Search results for ‘Subject term:"older people"’ Sort:
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Palliative care of older people
- Author:
- BLACK Joanna
- Journal article citation:
- Working with Older People, 11(3), September 2007, pp.21-23.
- Publisher:
- Emerald
The author describes two contrasting accounts of patients experiences of palliative care at an older age.
Better Lives, Better Endings: a collaboration between extra care housing and a hospice
- Authors:
- BRYAN Liz, et al
- Publisher:
- Housing Learning and Improvement Network
- Publication year:
- 2021
- Pagination:
- 16
- Place of publication:
- London
This case study describes a project undertaken in partnership between Octavia (a not-for-profit organisation that provides homes, support and care) and St Christopher’s (a charity, providing health and social care for people approaching the end of their lives) with the aim of identifying how both staff and residents in several extra care housing schemes in West London might be empowered to improve experience of end-of-life care for everyone. The project intended outcomes are to: to encourage older people living in assisted housing to adopt a proactive approach to planning the rest of their lives including its end, drawing in people around them to help them achieve their ambitions as necessary; empower extra care housing staff resulting in greater choice and control for residents at end of life; establish a network of relevant stakeholders who will adopt and continue to develop the tools, training and relationships established beyond the end of the funded project; and encourage hospices to see the housing sector as a key strategic partner in their efforts to improve end of life for their local populations. Despite disruption caused by a global pandemic this project has been able to stay focused and on track. This has been due to both the commitment of Octavia management and the motivation and engagement of care staff. It is also thanks to the members of the Advisory Group who have offered sustained and valuable insight and support demonstrating a collective will to find solutions to the challenges faced by extra care housing facilities when providing accommodation to people with complex health needs who would prefer to die at home. (Edited publisher abstract)
Dying with dignity: improving end-of-life care in residential homes
- Author:
- HURTLEY Rosemary
- Journal article citation:
- Journal of Dementia Care, 18(4), July 2010, pp.18-19.
- Publisher:
- Hawker
This article describes the author’s personal experience of her mother’s end-of-life experience to highlight best practice in end-of-life care for people with dementia living in care homes. It describes how planning ahead enabled her mother to end her life in a place where she was known well, felt safe and secure, and was surrounded by the familiar. A coordinated end-of-life plan was drawn up, involving the GP, district nurse, care home management and family representatives. The Liverpool Care Pathway was used. The plan included issues such as mouth care, skin care and swallowing difficulties, and how long antibiotics would continue to be used.
Listening: a psychosocial intervention in an end-of-life case of trauma and emotion in the “space” of a residential care facility
- Author:
- ROBERTSON Matra
- Journal article citation:
- Journal of Social Work in End-of-Life and Palliative Care, 4(3), 2008, pp.214-228.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia
The author examines the context of social work practice in end-of-life care by describing and discussing her interview experience with an elderly patient who was reported as depressed, hopeless and suicidal after being placed in residential care. The patient had ischemic heart disease and congestive cardiac failure. The role of listening to the patient is stressed. The author comments that for individuals at the end of life who experience hopelessness, post-traumatic stress disorder and suicidal thoughts, psychosocial factors of their health care and even the arrangement of their living spaces in the hospice or residential care facility environment may contribute to their anxiety. In order to challenge those institutional interventions in end-of-life care that may pathologise those experiencing hopelessness the author suggests that social workers in palliative care reconsider and advocate for the place of listening. She emphasises the need for social workers in palliative health care to recognise the delicate nature of the relationship between hope, place and trauma to enhance care for both the dying person, and their families.
Challenges to providing end-of-life care to low-income elders with advanced chronic disease: lessons learned from a model program
- Authors:
- KRAMER Betty J., AUER Casey
- Journal article citation:
- Gerontologist, 45(5), October 2005, pp.651-660.
- Publisher:
- Oxford University Press
This American study explored the challenges in providing end-of-life care to low-income elders with multiple comorbid chronic conditions in a fully "integrated" managed care program, and it highlighted essential recommendations. A case-study design was used that involved an extensive analysis of qualitative data from five focus groups with interdisciplinary team members, two in-depth interviews with administrators, and open-ended survey responses from social workers detailing death experiences of 120 elders. Seven major themes characterized primary end-of-life care challenges: (a) the nature of advanced chronic disease; (b) the incapacity of support systems; (c) barriers to honoring care preferences; (d) challenges with characteristics and needs of participants; (e) needs of complex family systems; (f) barriers with transitions; and (g) barriers with culture and language.
Tailored resource: tailored service improvement support
- Author:
- NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE
- Publisher:
- National Institute for Health and Care Excellence
- Publication year:
- 2016
- Pagination:
- 16
- Place of publication:
- London
Developed to support National Institute for Health and Care Excellence (NICE) guideline 22 for older people with social care needs and multiple long-term conditions, this tailored resource presents three good examples of named care coordinators working with older people. The practice examples come from: Oxleas Advanced Dementia Service, Sutton Vanguard programme Nursing Home Pilot Scheme, and Midhurst Macmillan Palliative Care Service. The examples include information on the responsibilities and requirements of the role, allocating a care coordinator, improved outcomes, financial benefits and learning points. The models were identified by three focus groups and the examples gathered using information from the Kings Fund research on coordinated care, telephone interview data and supporting documents from the Programme Leads (Edited publisher abstract)
Co-ordinated care for people with complex chronic conditions: key lessons and markers for success
- Authors:
- GOODWIN Nick, et al
- Publisher:
- King's Fund
- Publication year:
- 2013
- Pagination:
- 33
- Place of publication:
- London
The costs of caring for people with age-related chronic and complex medical conditions are high and will continue to rise with population ageing. Yet people with multiple health and social care needs often receive a very fragmented service, resulting in less than optimal care experiences, outcomes and costs. However, there is a general lack of knowledge about how best to apply (and combine) the various strategies and approaches to care co-ordination. This report presents the findings from a two-year research project funded by Aetna and the Aetna Foundation, which aimed to understand the key components of effective strategies employed by studying five UK-based programmes to deliver co-ordinated care for people with long-term and complex needs. The five case study programmes were: Midhurst Macmillan Community Specialist Palliative Care Service (West Sussex); Oxleas Advanced Dementia Service (Bexley, Bromley and Greenwich); the Sandwell Esteem Team (West Midlands); community virtual wards in South Devon and Torbay; and community resource teams in Pembrokeshire. The research also involved a non-systematic review of the literature on care co-ordination for people with complex needs. The evidence suggests that comprehensive, system-based solutions to care co-ordinaton have the potential to improve collaboration within and between various parts of health care. The research elicits some key lessons and markers for success to help identify how care co-ordination might be transferred from the UK to the US context. (Edited publisher abstract)
Cultural vulnerability: a narrative approach to intercultural care
- Author:
- GUNARATNAM Yasmin
- Journal article citation:
- Qualitative Social Work, 12(2), 2013, pp.104-118.
- Publisher:
- Sage
This article uses analysis of focus group discussions with palliative care professionals in the United Kingdom to discuss the value of a stance of cultural vulnerability in intercultural social work. Interviews were carried out with older people and carers from racialized minorities (n=33) and health and social care professionals (n=56). The main professional groups interviewed were nurses (n=30) and social workers (n=16). Cultural vulnerability recognizes mutual vulnerabilities in caring relationships. The meanings and potential of cultural vulnerability are explicated through an in-depth case study analysis of a group interview with hospice social workers. Narrative methods are advocated as a resource in supporting practitioners to recognize cultural vulnerability and to work with indeterminacy and difficult emotions. The representation and role of cultural knowledge and racism in social work narratives is given specific attention. (Edited publisher abstract)