, anxiety and depression are all significantly higher in older adults with ASD, and Adults with ASD who are employed need support in terms of greater awareness in the workforce; advocacy; and social skills training. In conclusion, collaboration is needed across the UK to carry out a study of a large sample of high functioning individuals diagnosed with, or suspected to have, ASD
Early intervention in dementia care in an Asian community: lessons from a dementia collaborative project
- Authors:
- SEABROOKE Viniti, MILNE Alisoun
- Journal article citation:
- Quality in Ageing, 10(4), December 2009, pp.29-36.
- Publisher:
- Pier Professional
- Place of publication:
- Brighton
The number of older Asians in the UK, and therefore at risk of developing dementia is increasing. The emerging need to address early diagnosis is especially prominent in areas where Asian communities are long established. Set up under the auspices of the South East Dementia Services Collaborative, this pilot project aimed to raise awareness of memory problems and facilitate access to early intervention for older Asians in North West Kent. Using an evaluation methodology adopted by the Collaborative and working through a multi-agency steering group, the project identified an appropriate primary care practice, established a link with a specially trained Asian nurse and devised a set of project materials. By inviting older Asian patients with memory problems to make an appointment with the nurse, and enclosing a culturally relevant information leaflet, older people were encouraged to come forward. The project outcomes include significantly increased referral rates from black and minority ethnic communities to specialist services and greater awareness of dementia-related issues in both primary care and Asian care services. Overall, the evaluation suggests that by engaging with a committed primary care practice it is possible to engage a hitherto marginal group of older people in early intervention in dementia and raise awareness about its benefits.
10 questions to consider: a guide for general practitioners to assist in managing patients with dementia
- Authors:
- JACKSON Graham, HEGDE Rekha
- Publisher:
- University of Stirling. Dementia Services Development Centre
- Publication year:
- 2009
- Pagination:
- 50p., bibliog.
- Place of publication:
- Stirling
- Edition:
- 2nd ed.
This booklet sets out ten questions for general practitioners to consider to assist them in their management of the care of patients with dementia. These are: is there problem behaviour; what are the possible precipitants; what risks are posed by the current situation; does the person have dementia; are there specific reasons for the behaviour; what changes in the environment help; is the use of medication necessary; are there issues of consent; do the carers require support and training; and what other agencies might assist? A comparison of commonly used drugs and their side effects and quick reference NICE and SIGN guidelines are included. The booklet emphasises the need for a thorough assessment of each situation and the need to view the person with dementia in a holistic way.
Dementia in older adults with intellectual disabilities: a report on the state of science on dementia in older adults with intellectual disabilities by the IASSID Special Interest Research Group on Ageing and Intellectual Disabilities
- Authors:
- STRYDOM Andre, et al
- Publisher:
- International Association for the Scientific Study of Intellectual Disabilities
- Publication year:
- 2009
- Pagination:
- 49p., bibliog.
- Place of publication:
- Canterbury
This systematic review summarises current knowledge on dementia in older people with learning disabilities. The review included papers published from 1997 to 2008. Findings are discussed in the areas of: epidemiology; presentation and symptoms; screening, assessment and diagnosis; non-pharmacological and pharmacological interventions and issues for carers.
Seventeen steps: the dementia strategy
- Authors:
- MANTHORPE Jill, ILIFFE Steve
- Journal article citation:
- Mental Health Today, April 2009, pp.25-29.
- Publisher:
- Pavilion
- Place of publication:
- Hove
The authors discuss the aspirations of the National Dementia Strategy and the challenges that need to be faced if the ideas are to become a reality. The discussion focuses on the three main themes of the Strategy: public and professional awareness; early diagnosis and improving the quality of care. The article includes the views of leading commentators.