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Dementia doesn't discriminate
- Author:
- ENGLISH Francis
- Journal article citation:
- Journal of Dementia Care, 9(4), July 2001, p.8.
- Publisher:
- Hawker
Describes two new videos produced by Alzheimer's Concern Ealing, following its pioneering work in support of people with dementia and carers from ethnic minority groups.
Demented and mentally impaired clients from ethnic minorities
- Authors:
- BADGER Frances, CAMERON Elaine, EVERS Helen
- Publisher:
- University of Birmingham. Health Services Research Centre
- Publication year:
- 1988
- Pagination:
- 17p., bibliog.
- Place of publication:
- Birmingham
Analyses the main research findings relating to people of either Asian or Afro-Caribbean origin in Birmingham suffering from dementia.
Dementia, culture and ethnicity: issues for all
- Editors:
- BOTSFORD Julia, HARRISON DENING Karen
- Publisher:
- Jessica Kingsley
- Publication year:
- 2015
- Pagination:
- 328
- Place of publication:
- London
With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, the book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. (Edited publisher abstract)
How to construct a case of Alzheimer's disease in three languages: case-based reasoning in narrative gerontology
- Authors:
- SCHRAUF Robert W., et al
- Journal article citation:
- Ageing and Society, 34(2), 2014, pp.280-309.
- Publisher:
- Cambridge University Press
This paper explores how people reason about Alzheimer's disease by telling stories about others who have the disease. More specifically, the paper is a cross-linguistic investigation of the narrative and linguistic devices used by African Americans in English, Mexican Americans in Spanish, and refugees/immigrants from the former Soviet Union (to the United States of America) in Russian in their oral productions of such stories. The authors examine the narratives as instances of case-based reasoning in which lay people (non-medical professionals) distinguish, represent and ‘perform’ symptomatic behaviours and construct a ‘case’ of the disease as a way of probing the difference between the normal and the pathological in conversational contexts. In particular, the authors examine situations in which stories are accepted and confirmed and situations in which stories are contested and negotiated. Common narrative and discursive devices across the three languages include concatenation, intertextuality, conjunction and conjunctive adverbs, lexical opposition, past progressive tenses, temporal adverbials, reported speech and prosodic cues. The fine-grained analysis of these narrative and discursive devices lays bare the inner-workings of case-based reasoning as a conversational task and suggests specific linguistic tools for intervening in lay narrative reasoning in clinical settings and in public health messaging about Alzheimer's disease. (Edited publisher abstract)
Determinants of job satisfaction in foreign domestic helpers caring for people with dementia in Hong Kong
- Journal article citation:
- Health and Social Care in the Community, 21(5), 2013, p.472–479.
- Publisher:
- Wiley
The job satisfaction of live-in foreign domestic helpers (FDHs) may influence their caring motivation and the quality of care they provide, which may in turn affect the health status of care recipients. This study identifies the factors affecting job satisfaction of FDHs caring for people with dementia in Hong Kong, focusing especially on the role of FDHs' adaptation status, job self-efficacy and care recipients' situation. A total of 152 FDHs taking care of people with dementia were recruited from 6 day care centres for elderly people in Hong Kong when they attended with their care recipients. Data were collected from February to August 2011 and the response rate was 95%. Participants completed questionnaires which included measures of care recipients' dementia severity and disruptive behaviours, FDHs' demographic factors, personal adaptation status, caregiving self-efficacy and job satisfaction. Hierarchical regression analysis was conducted to analyse the data. The results showed that longer stay in Hong Kong, better fluency in Cantonese (local dialect), greater satisfaction in living conditions, higher caregiving self-efficacy and less disruptive behaviour of care recipients were independently associated with stronger job satisfaction in FDHs looking after people with dementia. On the basis of these findings, we would suggest that employers should consider helpers who have been in Hong Kong for a longer period of time and speak fluent Cantonese, and have previous experience of taking care of people with dementia. In addition, FDHs caring for people with dementia may benefit from carer training which improves their self-efficacy in dementia care. (Publisher abstract)
Race and cognitive decline among community-dwelling elders with mild cognitive impairment: findings from the Memory and Medical Care Study
- Authors:
- LEE Hochang B., et al
- Journal article citation:
- Aging and Mental Health, 16(3), April 2012, pp.372-377.
- Publisher:
- Taylor and Francis
This paper considers the relationship between race and cognitive decline in elders with dementia. Previous studies have reported inconsistent findings on the relationship between race and cognitive decline, and suggested it might differ across the level of cognitive impairment. This study aimed to investigate the relationship between race and cognitive decline in community-dwelling elders with mild cognitive impairment (MCI). The findings are taken from the Memory and Medical Care Study, a prospective observational cohort study that examined variations in the practice of caring for cognitively impaired elders living in the community. This study included 133 participants who were diagnosed with MCI; 112 (76.7%) of the participants were female, and 59 (44.4%) were black. The main outcome measure was the Telephone Interview for Cognitive Status (TICS) score over 3 years. The findings showed that the 3-year decline in mean TICS score was significantly higher among African Americans than non-African Americans. The article concludes that the rate of cognitive decline in MCI appears to be faster in African Americans than non-African Americans in the community. Diagnosis of MCI among African American elders could lead to early interventions to prevent or delay cognitive decline in the future.
Over- and under-diagnosis of dementia in ethnic minorities: a nationwide register-based study
- Authors:
- NIELSEN T. R., et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 26(11), November 2011, pp.1128-1135.
- Publisher:
- Wiley
Professionals in several European countries have suggested that dementia is under-diagnosed and under-treated to a greater extent among ethnic minorities than the native population. This study compared the prevalence of register-based dementia diagnoses in the largest ethnic minority groups in Denmark with the prevalence of register-based dementia diagnoses in the general Danish population. Linking the Danish hospital registers with the Danish Civil Registration System, made it possible to identify dementia cases for three main ethnic minorities (ex-Yugoslavia, Turkey and Pakistan). Age- and gender-specific prevalence rates were calculated. The study population consisted of 68219 persons aged 20 and older. A total of 174 dementia cases were identified, with a mean age at diagnosis of 57.7 years. Compared to the general population, there was a higher prevalence of dementia among those below 60 years, and a markedly lower prevalence among those 60 years and older. The authors conclude that dementia is, as hypothesised, under-diagnosed to a greater extent among ethnic minorities in the age group 60 years and older but note that it is over-diagnosed in younger age group. They suggest factors that may contribute to this pattern, including cultural differences in help-seeking behaviour, and problems in navigating the health-care system. It is also noted that cross-cultural assessment of dementia can be difficult because of language barriers and cultural differences.
Bringing dementia out of the shadows for BME elders: a report on the work of the Ethnic Minorities Dementia Advocacy Project (Emdap) to March 2009
- Authors:
- WESTMINSTER ADVOCACY SERVICE FOR SENIOR RESIDENTS, DEMENTIA ADVOCACY NETWORK
- Publisher:
- Westminster Advocacy Service for Senior Residents; Dementia Advocacy Network
- Publication year:
- 2009
- Pagination:
- 44p.
- Place of publication:
- London
This is the report of a project undertaken to raise awareness of dementia and dementia advocacy amongst black and minority ethnic communities. The EMDAP project was also designed to raise awareness amongst existing advocacy services to ensure that their services are accessible to people with dementia from those communities, and to support advocacy service providers through sharing expertise and providing training. Findings showed that very little is known of the numbers or the experience of black and minority ethnic people with dementia, and that in some communities there are cultural barriers to the diagnosis of dementia, and indeed access to support. This report describes how the project succeeded in mapping the black and minority ethnic population with dementia numbers and their experience of dementia. The project also raised awareness for the need for, and value of, dementia advocacy, and developed training materials that have positively received. Along with good practice guidelines for advocacy organisations, the project also identified gaps in social care provision.
Differences between older black residents of Special Care Units (SCUs) and of traditional units
- Authors:
- LYONS Beverley, et al
- Journal article citation:
- Journal of Social Work in Long-Term Care, 3(1), 2004, pp.29-41.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
This study compares the differences in attributes between older SCU residents and non-SCU residents with dementing illnesses. It used the Institutional Comprehensive Assessment and Referral Evaluation (INCARE) screening measure as a basis for analyses. A probability sample, consisting of 181 black elders residing in nursing homes in New York State, had been drawn earlier as part of the ten collaborative studies of dementia special care sponsored by the National Institute on Aging. Findings indicate that black elders in SCUs are different from the typical dementia special care residents as discussed in the literature. Implications are discussed in terms of social work practice. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Older people
- Author:
- MANTHORPE Jill
- Journal article citation:
- Research Matters, April 2002, pp.41-50.
- Publisher:
- Community Care
Looks at how dementia among people from ethnic minority backgrounds, intermediate care, and ethical questions on the involvement of dementia sufferers are some of the recent subjects of studies on older people.