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Improving practice in communication with older people and support networks living in housing with care schemes: aspirations and ambitions
- Authors:
- MANTHORPE Jill, SAMSI Kritika
- Journal article citation:
- British Journal of Social Work, 42(8), 2012, pp.1495-1512.
- Publisher:
- Oxford University Press
In the UK, the options relating to housing with care will likely increase, as they promote choice and independence. If housing with care services offer end-of-life care to their service users, their staff will need to engage with social workers and other professional networks and these professionals will need to understand the context and ethos of housing with care provision. In order to investigate whether existing literature will assist professional communication across sectors, a scoping literature review was conducted. Findings were grouped into themes, according to the project brief, focusing on: confidence and skills, making decisions and plans, and access to support and training. Several elements were identified as potentially supportive of staff confidence, such as obtaining biographical information, mutually respectful working relationships, managerial support and better understanding of specialist communication needs.
‘I live for today’: a qualitative study investigating older people’s attitudes to advance planning
- Authors:
- SAMSI Kritika, MANTHORPE Jill
- Journal article citation:
- Health and Social Care in the Community, 19(1), January 2011, pp.52-59.
- Publisher:
- Wiley
The Mental Capacity Act 2005 (MCA) enables adults with capacity to make plans and decisions in advance. It allows them to arrange proxy decision-making and provides safeguards for those who might lose the capacity to make decisions in the future. This paper investigated the attitudes of 37 healthy older people about their views on documenting their decision-making preferences. Results indicated that most individuals had a personal preference towards planning, guided by personality, beliefs, living situation and the relevancy of planning to their situation. Financial plans and funeral arrangements were most common; health and social care plans least common. Housing and residential care were important for all. However, few participants had heard of the MCA. The family doctor was cited as trustworthy and a potential place to begin inquiries. Considering the onset of certain debilitating conditions encouraged participants to think about planning. The authors conclude that the study has implications for education campaigns that could potentially impact on older people who are interested in making plans but are unaware that legal safeguards and practical support are available.
Is there an “optimal time” to move to a care home for a person with dementia? A systematic review of the literature
- Authors:
- COLE Laura, SAMSI Kritika, MANTHORPE Jill
- Journal article citation:
- International Psychogeriatrics, 30(11), 2018, pp.1649-1670.
- Publisher:
- Cambridge Journals
Background: There is limited evidence regarding how the decision evolves about whether and when it is best for a person with dementia to move to a care home. The factors leading to the timing of the decision remain particularly unclear. This systematic review of existing literature aims to gain an understanding of the decision-making timing and process to distinguish the drivers of these decisions, and to identify if there is an “optimal” or best time (if any) for a person with dementia to move to a care home. Methods: Six English language electronic databases were searched up to the end of 2016, along with included papers’ reference lists. Papers were screened against the inclusion criteria and rated for quality. Extracted data were thematically analysed. Results: The review identified 16 relevant papers. Seven themes were identified: (1) what happened before the move; (2) planning for the move, (3) weighing up the decision, (4) lack of support, (5) drivers of the decision, (6) emotional significance of the move, and (7) continued reflection on the decision. “Time” of the move was largely absent from much of the literature, although inferences were made. Overall, the decision-making process appeared to be cyclic, with family carers constantly re-evaluating when might be the time to make the move with some continuing to reflect on this even subsequently. Conclusions: Further research is required to understand the “optimal” or best time (if any) for when a person with dementia moves to a care home, and how to determine when someone is ready to move. (Edited publisher abstract)
'As people get to know it more': experiences and expectations of the Mental Capacity Act 2005 amongst local information, advice and advocacy services
- Authors:
- SAMSI Kritika, MANTHORPE Jill, RAPAPORT Phillip
- Journal article citation:
- Social Policy and Society, 10(1), January 2011, pp.41-54.
- Publisher:
- Cambridge University Press
This paper is about the level of working knowledge of the Mental Capacity Act 2005 (MCA) possessed by people who work within local information, advice and advocacy agencies and who provide services to older people in their communities in England. It presents the 5 statutory working principles of MCA and quotes verbatim 3 of its key extracts with regard to powers of attorney, independent mental capacity advocates and advance decisions. The data presented here were collected from interviews conducted for a larger research programme, involving practitioner experiences regarding the implementation of MCA. It focuses on a North London branch of Age Concern and 10 of their managers, officers and workers’ provision of advice to older people regarding advance decision making, should mental capacity become impaired in the future. Knowledge and experience of MCA varied, and the authors quote some comments by way of illustration. There was a lack of confidence in providing detailed advice, and additional training and skills development is called for in order to maximise the benefits of MCA, increase expertise and differentiate more clearly between the information, advice and advocacy given by those in different organisational roles. The topic of legal literacy amongst adults is visited.