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Money management and elderly people with dementia
- Authors:
- LANGAN Joan, MEANS Robin
- Journal article citation:
- Elders the Journal of Care and Practice, 3(3), September 1994, pp.33-42.
Elderly people with dementia pose complex issues around the management of their financial affairs. This article looks at the law relating to the handling of other people's money in England and Wales, and draws out the policy and practice implications for those working with elderly people.
SCIE research briefing 3: aiding communication with people with dementia
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
- Edition:
- Rev. ed.
A web-based briefing providing a concise summary of the current knowledge base on aiding communication with people with dementia. Coverage includes ethical considerations, views of service users and carers, innovative practice examples and implications for practice. Also highlights additional contacts and resources. The briefing was commissioned by the Social Care Institute for Excellence (SCIE). The latest edition of this Briefing was produced in April 2005 and the next updated is due in April 2006.
How do people with dementia make sense of their medications? An interpretative phenomenological analysis study
- Authors:
- LIM Rosemary H. M., SHARMEEN Taniya, DONYAI Parastou
- Journal article citation:
- International Journal of Geriatric Psychiatry, 37(2), 2022,
- Publisher:
- Wiley
Background: Managing medication is complex and multifaceted for people with dementia and their family carers. Despite efforts to support medication management, medication errors and medication-related hospital admissions still occur. This study investigated how people with dementia viewed and talked about their different medications and their medication taking. Methods: An interpretative phenomenological analysis (IPA) qualitative research design combining photo elicitation and in-depth interviews was used. People with a diagnosis of mild or moderate dementia took photographs of anything they viewed to be related to medication, with or without the help of family carers, over any two-day period. The photographs were then used as cues for subsequent in-depth interviews, which were analysed using IPA. Results: Twelve people with dementia were interviewed. Four themes encapsulated the experiences: (1) Medication as a lifeline, (2) Managing medications dominates daily lives and plans, (3) Struggling with uncertainty about the effectiveness of dementia medication and (4) Sense of ‘being’ and being in control. People with dementia viewed medication as a lifeline, especially donepezil, giving it preference over other daily medication they were using. Managing medications dominated the daily lives and plans of people with dementia and changed the way they viewed themselves and their life. People with dementia continually struggled with the imperceptible benefits of donepezil on their dementia, but despite such uncertainties, continued to take donepezil. Conclusions: This study provided unique insights into how people with dementia made sense of their medication. Healthcare professionals can use these insights to shape their practice around medication prescribing and advice in dementia. The findings are also useful to researchers looking to develop interventions to support medication management within the home setting. (Edited publisher abstract)
Housing and living well with dementia: from policy to practice in Greater Manchester
- Authors:
- GREATER MANCHESTER HEALTH AND SOCIAL CARE PARTNERSHIP, UNIVERSITY OF MANCHESTER
- Publisher:
- Greater Manchester Health and Social Care Partnership
- Publication year:
- 2021
- Pagination:
- 91
- Place of publication:
- Manchester
This report presents evidence and recommendations on potential interventions in housing to improve the lives of people living with dementia, with a specific focus on housing in community settings in Greater Manchester. The first part of the report consists of a rapid evidence assessment of the academic and grey literatures, including policies, research reports from nongovernmental organisations in addition to peer-reviewed research reports. The review looks at the social context of dementia; discrimination; ageism; language and terminology; inequalities; ethnicity and culture; the Covid-19 pandemic; diversity; support networks; and ageing in place. Part two provides a system-wide analysis mapping provision across Greater Manchester with a gap analysis covering medium and long-term need. Following an overview of demographic trends, the health and social care market, mainstream and specialised housing, part three of this report makes seven recommendations around: 1. accessible guidance and information; 2. integrated pathways; 3. planning ahead; 4. market-shaping; 5. combating stigma; 6. knowledge mobilisation and implementation; 7. evidence-based policy and practice. (Edited publisher abstract)
Caring for someone with dementia: findings from three roundtable sessions, covering Wales nationally, and the Swansea and North Wales regions
- Author:
- CARERS TRUST WALES
- Publisher:
- Carers Trust Wales
- Publication year:
- 2020
- Pagination:
- 8
- Place of publication:
- London
This report follows a series of roundtable sessions, hosted at both a national and regional level in Wales, and attended by a wide range of experts and professionals in the field of dementia and dementia care. The report notes several reoccurring suggestions from the three sessions, as to how the sector can improve the ways they support carers of people living with dementia, including: increased collaboration between third sector, local government, and service providers; prioritising respite and care support post-pandemic; the need for more sustainable funding to meet the growing demand for services. The report highlights several pathways to improving support for older carers, which we will look to develop across the lifetime of the project, including: establishing learning sessions for those working within the field of dementia and dementia care, so that new techniques and tools can be shared and adopted universally; creating a ‘carer profile’ template for carers, to be shared with organisations – this will ensure that carers have their personal situation known by professionals they work with, and will not have to continually explain their circumstances to new individuals; creating a ‘positive conversations’ resource for healthcare professionals, disseminating how to have positive conversations with carers, and including a glossary of medical terms associated with dementia that many carers may struggle to understand. (Edited publisher abstract)
Can person-centred care for people living with dementia be delivered in the acute care setting?
- Authors:
- ABBOTT Rebecca A., et al
- Journal article citation:
- Age and Ageing, 50(4), 2021, pp.1077-1080.
- Publisher:
- Oxford University Press
The need to improve care for people living with dementia in the hospital setting has long been recognised. Person-centred care has the potential to improve the experience of care for persons living with dementia and their carers, and has been shown to improve the experiences of hospital staff caring for the persons living with dementia, however it remains challenging to deliver in a time- and task-focussed acute care setting. This commentary suggests that to embed person-centred care across the hospital environment, cultural changes are needed at organisational and ward levels. In particular there needs to be: leadership that supports and advocates for workforce capacity to recognise and meet both psychological and physical needs of people living with dementia, promotion of physical environments that support familiarisation and social interactions, an inclusive approach to carers and the development of a culture of sharing knowledge and information across hierarchies and roles. An evidence-based set of pointers for service change are described which highlight institutional and environmental practices and processes that need to be addressed in order for person-centred care to become part of routine care. (Edited publisher abstract)
Towards an increased understanding of reminiscence therapy for people with dementia: a narrative analysis
- Authors:
- MACLEOD Fiona, RUSHE Lesley Storey Teresa, MCLAUGHLIN Katrina
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 20(4), 2021, pp.1375-1407.
- Publisher:
- Sage
Aim: Reminiscence therapy is a popular therapeutic intervention for people with dementia. This review set out to provide a better understanding of reminiscence therapy through a deeper analysis of its contents and delivery. Method: This review examined 22 studies from the most recent Cochrane review (Woods, B., O’Philbin, L., Farrell, E. M., Spector, A. E., & Orrell, M. (2018). Reminiscence therapy for dementia. Cochrane Database of Systematic Reviews, 3, Article 001120) and addressed the following research questions: (1) What are the components of reminiscence therapy? (2) Who delivers reminiscence therapy? (3) How is reminiscence therapy delivered? (4) Is reminiscence therapy underpinned by a theoretical framework? (5) Is reminiscence therapy delivered according to a programme/model? (6) Are there commonalities in the reminiscence therapy components utilised? Multiple and layered narrative analyses were completed. Findings: Thirteen reminiscence therapy components were identified. ‘Memory triggers’ and ‘themes’ were identified as the most common but were found not to be consistently beneficial. Reminiscence therapy was typically delivered in a care setting using a group approach; however, there was no consistency in session composition, intervention duration, as well as the training and supervision provided to facilitators. Operationalisation of theory within reminiscence therapy was not identified. Reminiscence therapy was not consistently delivered according to a programme/model. Lastly, as a result of a small number of studies, the components ‘life stages’, ‘activities’ and ‘family-only sessions’, showed beneficial promise. In summary, this review highlights that reminiscence therapy needs more consistency in content and delivery, in addition to a clear theoretical framework. (Edited publisher abstract)
COVID 19 and dementia: experience from six European countries
- Authors:
- BURNS Alistair, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, early cite 18 January 2021,
- Publisher:
- Wiley
The effects of Covid‐19 have been well documented across the world with an appreciation that older people and in particular those with dementia have been disproportionately and negatively affected by the pandemic. This is both in terms of their health outcomes (mortality and morbidity), care decisions made by health systems and the longer‐term effects such as neurological damage. The International Dementia Alliance (IDEAL) is a group of dementia specialists from six European countries and this paper is a summary of our experience of the effects of COVID‐19 on our populations. Experience from England, France, Germany, the Netherlands, Spain and Switzerland highlight the differential response from health and social care systems and the measures taken to maximise support for older people and those with dementia. The common themes include recognition of the atypical presentation of COVID‐19 in older people (and those with dementia) the need to pay particular attention to the care of people with dementia in care homes; the recognition of the toll that isolation can bring on older people and the complexity of the response by health and social services to minimise the negative impact of the pandemic. Potential new ways of working identified during the pandemic could serve as a positive legacy from the crisis. (Edited publisher abstract)
Use of dementia care mapping in the care for older people with intellectual disabilities: a mixed‐method study
- Authors:
- SCHAAP Feija D., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 34(1), 2021, pp.149-163.
- Publisher:
- Wiley
Background: The ageing of people with intellectual disabilities, with associated morbidity like dementia, calls for new types of care. Person‐centred methods may support care staff in providing this, an example being Dementia Care Mapping (DCM). DCM has been shown to be feasible in ID‐care. We examined the experiences of ID‐professionals in using DCM. Methods: We performed a mixed‐methods study, using quantitative data from care staff (N = 136) and qualitative data (focus‐groups, individual interviews) from care staff, group home managers and DCM‐in‐intellectual disabilities mappers (N = 53). Results: DCM provided new insights into the behaviours of clients, enabled professional reflection and gave new knowledge and skills regarding dementia and person‐centred care. Appreciation of DCM further increased after the second cycle of application. Conclusion: DCM is perceived as valuable in ID‐care. Further assessment is needed of its effectiveness in ID‐care with respect to quality of care, staff‐client interactions and job performance. (Edited publisher abstract)
Dementia across local districts in England 2014 to 2015
- Authors:
- TAMPUBOLON Gindo, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 33(8), 2018, pp.1127-1131.
- Publisher:
- Wiley
Background: The number of older people needing dementia care is projected to rise rapidly, and local districts are now charged with responding to this need. But evidence on local area factors of dementia is scarce. The authors studied the odds of dementia prevalence and its individual risk factors enriched with area factors. Materials and methods: This study analysed objectively assigned dementia prevalence in people aged 60 and over living in community in England, drawing data from the English Longitudinal Study of Ageing 2014 to 2015 and local districts statistics using multilevel logistic models. Dementia status is ascertained using a modified version of the Telephone Interview for Cognitive Status. A number of individual risk factors were considered including social determinants, internet use, social connections, and health behaviours; 2 contextual factors were included: the index of multiple deprivation and land use mix. Results: The prevalence of dementia by this method is 8.8% (95% confidence interval 7.7%‐9.2%) in older adults in England. Maps of dementia prevalence across districts showed prevalent areas. In the full model, no area characteristics were significant in predicting dementia prevalence. Education, social connections, internet use, and moderate to vigorous physical activity showed protective associations. Conclusion: Dementia in older adults in England is largely predicted by individual characteristics, although some districts have a large share of their population with dementia. Given the health and social care costs associated with dementia, differential interventions and support to districts and to groups of individuals defined by these characteristics seem warranted. (Edited publisher abstract)