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The effectiveness of dyadic interventions for people with dementia and their caregivers
- Authors:
- MOON Heehyul, ADAMS Kathryn Betts
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 12(6), 2013, pp.821-839.
- Publisher:
- Sage
To review the effects of dyadic interventions on caregivers and care recipients in the early stages of dementia searches were carried out on four databases (AgeLine, Medline, EBSCO, and PyscINFO) and relevant literature from 2000 onwards reviewed. The twelve studies identified used a variety of intervention approaches including support group, counseling, cognitive stimulation, skill training, and notebook-keeping. This review suggests that intervention programs for early-stage dementia caregiving dyads were feasible and well accepted by participants. The reviewed studies provided rich evidence of the significance of mutual understanding and communication to partners’ well-being and relationship quality within the caregiving process. The findings suggest that these intervention approaches improved cognitive function of the care recipients, social relations, and the relationship between the primary caregivers and the care recipients, although evidence of long-term effectiveness is lacking. (Edited publisher abstract)
Families, services and confusion in old age
- Authors:
- LEVIN Enid, SINCLAIR Ian, GORBACH Peter
- Publisher:
- Avebury
- Publication year:
- 1989
- Pagination:
- 328p., tables, diags., bibliog.
- Place of publication:
- Aldershot
Report of a NISW study which aimed to identify the specific problems faced by carers of elderly mentally infirm people, to assess which were more and which were less stressful, and to explore the effectiveness of services.
Positive aspects of family caregiving for older adults at end-of-life: a qualitative examination
- Authors:
- HOVLAND Cynthia A., MALLETT Christopher A.
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 17(1), 2021, pp.64-82.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
Family caregivers of older adults with dementia have significant challenges across many domains. While this role has been found to be burdensome on the caregiver, increasingly, though, there are also significant positive aspects reported by caregivers (known as the positive aspects of caregiving—PAC). This participatory qualitative study of 30 United States caregivers of family members age 65 and older who died with a dementia-related diagnoses used in-depth qualitative interviews and directed content analysis to understand the data. The study addressed a gap in the research literature and asked about caregiver’s positive experiences during their family members’ last weeks of life and investigated what this meant for the caregiver. Three primary themes were identified: (1) The Importance and Impact of Family Traditions/Celebrations, (2) Use of Humor in Living and the Difficult Experiences at End-of-Life, and (3) ”The Gift of Caregiving.” These findings are explored and reviewed in light of other research looking at the positive aspects of caregiving for caregivers taking care of persons living with dementia, finding concurrence and some uniqueness across the results. Implications of the findings for families and social work professionals are reviewed. (Edited publisher abstract)
Self and next of kin's assessment of personality and sense of coherence in elderly people: implications for dementia care
- Authors:
- HOLST Göran, RENNEMARK Mikael, HALLBERG Ingalill R.
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 11(1), January 2012, pp.19-30.
- Publisher:
- Sage
The best people able to understand the behaviour of individuals with severe dementia are usually close family members, rather than the nurses who care for them. This study evaluated the inter-rater agreement between healthy elderly people's self-assessment and the assessment made by a next of kin concerning personality and sense of coherence. Participants included 154 individuals from Sweden. Findings revealed a high or moderate agreement in ratings, showing that, in general, a close relative was able to report on the personality of a next of kin. The agreement was high on coherence and extraversion and lower on neuroticism. For neuroticism, length of time in the relationship increased the odds for a good inter-rater agreement. The authors concluded that next of kin provided reliable information and could therefore aid nurses in the care of older people with dementia.
10 helpful hints for carers: practical solutions for carers living with people with dementia
- Authors:
- ANDREWS June, HOUSE Allan
- Publisher:
- University of Stirling. Dementia Services Development Centre
- Publication year:
- 2009
- Pagination:
- 55p.
- Place of publication:
- Stirling
This easy to read guide provides simple, practical solutions to the everyday problems family carers can face when looking after a person with dementia. It is based on a literature review. The seven sections each give ten suggested solutions or helpful hints and cover how to create a relaxing environment and how to cope with aggression, agitation or anxiety, depression, hallucination, sleeplessness, and wandering. The final section of the booklet lists organisations or services that might provide help.
Le fonctionnement familial percu en contexte de soutien a domicile d'un parent age
- Author:
- VEZINA Aline
- Journal article citation:
- Canadian Social Work Review, 20(2), 2003, pp.203-226.
- Publisher:
- Canadian Association for Social Work Education
This qualitative and exploratory Canadian study investigates perceived family dynamics in caregiving and compares the perspectives of primary caregivers, depending on whether the caregiver is the elderly person's spouse or child and whether or not the elderly person has dementia and associated problems. Data from 31 semi structured interviews of caregivers were analysed using McMacter's model. The results show that, for various reasons of their own, spouses and daughters ask for less help from other family members. Some aspects of family dynamics appear to be different in situations involving an older person with dementia or a difficult personality. [Article in French].
Training families to provide care: effects on people with dementia
- Author:
- TERI Linda
- Journal article citation:
- International Journal of Geriatric Psychiatry, 14(2), February 1999, pp.110-119.
- Publisher:
- Wiley
This article addresses four questions concerning family training in dementia; what do we know about what works; how do we know it; what do we now need to know; how should we go about trying to find this out. In addition, it provides some introductory information on the nature of family caregivers in dementia and the phenomenology of care giver burden and behavioural problems in dementia, often the focus of family training.
Social work and dementia: cases in point
- Authors:
- VANCE Violet, KERNAGHAN Ann
- Journal article citation:
- Professional Social Work, December 1997, p.13.
- Publisher:
- British Association of Social Workers
Explores what social work can offer people with dementia and their carers through the use of two case studies.
Living with dementia
- Author:
- PEACE Gillian
- Journal article citation:
- Nursing Times, 8.11.95, 1995, pp.40-41.
- Publisher:
- Nursing Times
Carers of people with Alzheimer's Disease often feel abandoned as support services are poorly funded and resourced. Describes the experience of one family caring for a relative with the condition.
Supporting carers in their own right
- Authors:
- GREENWOOD Monica, WALSH Kiri
- Journal article citation:
- Journal of Dementia Care, 3(2), March 1995, pp.14-16.
- Publisher:
- Hawker
The Admiral Nurse Service, now to be extended nationwide was established to offer practical and emotional support for families and others who provide care to people with dementia at home. Describes the four year project and its findings.