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Older carers and carers of people with dementia: improving and developing effective support
- Authors:
- LARKIN Mary, HENWOOD Melanie, MILNE Alisoun
- Journal article citation:
- Social Policy and Society, 21(2), 2022, pp.242-256.
- Publisher:
- Cambridge University Press
The policy drive to support carers is a longstanding national and international priority. Research about the design and delivery of support for carers is critical to the underpinning evidence base. Through a timely exploration of a third sector perspective, the UK-based study discussed in this article provides insights into approaches to, and the commissioning of, support for older carers and carers of people with dementia. The study highlights the importance of: embedding carers' perspectives in service developments; the provision of both generic and targeted support which adopts a nuanced and tailored approach; titrating the delivery of information and advice at a pace to match carers' needs; capturing quantitative and qualitative dimensions in service evaluation; and increased quantity and longevity of funding. Such insights not only complement existing research but are also generalisable to other countries at a similar stage in the development of carer support. (Edited publisher abstract)
Exemplar models and support for older carers and carers of people with dementia: informing commissioning
- Authors:
- HENWOOD Melanie, LARKIN Mary, MILNE Alisoun
- Publisher:
- Melanie Henwood Associates
- Publication year:
- 2018
- Pagination:
- 78
This scoping report identifies models of support for older carers and carers of people with dementia. The report was commissioned by NHS England in support of its Commitment to Carers programme. The scoping carried out a review of the literature and also identified examples from the third sector using an online survey and interviews. The results found the most frequently identified models of support related to peer support and befriending, educational/coping support and resilience development. High proportions of responding organisations indicated that they were also providing support for carers in BAME and LGBT communities, though largely indicative of an inclusive approach to services rather than responding to specific needs. Specific models of support for carers of people with younger onset dementia were relatively absent. The analysis focuses on the main cross-cutting themes, and in particular these concerned: information and practical help (including sub-themes of: beyond diagnosis; signposting; locally based community support; respite; carer hubs, and dementia hubs); relationships (including sub-themes of: peer support; co-dependency; and organisational relationships); model development (including contracts and tendering), and outcomes. The report identifies areas that offer the most promising directions for future development are: building carer resilience; reducing carer isolation and loneliness; living a life beyond diagnosis; reimagining respite; and space and scope to expand. (Edited publisher abstract)
Listening to users of domiciliary care services: developing and monitoring quality standards
- Authors:
- HENWOOD Melanie, LEWIS Helen, WADDINGTON Eileen
- Publisher:
- Nuffield Institute for Health
- Publication year:
- 1998
- Pagination:
- 43p.
- Place of publication:
- Leeds
Describes the findings from a project which developed a set of quality indicators, derived from discussions with users of domiciliary care services and their carers. Based on these quality indicators the team then developed a set of quality assurance frameworks for use by the various stakeholders in domiciliary care. These can be used to help develop the commissioning and delivery of services for older people in ways which address the specific concerns expressed by users.