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Experiences of rural life among community-dwelling older men with dementia and their implications for social inclusion
- Authors:
- HICKS Ben, INNES Anthea, NYMAN Samuel R.
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 20(2), 2021, pp.444-463.
- Publisher:
- Sage
Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses an important gap in the literature by exploring the perceptions of daily life for older men (65+ years) living with dementia in three rural areas of England. Open interviews were conducted with 17 rural-dwelling older men with dementia and the data elicited were analysed thematically to construct two higher order themes. The first focussed on ‘Cracking on with life in a rural idyll’ and highlighted the benefits of rural living including the pleasant, natural environment, supportive informal networks and some accessible formal dementia support. The second presented ‘A challenge to the idyll’ and outlined difficulties the men faced including a lack of dementia awareness amongst their family and the wider rural community as well as the physical and internal motivational barriers associated with the rural landscape and their dementia. The findings were interpreted through a lens of social inclusion and demonstrated how the geo-socio-cultural rural environment both enabled and inhibited facets of the men’s experiences of life in their communities. Based on these findings, the paper offers recommendations for practitioners, researchers and policy makers wishing to promote social inclusion in rural-dwelling older men living with dementia. (Edited publisher abstract)
Key issues in evolving dementia care: international theory-based policy and practice
- Authors:
- INNES Anthea, KELLY Fiona, MCCABE Louise, (eds.)
- Publisher:
- Jessica Kingsley
- Publication year:
- 2012
- Pagination:
- 264p.
- Place of publication:
- London
This book focuses on theoretical, policy and practice issues which are predicted to become fundamental priorities in the near future, and how dementia care works across the globe. It explores the theory underpinning dementia care, the applications of theory in dementia care research, and how this research is influencing and shaping practice. The contributors are practitioners, policy influencers and researchers who analyse case studies from the UK, the USA, Canada, Australia, India, France and Malta with the aim of encouraging a dialogue and exchange of interdisciplinary initiatives and ideas. Their insights into how policy and national dementia strategies are developed, and the range of approaches that can be taken in practice, will provide a positive step towards ensuring that the needs of those with dementia are met, both now and in the future. This book is designed for practitioners, researchers, policy makers and students in the field of dementia care.
Seeking the views of people with dementia on services in rural areas
- Authors:
- INNES Anthea, SHERLOCK Kirsty, COX Sylvia
- Journal article citation:
- Journal of Dementia Care, 11(5), September 2003, pp.37-38.
- Publisher:
- Hawker
Reports on research which sought views of people with dementia themselves on provision of services for them in remote and rural areas of Scotland. Face-to-face, semi-structured interviews were carried out with 17 people with dementia. The study found that people with dementia were willing and able to give evaluations of the services they received. Highlights that services could be further developed by consulting with people with dementia themselves.
Healing arts therapies and person-centred dementia care
- Editors:
- INNES Anthea, HATFIELD Karen
- Publisher:
- Jessica Kingsley
- Publication year:
- 2002
- Pagination:
- 131p.,bibliog.
- Place of publication:
- London
Offering practical advice for arts therapists and health care professionals, this book emphasises the importance of putting the individual before the illness to provide holistic, person centred support for people with dementia. Contains contributions from music, dance and visual arts therapists.
Technology, fun and games
- Authors:
- CUTLER Clare, HICKS Ben, INNES Anthea
- Journal article citation:
- Journal of Dementia Care, 22(4), 2014, pp.12-13.
- Publisher:
- Hawker
This article reports on two technology groups commissioned by Bournemouth Borough Council and discusses observations of using commercial technology with people with dementia within the community and an assisted living care setting. A total of 14 technology sessions were delivered to 13 people living with dementia, led by two facilitators. One group was for residents in Dementia Specific Assisted Living Accommodation (DSALA) and the other group was for people with dementia living in the community (DC). Sessions lasted for two hours and were delivered weekly for six weeks. The groups were introduced to the technologies of Nintendo Wii, iPad's and Nintendo DS. Both groups were successful in engaging all participants with the technology to some extent. Adopting an person-centred approach and understanding the life histories, hobbies and current interests was an important factor. Physical aspects of some of the gaming equipment created barriers for use, such as screen size, touch sensitivity settings. Differences were also identified between the DSALA and DC groups. (Edited publisher abstract)
Care home design for people with dementia: what do people with dementia and their family carers value?
- Authors:
- INNES Anthea, KELLY Fiona, DINCARSLAN Ozlem
- Journal article citation:
- Aging and Mental Health, 15(5), July 2011, pp.548-556.
- Publisher:
- Taylor and Francis
This study investigated the views of people with dementia in care homes, and their family carers, on aspects of building design that are important to them. Two focus groups were held in Northern Ireland, and four in Scotland, with a total of 40 participants – 29 with dementia, and 11 family carers. Carers, in general, discussed the features of a building they took into account when selecting a care home. Key themes reported by people with dementia and their family carers included how the space in the environment is used, including the presence or absence of certain design features. Outside space and way-finding aids were identified as positive features of the home, along with a general lack of concern about en-suite provision. The findings illustrated the complexity of building design as it must provide living space acceptable to people with dementia living there and family members who visit, as well as provide a workable environment for staff. The authors concluded that the findings should be considered by care home teams involved in the building or redevelopment of a care homes.
Service provision for people with dementia in rural Scotland: difficulties and innovations
- Authors:
- INNES Anthea, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 5(2), May 2006, pp.249-270.
- Publisher:
- Sage
The provision of health and social care services to people with dementia and their carers living in remote and rural areas has been neglected globally. Meeting the needs of people with dementia poses many challenges for service providers. Such challenges may be compounded by the difficulties of providing and accessing services in rural areas. This article explores the views of Scottish service providers drawn from the voluntary, statutory and private sectors. The findings highlight the difficulties relating to dementia and rurality faced by service providers in Scotland. The study also considers innovative measures reported by service providers. Such measures indicate that not only can the distinct challenges of dementia service provision be overcome, but also challenges posed by providing services to people with dementia and their carers in rural and remote areas. These findings extend the literature on rural dementia service provision. The article concludes with a consideration of the practice and policy implications of providing dementia services in remote and rural Scotland.
Training and development for dementia care workers
- Author:
- INNES Anthea
- Publisher:
- Jessica Kingsley
- Publication year:
- 1999
- Pagination:
- 117p.,bibliog.
- Place of publication:
- London
Presents a concise guide to running a training programme for dementia care workers. Outlines the key factors to consider in the design, delivery and implementation of a programme. Stresses the importance of getting to know the care settings in which the trainees will practise to ensure that the training has direct relevance to participants.
Barriers to leisure participation for people with dementia and their carers: an exploratory analysis of carer and people with dementia’s experiences
- Authors:
- INNES Anthea, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 15(6), 2016, pp.1643-1665.
- Publisher:
- Sage
Leisure has emerged as a prominent research theme within the growing body of knowledge on dementia, with a focus on physical activity. Yet participation in any form of leisure presupposes an ability to freely choose to partake in activities and to negotiate one’s way around key barriers. In the case of dementia, the ability to undertake leisure activities is subject to a greater range of barriers, structured in a hierarchical manner that contributes to social exclusion if not addressed. This study based on focus groups with people with dementia and their family members conducted in Dorset, UK illustrates a range of barriers to leisure participation. How to create or maintain leisure opportunities for those living with dementia where households affected by dementia do not adopt avoidance behaviour, compounding a sense of isolation and exclusion is a challenge. Leisure can be an important strategy framed as a form of resistance to the social disabilities experienced by those living with dementia and it is potentially isolating impact. (Publisher abstract)
Discovering what works well: exploring quality dementia care in hospital wards using an appreciative inquiry approach
- Authors:
- SCERRI Anthony, INNES Anthea, SCERRI Charles
- Journal article citation:
- Journal of Clinical Nursing, 24(13-14), 2015, pp.1916-1925.
- Publisher:
- John Wiley and Sons
Aims and objectives: To explore the quality dementia care in two geriatric hospital wards using appreciative inquiry with formal care workers and family members of inpatients with dementia. Background: Care models such as person-centred and relationship-centred care have been developed to explain what ‘quality’ dementia care should be. However, their usefulness and relevance to clinicians has been questioned. Design: Using an exploratory qualitative design within an appreciative inquiry framework, 33 care workers working in a geriatric hospital and 10 family members of patients with dementia were interviewed. Methods: Open-ended questions were asked to encourage care workers to narrate positive care experiences when the care was perceived to be at its best and to identify what made these experiences possible. Interviews were audio-taped and transcribed whilst data were analysed thematically using a qualitative data analysis software to assist in data management. Results: Positive care experiences can be understood within five care processes, namely building a relationship between the ‘extended’ dementia care triad, providing ‘quality time’ and ‘care in time’, going the ‘extra mile’, attending to the psychosocial needs and attending to the physical needs with a ‘human touch’. Factors facilitating these positive care experiences included personal attributes of care workers, and organisational, environmental and contextual factors. Conclusions: This study provides an alternative and pragmatic approach to understanding quality dementia care and complements the body of knowledge on factors influencing dementia care practices in hospitals. Relevance to clinical practice: By understanding the components of quality dementia care and how these can be achieved from different stakeholders, it is possible to develop strategies aimed at improving the care offered to patients with dementia in hospitals. (Publisher abstract)