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SCIE research briefing 3: aiding communication with people with dementia
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
- Edition:
- Rev. ed.
A web-based briefing providing a concise summary of the current knowledge base on aiding communication with people with dementia. Coverage includes ethical considerations, views of service users and carers, innovative practice examples and implications for practice. Also highlights additional contacts and resources. The briefing was commissioned by the Social Care Institute for Excellence (SCIE). The latest edition of this Briefing was produced in April 2005 and the next updated is due in April 2006.
Housing and living well with dementia: from policy to practice in Greater Manchester
- Authors:
- GREATER MANCHESTER HEALTH AND SOCIAL CARE PARTNERSHIP, UNIVERSITY OF MANCHESTER
- Publisher:
- Greater Manchester Health and Social Care Partnership
- Publication year:
- 2021
- Pagination:
- 91
- Place of publication:
- Manchester
This report presents evidence and recommendations on potential interventions in housing to improve the lives of people living with dementia, with a specific focus on housing in community settings in Greater Manchester. The first part of the report consists of a rapid evidence assessment of the academic and grey literatures, including policies, research reports from nongovernmental organisations in addition to peer-reviewed research reports. The review looks at the social context of dementia; discrimination; ageism; language and terminology; inequalities; ethnicity and culture; the Covid-19 pandemic; diversity; support networks; and ageing in place. Part two provides a system-wide analysis mapping provision across Greater Manchester with a gap analysis covering medium and long-term need. Following an overview of demographic trends, the health and social care market, mainstream and specialised housing, part three of this report makes seven recommendations around: 1. accessible guidance and information; 2. integrated pathways; 3. planning ahead; 4. market-shaping; 5. combating stigma; 6. knowledge mobilisation and implementation; 7. evidence-based policy and practice. (Edited publisher abstract)
Towards an increased understanding of reminiscence therapy for people with dementia: a narrative analysis
- Authors:
- MACLEOD Fiona, RUSHE Lesley Storey Teresa, MCLAUGHLIN Katrina
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 20(4), 2021, pp.1375-1407.
- Publisher:
- Sage
Aim: Reminiscence therapy is a popular therapeutic intervention for people with dementia. This review set out to provide a better understanding of reminiscence therapy through a deeper analysis of its contents and delivery. Method: This review examined 22 studies from the most recent Cochrane review (Woods, B., O’Philbin, L., Farrell, E. M., Spector, A. E., & Orrell, M. (2018). Reminiscence therapy for dementia. Cochrane Database of Systematic Reviews, 3, Article 001120) and addressed the following research questions: (1) What are the components of reminiscence therapy? (2) Who delivers reminiscence therapy? (3) How is reminiscence therapy delivered? (4) Is reminiscence therapy underpinned by a theoretical framework? (5) Is reminiscence therapy delivered according to a programme/model? (6) Are there commonalities in the reminiscence therapy components utilised? Multiple and layered narrative analyses were completed. Findings: Thirteen reminiscence therapy components were identified. ‘Memory triggers’ and ‘themes’ were identified as the most common but were found not to be consistently beneficial. Reminiscence therapy was typically delivered in a care setting using a group approach; however, there was no consistency in session composition, intervention duration, as well as the training and supervision provided to facilitators. Operationalisation of theory within reminiscence therapy was not identified. Reminiscence therapy was not consistently delivered according to a programme/model. Lastly, as a result of a small number of studies, the components ‘life stages’, ‘activities’ and ‘family-only sessions’, showed beneficial promise. In summary, this review highlights that reminiscence therapy needs more consistency in content and delivery, in addition to a clear theoretical framework. (Edited publisher abstract)
Mentalization in dementia care: an autoethnographic account of a project worker’s experiences
- Authors:
- LUXMOORE Bethany, McEVOY Phil
- Journal article citation:
- Working with Older People, 21(3), 2017, pp.147-156.
- Publisher:
- Emerald
Purpose: Mentalization is a psychodynamic concept that can help us to understand our emotional responses to others. The purpose of this paper to illustrate how the concept of mentalization may be applied in dementia care. Design/methodology/approach: An autoethnographic account of the author’s experiences (first author), working as a project manager in which the author used the concept of mentalization to pay close attention to how the author’s emotional responses to people with dementia influenced thier communicative interactions. Findings: This paper outlines how the author processed the author’s own internal experiences in both mentalizing and non-mentalizing modes, as the author wrestled with feelings of conscious incompetence. In the non-mentalizing mode, the author was pre-occupied with the author’s own anxieties. The author struggled to relate to or make sense of the experiences of the individuals with advanced dementia that the author engaged with. Moving towards a mentalizing stance helped the author to attune to the embodied experiences of the people with dementia and recognise the reciprocal nature of our communicative interactions. Originality/value: This paper illustrates the role that mentalization may play in developing natural and authentic strategies to support communicative engagement in dementia care. These strategies may be of potential value to family carers. Family carers who can maintain a mentalizing stance may be more able to respond in empathic, person- centred ways to people who are living with dementia. On the other hand, non-mentalizing responses may be a root cause of mis-understanding and emotional disengagement. (Publisher abstract)
A review of conceptualisation of expressed emotion in caregivers of older adults with dementia
- Authors:
- LI Chao-Yin, MURRAY MaryAnne
- Journal article citation:
- Journal of Clinical Nursing, 24(3-4), 2015, pp.332-343.
- Publisher:
- John Wiley and Sons
Aims and Objectives: To clarify the concept of ‘expressed emotion’ and its application to caregivers of older adults with dementia. Background: Expressed emotion has been a useful construct for understanding the quality of family relationships affecting patients with mental illness and their caregivers. However, this concept has been developed without precisely defining ‘expressed emotion’ as it pertains to dementia patients. Clarity regarding expressed emotion will enable nurses to apply knowledge of expressed emotion and provide important information for the development of new clinical interventions for this specific population. Design: Integrative review. Methods: A review of literature on expressed emotion by caregivers of older adults with dementia. The inclusion criteria were: (1) published in English or Chinese during 1970–2012; (2) included both research and theoretical review articles on expressed emotion in nursing and other disciplines such as psychology, psychiatry and sociology. Initially, 236 articles were screened, and finally, 32 articles were evaluated for this review. Results: Emotional expression and expressed emotion were discussed to clarify the distinctions and address overlap between these two similar terms. In addition, expressed emotion was examined further from three different aspects: trait or state, social control and cross-cultural. Finally, the results of reviewed papers for expressed emotion on dementia patients were explored and synthesised. Conclusion: A conceptual definition and a theoretical framework for the concept of expressed emotion are urgently needed to further our understanding of this critical phenomenon. With increasing attention to caregiving for patients with dementia, including the concept of expressed emotion in the research of this field may accelerate understanding of the importance of the family dynamics in advanced ageing caregiving. Relevance to clinical practice: The expressed emotion concept could guide much of current clinical practice and help professional nurses understand the family's experience and perspective on mental illness, especially regarding dementia within the family. (Publisher abstract)
The effectiveness of dyadic interventions for people with dementia and their caregivers
- Authors:
- MOON Heehyul, ADAMS Kathryn Betts
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 12(6), 2013, pp.821-839.
- Publisher:
- Sage
To review the effects of dyadic interventions on caregivers and care recipients in the early stages of dementia searches were carried out on four databases (AgeLine, Medline, EBSCO, and PyscINFO) and relevant literature from 2000 onwards reviewed. The twelve studies identified used a variety of intervention approaches including support group, counseling, cognitive stimulation, skill training, and notebook-keeping. This review suggests that intervention programs for early-stage dementia caregiving dyads were feasible and well accepted by participants. The reviewed studies provided rich evidence of the significance of mutual understanding and communication to partners’ well-being and relationship quality within the caregiving process. The findings suggest that these intervention approaches improved cognitive function of the care recipients, social relations, and the relationship between the primary caregivers and the care recipients, although evidence of long-term effectiveness is lacking. (Edited publisher abstract)
People with dementia living in extra care housing: learning from the evidence
- Author:
- DUTTON Rachael
- Journal article citation:
- Working with Older People, 14(1), March 2010, pp.8-11.
- Publisher:
- Emerald
A review of the literature relating to people with dementia who are living in extra care was recently commissioned by the Housing and Dementia Research Consortium, and this article discusses and presents key messages from areas where there is a strong research evidence base and some findings from small evaluation studies carried out in the UK. It looks at whether extra care is an appropriate environment for people with dementia, what is important to people with dementia living in extra care, whether extra care can be a home for life for someone with dementia and key gaps in the evidence base. The author concludes that further studies are needed in the UK to improve the robustness of current research evidence relating to people with dementia living in extra care, and that few studies address how best to implement research findings into practice.
Report from the ministerial summit on dementia: organised by the Department of Health (England) and the Medical Research Council: November 2009
- Authors:
- BAMFORD Sally-Marie, (comp.)
- Publisher:
- International Longevity Centre UK
- Publication year:
- 2009
- Pagination:
- 63p.
- Place of publication:
- London
This Report summarises the presentations, discussions and ideas which emerged from the Ministerial Dementia Research Summit held on 21st July 2009 at the Royal Society in London. The purpose of the Summit was to identify gaps in existing knowledge and to prioritise new areas for research in the dementia field, including improving the quality of care services and appraising specific interventions, and also more basic work on the causes of dementia or on the possibility of cure. In addition to helping to develop a more clearly prioritised research agenda, the Summit also aimed to focus on ways to support the current science base and sharpen its impact. This could include better coordination of research effort, actions to increase the competitiveness of research bids and/or enhance the translation of research into effective practice.
Dementia research in China
- Authors:
- CHIU Helen F.K., ZHANG Mingyuan
- Journal article citation:
- International Journal of Geriatric Psychiatry, 15(10), October 2000, pp.947-953.
- Publisher:
- Wiley
There is little information on dementia research in China in the international literature. This paper is an overview of studies on dementia conducted in China. Studies on dementia research in China were identified through a literature search, as well as through consulting Chinese psychiatrists and neurologists with expertise in the field. These studies were then reviewed. Finds that there is much research activity in China in the field of dementia and further cross-cultural studies are useful to examine the cultural differences in various areas of dementia research.
Reminiscence: a critical review of the empirical literature
- Authors:
- THORNTON S., BROTCHIE J.
- Journal article citation:
- British Journal of Clinical Psychology, 26(2), 1987, pp.93-111.
- Publisher:
- Wiley
-