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New approaches to understanding dementia
- Author:
- GINESI Laura
- Journal article citation:
- Nursing Times, 112(25), 2016, pp.16-19.
- Publisher:
- Nursing Times
Improving understanding of brain disorders is likely to be one of the core aims of physiological research in the 21st century. This article, the second in a four-part series, looks at the main types of dementia and explores emerging theories about how the condition develops. These theories are improving understanding of the neuro-degeneration that characterises the most common forms of dementia, and will help improve care for those living with dementia. (Publisher abstract)
Perceptions of cause and control in people with Alzheimer’s Disease
- Authors:
- MATCHWICK Claire, et al
- Journal article citation:
- Gerontologist, 54(2), 2014, pp.268-276.
- Publisher:
- Oxford University Press
Purpose of the Study: To explore cause and control illness representations in older adults with Alzheimer’s disease (AD). Design and Methods: Six older adults living in the North West of England completed semi-structured interviews that were subject to an interpretative phenomenological analysis. Results: Three main themes emerged indicating that participants were trying to make sense of their AD by comparing it with their previous experience of physical health illnesses. All participants acknowledged their diagnosis of AD but engaged with it in a graded way because of a lack of tangible diagnostic evidence. Participants developed pragmatic emotional responses to their situation. Implications: One of the main implications of the results is that caution needs to be exercised within clinical practice so that the pragmatic responses of individuals with AD are not pathologised. (Edited publisher abstract)
The living dead? The construction of people with Alzheimer's disease as zombies
- Author:
- BEHUNIAK Susan M.
- Journal article citation:
- Ageing and Society, 31(1), January 2011, pp.70-92.
- Publisher:
- Cambridge University Press
Current literature shows how both Alzheimer's disease, and the people that suffer from it, have been stigmatised. In this article, the author suggests that Alzheimer's stigma is of a specific sort – dehumanisation based on disgust and fear. While blame for negative perceptions of people with Alzheimer's has been placed on the biomedical understanding of dementia, the author argues that strong negative emotional responses to Alzheimer's are also reinforced by the social construction of people with Alzheimer's as zombies. To highlight the case, this article identifies seven specific ways that the zombie metaphor is referenced in both the scholarly and popular literature on Alzheimer's. This common referencing of zombies is significant as it pervades the social discourse about Alzheimer's with a politics of revulsion and fear that separates and marginalises those with the disease. The article concludes that by recognising the power of this zombie label, its negative impact can be addressed through an emphasis of connectedness, commonality, and inter-dependency.
Music therapy in dementia care
- Editors:
- ALDRIDGE David, (ed.)
- Publisher:
- Jessica Kingsley
- Publication year:
- 2000
- Pagination:
- 256p., bibliog.
- Place of publication:
- London
The editor brings together the diverse research and personal experience of contributors from around the world to examine music therapy as a means of improving memory, health and identity in those suffering from dementia, particularly the Alzheimer's disease. It explores the issues which may arise in working with this group, such as coping with wartime memories, and shows how music therapy facilitates and enables communication through sound and movement. The book is expected to be of interest to caregivers and families of dementia sufferers and to become an essential resource for music therapists and professionals caring for dementia sufferers. Topics covered include: an overview of music therapy literature relating to elderly people; working with words, the significance of narratives; the importance of singing with elderly patients; the problem of agitation and potential benefits from music therapy; experience from the Netherlands; improvisation as an assessment of early Alzheimer’s disease; creative music therapy; remembering and forgiving; working with images and recollection; and dance movement therapy.
Deaths from Alzheimer's disease, dementia and senility in England
- Author:
- NATIONAL END OF LIFE CARE INTELLIGENCE NETWORK
- Publisher:
- National End of Life Care Intelligence Network
- Publication year:
- 2010
- Pagination:
- 34p.
- Place of publication:
- London
The analyses in this report are based on deaths registered between 2001 and 2009 of people who were usually resident in England and who died with Alzheimer's disease, dementia or senility recorded on their death certificates. The analyses examine numbers, age and gender profiles, and place of death, using mortality data compiled by the Office for National Statistics. The results show that there were 631,078 deaths for which one or more of the conditions Alzheimer's disease, dementia or senility were mentioned on death certificates between 2001 and 2009, representing approximately 15% of all deaths recorded in England over the same period.
The brain and person-centred care: 2. Making sense of the paradoxes of dementia
- Author:
- MILWAIN Elizabeth
- Journal article citation:
- Journal of Dementia Care, 18(1), January 2010, pp.23-25.
- Publisher:
- Hawker
Dementia is defined as a syndrome of acquired intellectual loss, in which memory and at least one other cognitive function are damaged to such a degree that a person's normal life and functions are adversely affected. In this second article of a series on the brain and dementia care, the author explains how an understanding of the organisation of the human brain, and the fact that it is not one structure but many, can help with understanding some aspects of dementia including Alzheimer's disease. The article gives a brief overview of how the brain is organised, highlighting how certain structures of the brain are vulnerable to the causes of dementia but others less so and that of all the structures of the brain it is the cerebral cortex which is most involved in the symptoms of dementia, and noting that it is vital that each person is assessed individually, because different kinds of dementia will affect different parts of the brain.
Understanding Alzheimer's disease and other dementias
- Authors:
- GRAHAM Nori, WARNER James
- Publisher:
- Family Doctor
- Publication year:
- 2009
- Pagination:
- 160p.
- Place of publication:
- Poole
Dementia is a term used to describe any condition where a variety of different brain functions such as memory, thinking, recognition, language, planning and personality deteriorate over time. Everyone gets more forgetful as they get older but that does not mean that they have dementia - it is not part of normal ageing. The most common type of dementia is Alzheimer's disease, but there are several other types. This book is intended for patients and carers and for anyone who may be worried that they or one their family or friends may have dementia. Chapters include: Symptoms of dementia; Treatments for dementia; Living with dementia; Future prospects.
Coping with mild Alzheimer's disease
- Authors:
- SORENSEN Lisbeth, WALDORFF Frans, WALDEMAR Gunhild
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 7(3), August 2008, pp.287-299.
- Publisher:
- Sage
The aim of this study was to analyse how patients with mild Alzheimer's disease (AD) cope with the changes they face concerning everyday life and social relations. This study used a grounded theory approach in the analysis of interview data from 11 persons with mild AD, home-living with a spouse. The analysis revealed that the basic social psychological problem faced by patients with mild AD was their awareness of decline in personal dignity and value. Coping strategies used to meet these problems were adaptations to the altered situation in order to maintain a feeling of well-being. The spouse appeared to be the most important social relation. The most significant worries of the patients were about communication in relation to their spouse, and about the reaction of the spouse to the consequences of the disease.
Fact file: Alzheimer's and other dementia's
- Author:
- GEORGE Mike
- Journal article citation:
- Care and Health Magazine, 45, 24.9.03, 2003, pp.38-40.
- Publisher:
- Care and Health
Looks at the different types of dementia and offers some practical advice. Discusses Alzheimer's, Vascular dementia, Dementia with Lewy bodies, and Fronto-temporal dementia.
Sleep and the person with dementia
- Author:
- HOWCROFT Deborah
- Journal article citation:
- Journal of Dementia Care, 11(1), January 2003, pp.33-36.
- Publisher:
- Hawker
Describes the type of sleep problems that can affect people with dementia and their carers, how these problems can be assessed and some possible strategies that can help.