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From bystanders to core participants? A literature and data review of self-funders in social care markets
- Authors:
- HENWOOD Melanie, et al
- Publisher:
- University of Birmingham. Health Services Management Centre
- Publication year:
- 2019
- Pagination:
- 59
- Place of publication:
- Birmingham
This interim report provides analysis of the estimated numbers of people who are self-funding their social care and support, and reflections from a realist literature review on self-funders and their experience of engaging with care markets. The report is part of a programme of NIHR funded research at the University of Birmingham, exploring how local authorities are meeting the requirements of the 2014 Care Act to shape markets and deliver better personalisation of care. The report found a scarcity of literature about self-funders, with much either pre-dating the 2014 Care Act, or produced soon after. Estimates of the numbers of people paying for care varied considerably. Also, it found the experiences of self-funders are not routinely captured through large data sets. In total 85 items were included in the literature review. The analysis focuses on the following aspects: market limitations; personalisation; constraints on local authority market shaping; and lack of tools for people to make effective choices. The analysis was unable to provide any definitive conclusions on whether market shaping and personalisation have been effective in achieving better outcomes for self-funders. However, it highlights the challenges and tensions in bringing about the transformation of care and support. (Edited publisher abstract)
The good life for older people
- Author:
- HENWOOD Melanie
- Journal article citation:
- Community Care, 12.8.10, 2010, pp.30-31.
- Publisher:
- Reed Business Information
Key findings of a study undertaken to examine the experiences and aspirations of older people living in residential and nursing homes are summarised. The research also explored the current and potential role of long-term care and investigated older people's experience of having a voice, making choices and being in control of their lives. The report found that residential care is generally a choice of last resort, with few older people actively choosing to live in a care home. Issues of voice, choice and control are frequently missing once they have entered a care home. The report also highlights what is needed to provide a good life for older people with high support needs. The research was part of the independent living programme of work at the Joseph Rowntree Foundation