Search results for ‘Subject term:"older people"’ Sort:
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Older people as research colleagues
- Author:
- BRIGHT Les, GREEN Bert
- Journal article citation:
- Working with Older People, 7(4), December 2003, pp.14-16.
- Publisher:
- Emerald
Describes how, in a three-year research project, Housing Decisions in Old Age, between the charity Counsel and Care and Lancaster's University's Department of Applied Social Science, the researchers established from the outset the principle of involving older people. Their view being that the findings would be enriched by being more reflective of, and responsive to,the concerns of older people.
Finding out about residential care: results of a survey of users
- Authors:
- ROBERTS Sean, STEELE Jane, MOORE Nick
- Publisher:
- Policy Studies Institute
- Publication year:
- 1991
- Pagination:
- 125p.
- Place of publication:
- London
A survey of the information needs of residents and potential residents of residential care homes. Looks at the subjects on which information is needed and the constraints which inhibit people's use of information.
Building consensus on user participation in social work: a conversation analysis
- Authors:
- LEUNG Terry T.F., LAM Barry C.L.
- Journal article citation:
- Journal of Social Work, 19(1), 2019, pp.20-40.
- Publisher:
- Sage
Summary : In order to understand how mutual understanding was achieved in discursive interactions between the welfare service users and service practitioners, conversation analysis was conducted in four discussion panels set up for building consensus on the appropriate structure for user participation in service management. Conversations in eight panel discussion meetings were audio-taped for analysing the talks-in-interaction therein. Drawing on the conversation analysis, the article uncovers the dynamics of consensus building among participants from different epistemic communities. Findings: The study identifies the extent of divergence in views among stakeholders, which could have been obscured by the pressure to acquiesce in platform of face-to-face coordination. In the contest for truth between the welfare service users and service practitioners, personal experience has not been accepted as legitimate resource for supporting truth claims. Having limited argument resources on issues of service management, the welfare service users perceived argumentation in panel discussion a threatening venture that they chose to avoid. Avoidance was also a strategy that panel participants employed to maintain mundane interactions in the face of looming dissents. The article argues that the Habermasian communicative ethics are not panacea to the problem of coordination between the welfare service users and service practitioners. An agonistic model of democracy is called for to shift the objective of communication from gauging consensus to encouraging articulation of disagreements in the intricate user participation project. Application: The article provides a new direction for developing the user participation imperative to address necessary pluralities among stakeholders of welfare services. (Publisher abstract)
Narrative Interest Standard: a novel approach to surrogate decision-making for people with dementia
- Author:
- WILKINS James M.
- Journal article citation:
- Gerontologist, 58(6), 2018, p.1016–1020.
- Publisher:
- Oxford University Press
Dementia is a common neurodegenerative process that can significantly impair decision-making capacity as the disease progresses. When a person is found to lack capacity to make a decision, a surrogate decision-maker is generally sought to aid in decision-making. Typical bases for surrogate decision-making include the substituted judgment standard and the best interest standard. Given the heterogeneous and progressive course of dementia, however, these standards for surrogate decision-making are often insufficient in providing guidance for the decision-making for a person with dementia, escalating the likelihood of conflict in these decisions. In this article, the narrative interest standard is presented as a novel and more appropriate approach to surrogate decision-making for people with dementia. Through case presentation and ethical analysis, the standard mechanisms for surrogate decision-making for people with dementia are reviewed and critiqued. The narrative interest standard is then introduced and discussed as a dementia-specific model for surrogate decision-making. Through incorporation of elements of a best interest standard in focusing on the current benefit–burden ratio and elements of narrative to provide context, history, and flexibility for values and preferences that may change over time, the narrative interest standard allows for elaboration of an enriched context for surrogate decision-making for people with dementia. More importantly, however, a narrative approach encourages the direct contribution from people with dementia in authoring the story of what matters to them in their lives. (Publisher abstract)
What does client ‘engagement’ mean in aged care? An analysis of practice
- Authors:
- PETRIWSKYJ Andrea, GIBSON Alexandra, WEBBY Glenys
- Journal article citation:
- Ageing and Society, 38(7), 2018, pp.1350-1376.
- Publisher:
- Cambridge University Press
Client engagement is an important part of contemporary aged care. However, the extent to which decisions are delegated to the older person, and the scope of issues about which decision making occurs, vary. The types of engagement that are offered to, and taken up by, aged-care clients have implications for the extent of power and influence older people hold. This paper reports on a qualitative study conducted in a large Australian service provider. It identifies the forms that client engagement takes in the aged-care context, the roles for staff and older people that are enacted through these activities, and the implications these have for power relationships and older people's influence. An inverse relationship was seen between the depth and scope of client influence, but a desire to address this suggested potential spaces for greater empowerment. A relationship was evident between the retention of control by staff and the perceived effectiveness of existing engagement strategies, highlighting the limitations of traditional power dynamics in engagement practice. An expanded model of engagement in aged care is proposed that recognises the foundational role of connection building as a facilitator of greater empowerment for older people. Implications for theory regarding engagement in aged care, and the practice of engagement in aged-care organisations, are discussed. (Edited publisher abstract)
Choosing a nursing home: families need more support
- Authors:
- ASHTON Susan, ROE Brenda, JACK Barbara
- Journal article citation:
- Journal of Dementia Care, 24(4), 2016, pp.22-24.
- Publisher:
- Hawker
Nursing homes are sometimes the best option for people with advanced dementia, but the authors ask what is it like choosing one. In their study the authors focused on the challenges and experiences of family carers of people with advanced dementia, who are at the end of life.. (Edited publisher abstract)
Older people's exercising of choice in long-term care: a comparative analysis of England and Japan
- Author:
- WADA Yoshimi
- Journal article citation:
- Ageing and Society, 36(6), 2016, pp.1185-1210.
- Publisher:
- Cambridge University Press
There has been an increasing emphasis on choice for older people in long-term care in both England and Japan. However, despite the emphasis on the importance of choice, the perspectives of older people have been given little attention. Considering national and local policies in Bristol, England and Kyoto, Japan, the article explores how older people are exercising (and not exercising) choice in care practice through examining the perspectives of the older people themselves, as well as key informants in the field. Empirical data were collected from interviews with older people and key informants in the two countries, and were analysed using qualitative and comparative approaches. Choice in policy is regarded as a mechanism of the market with an assumption of the independent autonomous individual who can exercise ‘rational choice’. However, the findings have reflected older people's relational decision-making, which does not conform to the rational model of decision-making, and illustrates the value of ‘interdependence’. The findings from care practice have shown that choice was considered an important value in involving older people's views and ensuring their needs are met sensitively and respectfully. The findings also suggested that consideration of the psychological aspects of choice is an important aspect of ‘care’, facilitating the inclusion of older people's views in the process of making judgements, in order to meet their needs. (Publisher abstract)
A qualitative study of older people with minimal care needs experiences of their admission to a nursing home with Registered Nurse care
- Authors:
- STEVENS Alice K., RAPHAEL Helen, GREEN Sue M.
- Journal article citation:
- Quality in Ageing and Older Adults, 16(2), 2015, pp.94-105.
- Publisher:
- Emerald
Purpose: Residential care for older people in the UK includes care homes with and without 24-hour Registered Nurse (RN) care. Reduced autonomy and personal wealth can result when people assessed as having minimal care needs, enter and reside in care homes with RN care. The purpose of this paper is to explore the experiences of older people with minimal care needs admission to care homes with RN care. Design/methodology/approach: A qualitative study using a grounded theory method was undertaken. In total, 12 care home with RN care residents assessed as not requiring nursing care were interviewed. Initial sampling was purposive and progressed to theoretical. Interviews were analysed using the grounded theory analysis method of constant comparison and theory development. Findings: Two main categories emerged: “choosing the path”, which concerned the decision to enter the home, and “settling in”, which related to adaptation to the environment. Findings suggested participants who perceived they had greater control over the decision-making process found it easier to settle in the care home. The two categories linked to form an emerging framework of “crossing the bridge” from independent living to care home resident. Research limitations/implications: The findings contribute to the understanding of factors influencing admission of older people with minimal care needs to care homes with RN care and highlight the importance of informed decision making. Practical implications: Health and social care professionals must give informed support and advice to older people seeking care options to ensure their needs are best met. Originality/value: This study enabled older people with minimal care needs admission to care homes with RN care to voice their experiences. (Publisher abstract)
Use of quality information in decision-making about health and social care services: a systematic review
- Authors:
- TURNPENNY Agnes, BEADLE-BROWN Julie
- Journal article citation:
- Health and Social Care in the Community, 23(4), 2015, pp.349-361.
- Publisher:
- Wiley
User choice and personalisation have been at the centre of health and social care policies in many countries. Exercising choice can be especially challenging for people with long-term conditions (LTC) or disabilities. Information about the quality, cost and availability of services is central to user choice. This study used systematic review methods to synthesise evidence in three main areas: (i) how people with LTC or disabilities and their family carers find and access information about the quality of services; (ii) how quality information is used in decision-making; and (iii) what type of quality information is most useful. Quality information was defined broadly and could include formal quality reports (e.g. inspection reports, report cards, etc.), information about the characteristics of a service or provider (e.g. number and qualifications of staff, facilities, etc.) and informal reports about quality (e.g. personal experience, etc.). Literature searches were carried out using electronic databases in January 2012. Thirteen papers reporting findings from empirical studies published between 2001 and 2012 were included in the review. The majority of papers (n = 9) had a qualitative design. The analysis highlighted the use of multiple sources of information in decision-making about services and in particular the importance of informal sources and extended social networks in accessing information. There is limited awareness and use of ‘official’ and online information sources. Service users or family carers place greater emphasis on general information and structural indicators. Clinical or quality-of-life outcomes are often difficult to interpret and apply. Trust emerged a key issue in relation to quality information. Experiential and subjective information is highly valued and trusted. Various barriers to the effective use of quality information in making choices about services are identified. Implications for policy and future research are discussed. (Publisher abstract)
People who pay for care: quantitative and qualitative analysis of self-funders in the social care market
- Author:
- PUTTING PEOPLE FIRST SOCIAL CARE CONSORTIUM
- Publisher:
- Putting People First Social Care Consortium
- Publication year:
- 2011
- Pagination:
- 83p.
- Place of publication:
- London
This document contains two reports detailing quantitative and qualitative data on service users who pay for their own social care provision; the self-funders. Introductory sections providing background, policy context, and an overview of the self-funder market preceed the reports. The first report then provides estimates numbers of older people who pay for social care in England, explores future trends in self-funding and discusses tasks emerging for self-funders, local authorities and councils. The second qualitative report (part funded by SCIE) looked at the decision making and destinations of people who self-fund, providers, and carers in the UK. It also looks at the services that were available from local authorities. It expresses concern about the lack of help and information currently available to those who self-fund.