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“Are you going to come and see us again soon?” An intergenerational event between stroke survivors and school-children
- Author:
- LANE Kathleen
- Journal article citation:
- Quality in Ageing and Older Adults, 17(4), 2016, pp.246-252.
- Publisher:
- Emerald
Purpose: A one-hour intergenerational event held at an infant school in Norfolk, England, aimed to increase the citizenship experience of young children and their awareness of what it means to live with stroke, and to address social isolation or self-confidence in communicating among stroke survivors with aphasia. It was also intended to gauge whether this activity might provide a basis for future research. The paper aims to discuss these issues. Design/methodology/approach: Four community-dwelling stroke survivors with aphasia were recruited. In total, 12 pupils aged six and seven were selected by their Year 2 teacher and head-teacher. At the event, participants sat in groups of one adult and three pupils and engaged in writing, hand-tracing and talking about pictures. The author circulated among the groups to facilitate engagement. Findings: All participants enjoyed interacting together in the activities. The pupils gained insights into the stroke survivors’ lived experience and wanted them to return to “see us again soon”; the adults valued being in the “real world” and practising their conversation in activities different from their usual routines. Feedback indicated the value of the engagement and that participants welcomed similar intergenerational opportunities. The author will develop a research application exploring enablers, barriers and benefits of this type of engagement. Originality/value: The event gave a rare opportunity for stroke survivors with aphasia to participate in intergenerational activities and for children to engage with vulnerable older adults. It demonstrated the value of interactions in which learning and insights are obtained on both sides. It also provided evidence that pursuing research in this field is feasible. (Publisher abstract)
Resolution therapy: a vehicle for communication
- Author:
- WATKIN Sian
- Journal article citation:
- Journal of Dementia Care, 11(3), May 2003, pp.14-16.
- Publisher:
- Hawker
Offers a critical analysis of Resolution Therapy, identifying its potential value as a means of better communication with people with dementia by relating the principles and practice to a case study.
The missing million: in search of the loneliest in our communities
- Author:
- CAMPAIGN TO END LONELINESS
- Publisher:
- Campaign to End Loneliness
- Publication year:
- 2016
- Pagination:
- 62
- Place of publication:
- London
A guide to help commissioners and service providers to develop ways of identifying older people experiencing loneliness or who are at risk of being lonely. Section one identifies methods of identifying older people who may be at risk of loneliness. These include top down approaches which use available data and data mapping to identifying geographical areas likely to contain more people at risk; and bottom up approaches, which draw on the local knowledge and capacity of communities to identify and engage with older people experiencing loneliness in their area. Section two illustrates how these different methods can be used and provides case studies to show how they have been used successfully by other organisations. Section three provides advice to help staff and volunteers to speak to people at risk of loneliness in a way that can bring about positive change. It shows the importance of using empathy, openness and respect when holding conversations and also taking a problem-solving approach to help people identify and plan their own solutions. Each section includes summary learning points and provides advice to help providers and commissioners to help change their ways of working. The report makes 10 key recommendations for service providers and commissioners. (Edited publisher abstract)
Dementia communication using empathetic curiosity
- Author:
- McEVOY Phil
- Journal article citation:
- Nursing Times, 110(24), 2014, pp.12-15.
- Publisher:
- Nursing Times
Communication skills training materials in dementia care usually focus on reminiscence. This is important because talking about past events can help people with dementia retain their sense of self. This article examines the use of an alternative set of communication skills known as empathetic curiosity, which may help to promote meaningful communication in the here and now with people who are living with dementia.
Dealing with distrust and power dynamics: asymmetric relations among stakeholders in responsive evaluation
- Authors:
- BAUR Vivianne E., et al
- Journal article citation:
- Evaluation, 16(3), July 2010, pp.233-248.
- Publisher:
- Sage
Asymmetric relations among stakeholders create challenges in participatory evaluation processes. The aim of responsive evaluation is to include the issues of as many stakeholder groups as possible in the evaluation by engaging them in evaluative interaction. However, power and conflict may hinder equal and genuine communication about the value of the practices evaluated. This article discusses the use of a specific interpretation of responsive evaluation as an approach to foster dialogues among stakeholders in politically laden contexts. It aims to illustrate how asymmetric relations can be dealt with constructively, focusing on inclusion of marginalised groups, mutual learning and good dialogue. The article uses two reflective case narratives, conducted in a residential elderly care setting and in a psychiatric hospital, as examples of responsive evaluation projects in settings with marginalised groups. These case studies illustrate the changing, active roles of responsive evaluators. Both evaluation settings shed light on how to go about making social relations among stakeholders and the evaluator ‘the point’ in evaluation, and how to exploit these relations constructively in order to establish practice improvements.
Promoting advance care planning through the National Healthcare Decisions Day initiative
- Author:
- BLACK Kathy
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 6(1-2), January 2010, pp.11-26.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
National Healthcare Decision Day (NHDD) is a nationwide campaign aimed at increasing advance care planning among adults throughout the US. The goals of the initiative are to encourage Americans to express their wishes regarding future healthcare decision making; to rally a national media campaign to promote the importance of planning in advance for care; and to mobilise national, state, and community organisations to develop a wide range of educational activities. The movement culminates in an annual day of multiple events throughout the country designed to inundate the public about advance care planning. Since its inaugural event on April 16th 2008, NHDD has been a growing success. In this article the author describes the initiative and discusses the importance of advance care planning. The role of social workers in advance care planning and the promotion on NHDD is discussed. A detailed description of a successful event conducted in a suburban Southeastern community is provided to illustrate the activities and roles performed by social work. The author comments that social workers have much to offer people and their families, their respective organisations, and their state and the nation in advancing the goals of advance care planning through the NHDD.
Placing the place, and placing oneself within it: (dis)orientation and (dis)continuity in dementia
- Author:
- ÖRULV Linda
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 9(1), February 2010, pp.21-44.
- Publisher:
- Sage
Problems of disorientation are associated with dementia and can become particularly acute following a move to a dementia unit. Disorientation in both place and time can open up a “black hole” with no fixed point to hold on to. Based on six-months ethnographic and video observations at a small residential care unit in Sweden this study explored social interaction at a micro-level by focussing on how a woman with vascular dementia tried to make sense of an everyday lunch situation. The analysis examined the active strategies she used to contextualise her whereabouts and her place in the place through social interaction. It revealed her continued ability to reflect on, and question, the current situation in the midst of disorientation in a way that went beyond mere anxiety. The findings point to social interaction between residents as an important resource to help maintain continuity with previous social life. It is also suggested that there is a need for caregivers to help residents keep their life-stories intact in order to render everyday situations comprehensible and the setting socially meaningful. However, the author concludes, helping them find a way of placing themselves, affording a positive self-identity and continuity with previous life history is challenging in the context of daily care.
Communication in interdisciplinary team meetings: what are we talking about?
- Author:
- BOKHOUR Barbara G.
- Journal article citation:
- Journal of Interprofessional Care, 20(4), August 2006, pp.349-363.
- Publisher:
- Taylor and Francis
Interdisciplinary teams are central to the care of the older patient in long-term care settings. Critical to the success of caring for these patients is the communication between providers about patient care. This study examines professional communication practices in interdisciplinary team meetings, a common forum for discussing patient care. Two teams at a long-term care facility in the United States specializing in patients with Alzheimer's participated in this qualitative exploratory study. All team members participated in semi-structured interviews. In addition, seven team meetings in which 31 patients were discussed were audio and video taped. Team members discussed the importance of team meetings to help coordinate care provided to patients, while also expressing concern about the effectiveness of the meetings to reach this goal. Through detailed discourse analyses of transcripts of the meetings, we identified three different communication practices in team meetings: giving report, writing report, and collaborative discussion. Only the latter practice met the goals indicated by the team members to coordinate and make joint decisions about patient care and allowed for team members to collaboratively solve problems. The article discusses one case study to exemplify how the use of these communication practices results in the omission of information central to making decisions regarding patient care.
Guidelines for the closure of care homes for older people: prevalence and content of local government protocols
- Authors:
- WILLIAMS Jaquetta, NETTEN Ann
- Publisher:
- University of Kent. Personal Social Services Research Unit
- Publication year:
- 2003
- Pagination:
- 38p.
- Place of publication:
- Canterbury
The rise in the number of care home closures in recent years has raised concerns about the way in which residents and their relatives and carers are being affected by such relocation and the way in which it is managed. Currently there is no statutory guidance in England aimed specifically at the way in which care homes close.. This paper presents a review of local government guidelines and protocols for the closure of care homes for older people. The objectives of the study were to identify the prevalence of written guidelines and the nature of existing principles and recommendations for good practice. Thirty-three documents were analysed to identify their purpose and scope, the ways in which roles and responsibilities were defined and allocated, and suggestions and recommendations for good practice.
Remote engagement: removing barriers to inclusion in the context of COVID-19
- Authors:
- CENTRE FOR AGEING BETTER, HUMANLY
- Publisher:
- Centre for Ageing Better
- Publication year:
- 2021
- Pagination:
- 16
- Place of publication:
- London
This paper was developed from work coming out of the Community of Practice in light of challenges that lockdown and COVID-19 created for engagement / co-production. The Community of Practice is a learning community that brings together organisations with an interest in developing solutions that support people to age well. The paper outlines approaches and techniques to carrying out user engagement and co-production activities where traditional face to face methods aren't possible. It includes case studies of good practice from initiatives including Trailblazer projects Business Health Matters and Blackwood Neighbourhoods for Independent Living. The paper provides an array of remote engagement methods that organisations and businesses may wish to consider as they plan their research, including phone interviews, journaling, and card activities. With much engagement moving to online delivery, it highlights potential barriers around culture, IT literacy, confidence and trust building and gives examples of how these can be overcome. The paper outlines seven approaches to think about when considering remote engagement: break down the barriers to digital engagement; consider alternative methods to user engagement activities; identify and breakdown barriers in participants’ living environments and other commitments; adapt your delivery to make it as accessible as possible for participants; weigh up whether group or one-to-one engagement is most suitable; use partner organisations and social media to amplify voice and reach more people; consider setting a short and simple task ahead of time. (Edited publisher abstract)