Search results for ‘Subject term:"older people"’ Sort:
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A scoping review of evidence on the use and effectiveness of decision aids in adult social care
- Authors:
- BAXTER Kate, et al
- Journal article citation:
- Journal of Long-Term Care, April 2021, pp.100-113. Online only
- Publisher:
- King's College London
- Place of publication:
- London
Context: Social care-related decisions can be complex but despite their widespread use in health care to help patients make similarly complex decisions, the use of decision aids in social care is not well examined. Objective: To review the international research evidence on decision aids in adult social care and investigate the availability of such aids for planning later life care on adult social care-related websites in England. Methods: Decision aid was defined broadly. Systematic searches for empirical research evidence published in English between 2000 and 2020. Searches were undertaken in January and February 2020. Websites of 11 UK social care-related voluntary and quasi-governmental organisations plus 53 English local councils searched for decision aids. Findings: Five papers published between 2001 and 2019 reported the development of five different decision aids. Two decision aids were web-based; three were paper-based or of unspecified formats. Two were assessed against international criteria for decision aids. Three further papers reported evaluations of the effectiveness of two of these aids. Most social care-related websites searched did not offer any relevant decision tools. Limitations: Some papers described tools that were primarily research instruments. Relevant papers may have been missed due to technical challenges. Not all council websites were searched. Implications: Future research to develop decision aids might benefit from drawing on earlier literature about people’s attitudes to and readiness to engage with care planning and how this translates into willingness to use decision aids. Combining decision aids with strengths- and asset-based approaches in adult social care practice could be fruitful. (Edited publisher abstract)
A survey of older peoples’ attitudes towards advance care planning
- Authors:
- MUSA Irfana, et al
- Journal article citation:
- Age and Ageing, 44(3), 2015, pp.371-376.
- Publisher:
- Oxford University Press
Background: Advance care planning (ACP) is a process to establish an individual's preference for care in the future; few UK studies have been conducted to ascertain public attitudes towards ACP. Objective: The aim of this study was to assess the attitudes of older people in East Midlands through the development and administration of a survey. Design: The survey questionnaire was developed on the basis of a literature review, exploratory focus groups with older adults and expert advisor input. The final questions were then re-tested with lay volunteers. Setting: Thirteen general practices were enrolled to send out surveys to potential participants aged 65 or older. There were no additional inclusion or exclusion criteria for participants. Methods: Simple descriptive statistics were used to describe the responses and regression analyses were used to evaluate which items predicted responses to key outcomes. Results: Of the 5,375 (34%) community-dwelling older peoples, 1,823 returned questionnaires. Seventeen per cent of respondents had prepared an ACP document; of whom, 4% had completed an Advance Decision to Refuse Treatment (ADRT). Five per cent of respondents stated that they had been offered an opportunity to talk about ACP. Predictors of completing an ACP document included: being offered the opportunity to discuss ACP, older age, better physical function and male gender. Levels of trust were higher for families than for professionals. One-third of the respondents would be interested in talking about ACP if sessions were available. Conclusion: Although a third of the respondents were in favour of discussing ACP if the opportunity was available with their GP, only a relative minority (17%) had actively engaged. Preferences were for informal discussions with family rather than professionals. (Edited publisher abstract)
Making choices: meeting the current and future accommodation needs of older people: proposed criteria for change: consultation document
- Author:
- NORTHERN IRELAND. Health and Social Care Board
- Publisher:
- Northern Ireland. Health and Social Care Board
- Publication year:
- 2013
- Pagination:
- 72
- Place of publication:
- Belfast
The review of health and social care, ‘Transforming your care’ (2011) consulted on health and social care in Northern Ireland. One aim was to make home the hub of care for older people, with a recommendation to reduce the number of statutory residential care homes. This consultation document is the first in a two-stage consultation process, and outlines four criteria to be used as the basis for assessing the future role and function of statutory residential care for older people. The criteria are designed to be used by Trusts to assist decision making about the role of statutory provision in the context of planning suitable services for older people in the future. The proposed criteria are: availability and accessibility of alternative services; quality of care; care trends; and best use of public money. The consultation period runs from 29 November 2013 to 7 March 2014; but no final decisions on any individual home have been made and will not be made until both stages of consultation have been completed. (Edited publisher abstract)
Care planning at home: a way to increase the influence of older people?
- Authors:
- BERGLUND Helene, et al
- Journal article citation:
- International Journal of Integrated Care, 12(3), 2012, Online only
- Publisher:
- International Foundation for Integrated Care
The purpose of care-planning meetings is for professionals to co-ordinate the planning of future care, in interaction with the older person. The meeting generally takes place in the hospital, prior to discharge. The purpose of this research was to investigate whether the organisation of care-planning meetings has an impact on the opportunity for the older person to influence the decision-making processes. The study was part of a larger project including a comprehensive continuum-of-care model conducted in a city on the west coast of Sweden. As part of this study, 19 care-planning meetings were audio-recorded; 10 in the older person’s home and 9 in hospital. The meetings were transcribed and a qualitative content analysis was performed. The findings show that care-planning meetings at home appeared to enable older people's involvement in the discussions. Fewer people participated in the meetings at home and there was less parallel talking. Unrelated to the place of the care-planning meeting, the older people were able to influence concerns relating to the amount of care, and the choice of provider. However, they were not able to influence the way the help should be provided or organised. The article concludes that planning care at home enabled an increase in involvement on the part of the older people, but this did not appear to be enough to obtain any real influence.
The influence of culture on end-of-life decision making
- Author:
- BULLOCK Karen
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 7(1), January 2011, pp.83-98.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
While researchers have noted racial and ethnic differences in end-of-life care preferences, few studies have explained the differences. This study examined the variance in decision making in a sample of black and white community-dwelling residents. The study examined data from 12 focus groups with black community dwellers, and 12 groups with white community dwellers. A total of 202 adults aged 55 and above participated. White participants were more likely to identify benefits of advanced end-of-life care planning, while black participants were more likely to identify barriers. Whites were also more likely to view religion as a support mechanism in end-of-life decision making. Participants identified specific cultural beliefs, values, and communication patterns that can be used to promote cultural competency among practitioners who provide care at end of life. In conclusion, the author suggests that health providers need a better understanding of their patient’s values and beliefs in order to provide better end-of-life care.
‘I live for today’: a qualitative study investigating older people’s attitudes to advance planning
- Authors:
- SAMSI Kritika, MANTHORPE Jill
- Journal article citation:
- Health and Social Care in the Community, 19(1), January 2011, pp.52-59.
- Publisher:
- Wiley
The Mental Capacity Act 2005 (MCA) enables adults with capacity to make plans and decisions in advance. It allows them to arrange proxy decision-making and provides safeguards for those who might lose the capacity to make decisions in the future. This paper investigated the attitudes of 37 healthy older people about their views on documenting their decision-making preferences. Results indicated that most individuals had a personal preference towards planning, guided by personality, beliefs, living situation and the relevancy of planning to their situation. Financial plans and funeral arrangements were most common; health and social care plans least common. Housing and residential care were important for all. However, few participants had heard of the MCA. The family doctor was cited as trustworthy and a potential place to begin inquiries. Considering the onset of certain debilitating conditions encouraged participants to think about planning. The authors conclude that the study has implications for education campaigns that could potentially impact on older people who are interested in making plans but are unaware that legal safeguards and practical support are available.
Care planning meetings: issues for policy, multi-disciplinary practice and patient participation
- Authors:
- DONNELLY Sarah, CAHILL Suzanne, O’NEILL Desmond
- Journal article citation:
- Practice: Social Work in Action, 30(1), 2018, pp.53-71.
- Publisher:
- Taylor and Francis
Although care-planning meetings (CPMs) are an increasingly common part of the practice of social work with older people and multi-disciplinary teamwork, it is uncertain how and by whom the voice and wishes of older people, including those with a cognitive impairment, are given due priority. In addition, there is little professional guidance as to how to best plan and facilitate CPMs for older patients with cognitive and communication deficits and other often complex needs. An added challenge is the wide, often diverse and conflicting range of perspectives held by health and social care professionals and other family members who may be involved. This scoping review article on CPMs for older people, considers the facilitators and barriers to effective participation as identified in the literature and proposes suggestions for best practices in CPMs which could help promote an individualised approach to participation that best reflects the older patient’s wishes. (Edited publisher abstract)
End of life care: the experiences of advance care planning amongst family caregivers of people with advanced dementia - a qualitative study
- Authors:
- ASHTON Susan Elizabeth, et al
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 15(5), 2016, pp.958-975.
- Publisher:
- Sage
Background: End of life decisions for people with advanced dementia are reported as often being difficult for families as they attempt to make appropriate and justified decisions. Aim: To explore the experiences of advance care planning amongst family caregivers of people with advanced dementia. Design: Qualitative research including a series of single cases (close family relatives). Methods: A purposive sample of 12 family caregivers within a specialist dementia unit was interviewed about their experiences of advance care planning between August 2009 and February 2010. Results/Findings: Family caregivers need encouragement to ask the right questions during advance care planning to discuss the appropriateness of nursing and medical interventions at the end of life. Conclusions: Advance care planning can be facilitated with the family caregiver in the context of everyday practice within the nursing home environment for older people with dementia. (Publisher abstract)
Minority ethnic elders in care homes: a review of the literature
- Authors:
- MOLD Freda, et al
- Journal article citation:
- Age and Ageing, 34(2), March 2005, pp.107-113.
- Publisher:
- Oxford University Press
Health and social care services are required to meet the needs of all older people, including those specific to people from minority ethic groups. This systematic review is based on searches of nine databases, with each selected piece of literature subjected to structured assessment by independent reviewers. The results are grouped in two areas. The first focuses on issues arising from the international literature, including factors relating to access, equality and workforce issues, care satisfaction and placement decision-making. The second deals with issues emerging from the UK literature (mainly policy and associated documents), including barriers to care provision for minority ethnic older people, loss of independence and the recognition of cultural needs. The review highlights continuing problems in ensuring high quality care in care homes for this group, and the absence of studies focusing on residents’ perceptions of care and their involvement in the making of care and placement decisions.
The carer's role in planning care for people with dementia
- Authors:
- DEWAR Belinda, et al
- Journal article citation:
- Professional Nurse, 17(5), January 2002, pp.318-321.
- Publisher:
- Emap Healthcare
The lay carers of people with dementia are frequently the experts on the care they need. Earlier research produced guidelines to encourage carer participation in care planning and this article reports on a project that sought the views of carers on these guidelines. The study highlights the main problems that carers face when seeking help from health-care services.